Gorgeous day for a wee wander up the Pentlands. So lucky to have this right on our doorstep here in Edinburgh.😊
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Love our family trips to Arran. A recent pic I took when we were all there together.🥰
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Huge thanks to Collette for the immense contribution to the PBC community. It is valuable donations that enable the PBC Foundation to continue its campaign for better care and treatment for PBC patients. Please support us!
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Excellent profiling of unmet PBC needs and new treatments on the horizon for patients in this week's The Times 'Future of Healthcare' supplement. Click here to read more... pbcfoundation.org.uk/news/la…
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Calling all PBC patients! We are keen to hear of your experience with itch to help us build the case for better treatment for you. Please visit our mobile app for this survey and many other other excellent patient resources.😊
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Privileged to have Professor Neuberger with us today to answer all your #PBC medical queries. Please join us at 2pm!
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BASL abstract highlighting the PBC the patient experience of QoL prioritising submitted! Now it’s time to relax with Prof David Jones OBE’s ‘The Definitive Guide for Patients with Primary Biliary Cholangitis’ (again!). Awesome read for anyone with an interest in PBC #BASLbooklist
Are you a #LiverTwitter bookworm?
The #BASLbooklist will launch at #BASL2022.
Pls send us your favourite books for our priorities:
❤️people
💚planet
💜recovery
Pls send:
⏺️title, author, priority
⏺️+/- description & your name (if you wish)
by DM or email to [email protected]
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Looking forward to Prof Jones OBE giving us his precious time to answer all your PBC medical queries and share his latest intelligence. Not to be missed! Join us at 2pm today.😊
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Day 3 of this year’s exceptional ILC! Very excited to present abstracts 274 and 291 today from @PBCFoundation research highlighting the patient experience of their unmet needs for better treatment and care. Yes - it’s ALL about the patients!
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Very excited to be at my first ILC with @PBCRobert and @Collettepbc. Just had to pop down to @ExCeLLondon for a sneak preview today. Wow! Well done @EASLnews! Can’t wait to discover the very latest research and represent our wonderful PBC patient community…
Calling all PBC patients! Please join our survey to tell us of your itch experience and help us highlight your unmet needs for better symptom treatment. Be part of the solution! Find out more here…
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Massive thanks to the climbers supporting @PBCFoundation with this mammoth effort! Good luck everyone!
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Super to hear @Collettepbc on @TalkTV discussing some of the amazing work at @PBCFoundation for which she was recognised by Her Majesty The Queen. Inspirational!!
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Super excited to welcome @PBCRobert home to @PBCFoundation as our CEO! There's never been a more promising time for the PBC patient community and I'm delighted that Robert is leading our charge to overcome the many unmet needs still evident. Join us at 4pm to hear Robert's news.
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Looking forward to catching up on the latest chat across the PBC Foundation community today. Feel free to pop in and say hello!
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Could two Twitter friends please copy and re-post this tweet to show that someone is always there? Call 0800 689 5652 (National Suicide Prevention Helpline UK). Just two. Any two.
Copy, not retweet.
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Calling all PBC patients! Exciting new treatments are on the horizon to manage fatigue and brain fog, and it is vital that we understand your preferences for tacking these symptoms. Please take a few moments to complete our short survey to help these new treatments be developed.
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Most sincere thanks to @RareRevolutionM for highlighting the solutions being developed by @PBCFoundation and wider community to address the unmet PBC needs. Read more here: bit.ly/PBCANewHope














