@PPCRG

Primary Palliative Care Research group: Usher Institute, University of Edinburgh. Palliative and anticipatory care research in primary care.

 Edinburgh, UK
ed.ac.uk/usher/primary-palliative-care/
Joined May 2010
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  • Followers543
61Media
What evidence is needed for better end of life experiences? What questions should research address? Our blog is now live - highlighting what happened since 2015 with the @PeolcPSP top 10 and our new project to refresh the research priorities #peolcpsp. blogs.bmj.com/spcare/2023/09…
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Fluctuating decision making about aging-in-place/long term care planning among older adults. #geriatrics agsjournals.onlinelibrary.wi…
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No tweeting from me (@drpoco) yesterday due to a busy clinical day. A significant part of my role as a GP is offering patients and their loved ones the opportunity to plan for their future care. We call this Advance Care Planning (ACP).
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Continuing my (@drpoco) PELiCam takeover, let's talk about primary palliative care... Did you know that most people in the UK die at home or in a care home? GPs provide much of this care, along with Community Nurses.
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More on @mariecurieuk’s campaign to let dying people access their State Pension - and prevent 1 in 4 dying in poverty - here. This really isn’t something that should have to be asked for - we urge the government to listen to campaigners’ voices and act.
The Guardian
@guardian10 Jan 2023
Terminally ill people urge UK government to pay pensions early theguardian.com/money/2023/j…

Terminally ill people urge UK government to pay pensions early

Those of working age who die are twice as likely to spend final year of life in poverty, says charity

theguardian.com
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Replying to @TheSPICT @kirstyedinpall @EAPCvzw
Congratulations on this rigorous work, and all the best getting the SPICT spict.org.uk into clinical practice and GP training in Germany? @aieye @DanMundayNG @MetteNeergaard @kirstyedinpall @taniaxpastrana @EAPCvzw @TheSPICT @PPCRG @
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Patients having palliative treatment for incurable GI cancers valued advance care planning (ACP) in primary care Figure shows factors underlying ACP behaviours @PPCRG @scottamurrayed @kirstyedinpall doi.org/10.3399/BJGP.2021.07…
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Great presentation at #sppcconf22 from Kirsty Boyd, @DrEmmaCarduff & @Deleriad on #unscheduled care at end of life. ‘What happens at the beginning determined the end,’
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Great video at nhsinform.scot/acp to explain to people how planning ahead for what might happen can be really helpful #covid #earlypalliativecare @kirstyedinpall @WGHLothianQI @PPCRG @EdinUniUsher @mariecurieuk @macmillancancer @jordiamblas
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Dying out-or-hours: no time to die dx.doi.org/10.1136/spcare-20… Care in the community costed only 4% of hospital- based care. Better resourcing in the community would provide safer, more responsive high-value low-cost care - and prevent hospital admissions
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Dying out of hours: no time to die spcare.bmj.com/content/12/Su… For many, the last year of life can feel like a car chase from James Bond. More care-planning started in-hours and shared with urgent/emergency services would decrease A&E usage and admissions

1 Dying out of hours: no time to die

Introduction Death and dying are not 9-5 activities. When a crisis starts out-of-hours (OOH) patients may not be identified as having palliative care needs and are disadvantaged in a frantic system....

spcare.bmj.com
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Willingness to engage in advance care planning was affected not only by knowledge of disease but also by their beliefs about advantages or disadvantages; that its concept should be in accordance with patients’ faith; presence of barriers. #hpm #hapc journals.sagepub.com/doi/ful…
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PPCRG retweeted
ICPCN@ICPCN10 Dec 2021
It is a human right for children and young people, with life-limiting conditions, to have the best quality of life and care. Today on Human Rights Day, we are advocating for the global development of children's palliative care services, for all children and young people.
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What factors are associated with advance care planning in community-dwelling older people? Data from TILDA See new research that finds 1 in 4 had discussed future care wishes, but only 10% of these had an advance care plan documented in writing. pubmed.ncbi.nlm.nih.gov/3482…

What factors are associated with advance care planning in community-dwelling older people? Data...

Only one in four older people had discussed ACP informally, while less than 3% have ACP documented in writing. Further work is required to educate the public and healthcare professionals regarding...

pubmed.ncbi.nlm.nih.gov
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Poster 17 - “I’m sorry I haven’t a clue”: Public Perceptions of Anticipatory (advance) Care Planning (ACP) @PPCRG @kirstyedinpall @EdinburghUni @RebPatter @EdinUniUsher @MarieCurieSCO @MarieCurieEOLC @CannyAnne1 @Deleriad
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Unscheduled and out-of-hours care for people in their last year of life: a retrospective cohort analysis of national datasets @BMJ_Open bmjopen.bmj.com/content/10/1… Linking these data shows unscheduled pathways for different illnesses and deprivation groups
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NEW PAPER shows that by 2040 annual deaths in Scotland are expected to rise by 16% to 66k. If current trends continue, most people could die in the community, and hospital deaths could fall to one-third. @MarieCurieSCO @CSI_KCL @PPCRG @AnnaEBone doi.org/10.1186/s12904-019-0… 1/4

The impact of population ageing on end-of-life care in Scotland: projections of place of death and...

BMC Palliative Care - Global annual deaths are rising. It is essential to examine where future deaths may occur to facilitate decisions regarding future service provision and resource allocation....

link.springer.com
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"The scope of #palliativecare within primary care is wide & its development vital to enable #UHC, but it needs to be recognised and clearly defined" Defining primary palliative care for universal health coverage: NEW Comment from D Munday @PPCRG et al hubs.ly/H0kt_MV0
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Come see Bruce’s poster on use of out-of-hours in last year of life. P01-212. #EAPC2019 ⁦@Deleriad⁩ ⁦@PPCRG⁩
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#EAPC2019 @kathygleeson suggests 85% biomedical research not affecting impact so can we reduce waste and instead ask the questions most useful to their who would benefit. 4% #PalliativeCare reserach relates to LMIC @lizgrant360 @IAHPC @julia_downing @DanMundayNG @CairdeasIPCT
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