Orphan Reach retweeted
Virtual #RareDiseaseDay at @NIH 2022 is next Monday, Feb. 28! Register here: go.usa.gov/xeMGH #RDDNIH
Check out this thread for information on sessions w/@rarediseasesnet speakers ⬇️
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Orphan Reach retweeted
#LightUpForRare! Will you help make a global chain of lights for #RareDiseaseDay2022 to show your support for the rare disease community and unite across the world?
#RareDiseaseDay2022 #TuesdayTakeover @GeneticAll_UK @rarediseaseuk
Orphan Reach retweeted
Rare Disease Day is just around the corner... are you ready to get involved?
Watch our recorded webinar and learn how to prepare your social media communication ahead of Rare Disease Day 2022.
➡️Watch now: cutt.ly/PPUcIS8
#RareDiseaseDay
Spend few minutes to sign up to the #RareDiseaseDay new webinar about ways to introduce rare diseases to young children, taking place on the 17th February 2022
tinyurl.com/485drj5s
#RareDiseasDay2022 #RareDiseaseMonth
Spend few minutes to sign up to the #RareDiseaseDay new webinar about ways to introduce rare diseases to young children
📅 17 February 2022
🕑 14:00 CET
tinyurl.com/485drj5s
Rare Disease Day Webinar
Nada is determined to spread awareness about Epidermolysis Bullosa and fight against social discrimination.
Read Nada's story and share your own: cutt.ly/fO2h8x2
#RareDiseaseDay2022
22-year-old Nada from Egypt is living with epidermolysis bullosa, a rare disease that affects the skin.
Nada is determined to spread awareness about Epidermolysis Bullosa and fight against social discrimination.
➡️Read Nada's story and share your own: cutt.ly/fO2h8x2
Around the world there are 300 million people living with a rare disease. 🌎
Are you one of them?
Share your story today and help raise awareness: cutt.ly/POTzeyq
#RareDiseaseDay
Inside the rare disease centre which aims to accelerate biotech growth...
DDW’s Megan Thomas spoke with Thomas Ogorka our Managing Director about the potential of our rare disease centre.
You can read the interview here: lnkd.in/e5AgMwFh
#raredisease #rarediseasecentre
Orphan Reach retweeted
Come and visit our stand at #WODC Barcelona and pick up a copy of our latest #FutureofRare in print.
Orphan Reach retweeted
For #WorldPneumoniaDay, we're sharing a study with Emmes authors of #pneumococcal #vaccines published in 2018 #StopPneumonia #EveryBreathCounts pubmed.ncbi.nlm.nih.gov/2927…
We are delighted to be exhibiting at World Orphan Drug Congress in Barcelona next week! You can visit us at booth #19 to meet with our experts, and to learn all about our exciting launch as @EmmesCRO's Rare Disease Center.
#WODC #WODCEurope #RareDisease
Orphan Reach retweeted
We are excited to announce Orphan Reach: Emmes' Rare Disease Center! This global specialty center is dedicated to the advancement of #raredisease research by providing specialized clinical trial design & execution capabilities @orphan_reach
Learn more: bit.ly/3nRDz0Q
#BREAKING: We are excited to announce the launch of Orphan Reach as @EmmesCRO's Rare Disease Center! The center will incorporate Emmes’ world class reputation in public health research, with the expertise of Orphan Reach.
Learn more: lnkd.in/ef5WP7bT
Orphan Reach retweeted
Do you have the ability to build strong relationships with a variety of people?
Yes?
Apply to join the team as our new Fundraising Officer!
Read the job description now and apply before 9am on 1st December
Good luck & we look forward to meeting you!
👉ow.ly/W63E50GIc6q
As part of #mitoawarenessweek Please view this short animation which gives a simple overview of #mitochondrialdisease
During World Mitochondrial Disease Week we'd love every single one of our followers to take a few seconds to RT this short animation which gives a simple overview of #mitochondrialdisease
It's time to talk about #mito
Thank You! ❤
Orphan Reach retweeted
Please RT and help raise awareness during World #MitochondrialDisease Week. Thank you.
#lilyfoundation #mitoaware
Orphan Reach retweeted
We are starting World #MitochondrialDisease Week with this simple statistic. Some might say it's only one, but for families that one is their everything. There are few effective treatments & NO CURE for #mito Please RT to raise awareness. Find out more: thelilyfoundation.org.uk/
🎈 Today is World #Duchenne Awareness Day 🎈 #WDAD2021
Join the awareness campaign by sharing the materials created by @worldduchenne ❤️ worldduchenneday.org/get-inv…
#rarediseases #neuromusculardisease #research
Orphan Reach retweeted
Today is @DuchenneDay help us #SpreadTheWord to raise awareness for Duchenne Muscular Dystrophy #WDAD2021
worldduchenneday.org/spreadt…
Orphan Reach retweeted
🗓 Join the online educational event on Adult Life & Duchenne!
→ Experts share their experience and knowledge on adult life and #Duchenne
→ Duchenne adults from different parts of the world share their experience of living with Duchenne
worldduchenneday.org/online-… #WDAD2021
Exciting news for @MetabolicSuppUK 🎉
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