Aug. 7: World PVNH Disorder Awareness Day! Wear pink/yellow to show support for affected children, adults & their families. @PVNHsupport #hererotopiadisorders
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PVNH Support & Awareness celebrates Rare Disease Day by sharing Yolaine's story, in memory of Ella, the soul behind our work.
What a day! Yolaine Dupont shared a photo and message this am, then recorded this video for #RareDiseaseDay, but it never got posted because it was too
long. So here we go: youtu.be/oXoucb8J6f4
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#neuronalheterotopia
#PVNH #gmh #SBH
#RareEpilepsy
#periventricularnodularheterotopia
#greymatterheterotopia
#SubcorticalBandHeterotopia
#awareness
PVNHday retweeted
Le Canada recrute ! 📅 #DestCanTourisme revient les 13, 14 et 15 novembre pour mettre en relation des travailleurs francophones qualifiés des secteurs du tourisme, de l'hôtellerie et de la restauration avec des employeurs canadiens. Plus d'info 🔗destinationcanadatourisme202…
PVNHday retweeted
It's here!!
@pvnhday !! Help us snap photos of illuminations, show your #pinkandyellow and share your stories!!
#PVNH #PVNHloud #worldpvnhday #pvnhday
#GMH #SBH #EpilepsyAwareness
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Happy pride! Come by booth 18-19 for a massage and a chance to win a trip for 2 to #thailand on #aircanada!
@aircanada @thailandinsidercanada @gothaibefree @vancouverpride
#flytheflag
#happypride
#vancouverpride
#canadapride2024
#VanPrideFest
// Joyeuse journée de la fierté!
Passez au kiosque 18-19 pour un massage et la chance de gagner un voyage pour 2 en Thaïlande sur Air Canada!
#hautledrapeau #fierté
#vancouver
More illuminations are coming in North America tonight. Keep an eye on our social media too as well will have a surprise for you today!
Did you take photos last night of will you be snapping photos tonight? ? Share with your family and friends and tag @pvnhsupport & @PVNHday.
PVNH Day Illuminations are starting a day early in Australia. Tag pics or videos to @pvnhsupport @pvnhday
#prequel
#PVNH #GMH #SBH #landmarks
#illuminations #awareness #brain #rarediseases #epilepsy .#rareepilepsy #malformationsofcorticaldevelopment
#MCD #neuronalheterotopia
Congrats to Felicitys' parents and family on raising awareness for #WorldPVNHday.
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More illuminations tonight ahead of World PVNH Day, in Ontario and British Columbia.
#WorldPVNHday
#PVNHawareness
#CorticalMalformation
#PVNH #GMH #SBH
#PVNHloud
Just posted a photo @ Brisbane, Queenland, Australia instagram.com/p/Cgy4OhJOxCg/…
Get your #pinkandyellow ready and stay tuned for our list of illuminations lighting up between Aug. 4 and Aug. 7 for #worldPVNHday!
Trying to catch up on an amazingly successful and busy World PVNH Day #10!!! instagram.com/p/CSTogyiLS7D/…
Thank you @TELUS_Spark !!
💓 💛 Spark will be lit pink and yellow in support of World PVHN Awareness Day.
@PVNHsupport @PVNHday @vangroovymom