Autistic activist, advocate, & creative researcher. PhD student, Durham University. @Autism_R_and_D @SensoryJoy https://xitter.cf/t.co/eiYXcvepSe (they/them)

UK
Joined July 2009
#Thread An important part of reclaiming my life after late #Autism diagnosis has involved rekindling my #research career which burned out years before. Peer reviewed papers representing all 3 phases of the Bridging the Silos #Autistic #menopause study have now been published. 1/
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Tranquility. Autistic joy.
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Regulation. Decompression. Autistic joy!
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It’s the autumn equinox today and there’s a hint of it in the trees.
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On the cusp of a huge post-retirement adventure. Uncertainty and risk are part of this. Immersing myself in nature to prepare. #ageing #Autistic #joy
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It’s publication day for #Autistic #Menopause: A Guide to the Menopausal Transition for Autistic People and those Supporting Them' by Dr Rachel Moseley & Prof Julie Turner-Cobb, illustrated by me. uk.jkp.com/products/aut... #autism #neurodivergence #perimenopause #postmenopause
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A lot has been going on recently. In the midst of a course of treatment my GP was suspended by the CQC which nudged me to transfer to a larger primary care practice. No more 8am phone calls; I just submit an online form saying what I need! Transformative! #Autistic #healthcare 1/
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Before my hip x-ray I was told that anxiety makes pain feel worse. So does deterioration of the joint. Thyroid, vitamin D/B12 deficiencies were also physically and mentally debilitating but reversible with medication. My test results helped to counteract testimonial injustice. 6/
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I’m flourishing despite my health challenges and I feel more comfortable in myself. There’s lots of space for #joy like this glorious hilltop meadow. Having always been fiercely independent I’m learning one of the hardest lessons which is how to accept help. #ageing #Autism 7/end
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Today's the day ! It's launch day for the #BigButterflyCount . . . Get out between now and 10th August for 15 minutes and count the butterflies you see & help the great citizen science of @savebutterflies ! Get involved at bigbutterflycount.org
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Rose Matthews retweeted
andrea was a true beautiful & incredible soul. their poetry n writings, abt grief esp were often silently reposted & loudly touched my heart. then i came across this one vid that changed everything. it is a true loss. they’re a gift. thank you for your words. u will be so missed
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Rose Matthews retweeted
Andrea Gibson died today and i am very sad. here’s one of their works about grief.
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I was interviewed by Tanja Bächler recently for her YouTube channel. The first part is about life before and after #Autism diagnosis at 58. At 27 mins we shift to research I’ve been doing on #Autistic people’s experiences of #menopause #AutisticMenopause youtu.be/DpTsoZsHomw?si=97Aw…
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It's the 65th time the earth has been around the sun in my lifetime... so yes I am happy to see the sun rise again..
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I want to thank all of our participants who shared their lived experiences so generously and thoughtfully. I also want to thank my research colleagues for their advice and support. It’s been an incredible learning journey. For more publications see: rosematthewsresearch.com/rec… 10/
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Going with the flow has taken me in some exciting new directions recently. I can’t predict what the next months and years will bring, but I’m finding fulfilment in combining different skills and interests and contributing to research in different ways. youtu.be/4Lh2nuxxbGQ 11/
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