@PCPLDnetwork

Palliative Care for People with Learning Disabilities Network. UK based charity raising awareness and sharing best practice. Shortlisted for NDA Awards 2021.

 United Kingdom
pcpld.com
Joined February 2013
  • Tweets3.3K
  • Following1.4K
  • Followers3K
537Media
Healthcare professionals in palliative and end-of-life care: help shape the new Impact Centre at King’s College London. Share your insights in our short, anonymous survey (15 mins). Take part: qualtrics.kcl.ac.uk/jfe/form…
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📢 The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disability & autistic people who died in 2023. The work is part of efforts to reduce health inequalities. Access here: kcl.ac.uk/ioppn/assets/pdfs/… #LeDeR @KingsIoPPN
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PCPLD Network retweeted
@PCCongress@PCCongress1 Sep 2025
⭐️MAIN CALL FOR ABSTRACTS NOW OPEN ⭐️ Online abstract submissions are invited for original research relevant to palliative care and in consideration of the conference theme #PCC2026 More info 👇 🔗pccongress.org.uk/main-abstr…
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We're excited to exhibit at this years Nursing Live in Birmingham for the third consecutive year running . We look forward to sharing our Palliative and End of Life expertise and resources and celebrating the best in Nursing care. Sign up for your free place invt.io/1exbpxrujab
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PCPLD Network retweeted
NHS Ability@NHSAbility4 Aug 2025
The #NHS should make #ReasonableAdjustments to make it easy for #disabled people to use services. Hear what works for Kareem to find out about the support you could ask for youtu.be/6bdxREk9_2I #LearningDisability
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Did you know that #DisabilityPrideMonth is celebrated every July in honour of the anniversary of the signing of the Americans with Disabilities Act (ADA) in July 1990? Happy #DisabilityPride Month from all of us at the BC Epilepsy Society! #Epilepsy #EpilepsyAwareness
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Are you a carer supporting someone with a learning disability? The @unisouthampton are looking for #carers with a variety of experiences, ages, genders, and ethnicities. Find out more here!👇 bit.ly/4lxZ8Qb #VoiceOpportunity
Promotional image for a University of Southampton and Voice focusing on annual health checks for people with learning disabilities. Includes close-up of a hand with a blood pressure cuff, with details about participation, closing date 31 July 2025, and a £20 shopping voucher incentive.

ALT Promotional image for a University of Southampton and Voice focusing on annual health checks for people with learning disabilities. Includes close-up of a hand with a blood pressure cuff, with details about participation, closing date 31 July 2025, and a £20 shopping voucher incentive.

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PCPLD Network retweeted
JoElversonSOH@ElversonJo19 Jun 2025
Great to be at the Palliative care for people with learning disabilities conference today @PCPLDnetwork. Diane showcasing her fantastic research @stoswaldsuk
Conference Poster title: Improving the use of different communication types with children and young adults in a hospice

ALT Conference Poster title: Improving the use of different communication types with children and young adults in a hospice

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#LearningDisabilityWeek LeDeR research has uncovered critical health inequalities affecting people with a learning disability. This #LearningDisabilityWeek, we're sharing our deep dives which can inform improvements to care. @KingsIoPPN #DoYouSeeMe #LeDeR #LDWeek2025
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Happy #InternationalNursesDay2025! To every #nurse around the world: thank you for your dedication, compassion and the incredible work you do every day 💜 We would love seeing your #IND2025 celebrations, please send us your pictures at [email protected] #OurNursesOurFuture
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PCPLD Network retweeted
Dying Matters@DyingMatters2 May 2025
"This year's theme asks us to be a little brave" - @drkathrynmannix on #TheCultureOfDyingMatters. #DyingMattersAwarenessWeek 2025 begins on Monday 5 May. 💙
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Cody Dock and Marie Curie Palliative Care Research Department UCL present Cycles of Life. Join us at Cody Dock for a unique evening of short talks and conversation, exploring different approaches to mortality. We will hear six fascinating talks from leaders representing the disciplines of art, ecology, history, psychology, and religion. Open to all. More details here - eventbrite.co.uk/e/cycles-of…
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There are no #LearningDisability #Nurses left. Imagine! There are worse #healthinequalities for people with a learning disability Imagine! Save our valued profession now. Your action will take two minutes but will last a lifetime. petition.parliament.uk/petit… Thank you. 🙏🏼

Petition: Fund a full bursary and maintenance fund to train Learning Disability Nurses

At a time when the demand across health and social care is so high, numbers entering the LD nursing profession are too low. To halt this decline, support the profession with a full bursary and...

petition.parliament.uk
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Proud to speak today @rcgp Learning Disabilities Conference today with @TuffreyWijne ✨Resources to help improve compassionate care with conversations focusing on what & who matters most.💛 ➡️ Daffodil Standards rcgp.org.uk/daffodilstandard… ➡️ACP Toolkit – victoriaandstuart.com
Supporting people with learning disabilities and their carers through advanced serious illness and end of life care One Day Essentials | Learning Disabilities Tuesday 8 April 2025

ALT Supporting people with learning disabilities and their carers through advanced serious illness and end of life care One Day Essentials | Learning Disabilities Tuesday 8 April 2025

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📺Workshops for driving change in palliative and end of life care Work in palliative and end-of-life care? Want to join a workshop in May on how to improve services and experiences of care? Learn from research findings part-funded by Marie Curie. You can express your interest in joining via this form (enter your details by noon April 30th) and find more info here forms.office.com/e/BaEfpWY5W…
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Have you got a passion for research and want to help shape funding decisions? We’ve opened a wide range of opportunities to join our decision-making committees across multiple research programmes. Learn more about the opportunities available and apply at ⬇️ nihr.ac.uk/get-involved/comm…
Become a Committee Member

ALT Become a Committee Member

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Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help? The sessions seek to explore researcher views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇
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PCPLD Network retweeted
Marie Curie
@mariecurieuk4 Mar 2025
💬 Did you know our Responsive Emergency Assessment and Community Team (REACT) service aims to help keep patients with a terminal diagnosis out of hospital? The scheme was set up after data showed that end-of-life patients spent an average of a month in hospital in the last year of their life. 💔
An ambulance parked in front of an Accident and Emergency department, with a text overlay stating, "We work with hospitals so people with a terminal illness can be cared for out of hospital. @mariecurieuk.

ALT An ambulance parked in front of an Accident and Emergency department, with a text overlay stating, "We work with hospitals so people with a terminal illness can be cared for out of hospital. @mariecurieuk.

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PCPLD Network retweeted
@PCCongress@PCCongress3 Mar 2025
Join @TuffreyWijne on 20 March at 11:20 in Meeting Room 3 #PCC2025 How to involve people with a learning disability in end-of-life care planning 🎟️pccongress.org.uk/registrati…
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PCPLD Network retweeted
Marie Curie
@mariecurieuk1 Mar 2025
Share this post to show your support for our #GreatDaffodilAppeal this March 💛 There’s only one chance to give someone the best possible end of life. But every five minutes, another person dies without the care they need. This is your chance to help change that. Find out more: tinyurl.com/mrywxdpc
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