@PiNSA_ZA

PiNSA is a NPO, patient driven association dealing with Primary Immunodeficiencies (PID) to ensure that PID people in SA receive optimal treatment and support

 South Africa
pinsa.org.za
Joined July 2011
  • Tweets582
  • Following816
  • Followers315
50Media
🌍❤️ Join Us in Celebrating World Blood Donor Day - 14 June! ❤️🌍 Did you know that your blood donation can be a lifeline for individuals with a primary immunodeficiency (PID) or an inborn error of immunity (IEI). facebook.com/share/v/mKbh9ND… #WorldBloodDonorDay #DonateBlood #PiNSA
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Your donation matters.  #WorldBloodDonorDay #DonateBlood #GiveLife #PiNSA #PrimaryImmunodeficiency #LifeSaver
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Today we celebrate International Nurse Day Thank you to all the nurses for all your love and care, we all appreciate you Our Nurses. Our Future. International Council of Nurses The economic power of care #IND2024 #OurNursesOurFuture youtu.be/wclRTEqIiPI
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World PI Week 2024 - Our Stories Access to care for all PID patients, everywhere Let’s make early diagnosis & timely access to quality treatment a reality worldwide 💚 Calleigh's Story 💚 Read more : worldpiweek.org/wp-content/u…
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World PI Week 2024 - Our Stories Access to care for all PID patients, everywhere Let’s make early diagnosis & timely access to quality treatment a reality worldwide 💙 Renita's Story 💙 Equal access to PID care should be a priority worldwide. Read more: worldpiweek.org/wp-content/u…
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World PI Week 2024 - Our Stories Access to care for all PID patients, everywhere Let’s make early diagnosis & timely access to quality treatment a reality worldwide 💖 Zoe's Story 💖 6 KEY MESSAGES ON IMMUNOGLOBULIN THERAPIES
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World PI Week 2024 - Our Stories Access to care for all PID patients, everywhere Let’s make early diagnosis & timely access to quality treatment a reality worldwide Anle's Story 💜 Early diagnosis contributes greatly to improved quality of life and care for people with Pl
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World PI Week 2024 - Our Stories Access to care for all PID patients, everywhere. Let’s make early diagnosis & timely access to quality treatment a reality worldwide. Remember the warning signs for infections thats: Serious Persistent Unusual Recurrent
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World PI Week-Our Stories Access to care for all PID patients, everywhere. Let’s make early diagnosis & timely access to quality treatment a reality. We pay tribute and remembering Vicki Modell, global patient advocate, and co-founder of World Primary Immunodeficiency Week
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At PiNSA, we are excited to participate in World PI Week 2024 Together, bringing about change for primary immunodeficiency patients in South Africa. Together, We Make a Difference #WorldPIWeek #PINSA #rarediseasesa
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We are joining hands across the globe to help raise awareness about World PI Week. To improve diagnosis, treatment access and support for patients and their families. South Africa has challenges and these have an impact on conditions-majority of people with PID are not diagnosed
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PiNSA - Primary Immunodeficiency Network SA retweeted
Jeffrey Modell Foundation (JMF)
@Info4PI24 Apr 2023
We translated our 10 Warning Signs of #PrimaryImmunodeficiency into 60+ languages! Visit our website to see our educational resources separated by region of the world for #WorldPIWeek at info4pi.org/internet-cafe/vi… 🌍 ⁠
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As part of celebrating World PI Week 2023, here is some information About Primary Immunodeficiency worldpiweek.org youtu.be/cNP14uct7sY #WorldPIWeek #primaryimmunodeficiency #PiNSA #iPopi
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Please join us to create awareness for #WorldPIWeek 22-29 April #primaryimmunodeficiency affects 442 people in SA that we are AWARE of! Many are still undiagnosed. Thanks to plasma derived treatments many of our members are able to live life as normal as possible
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PiNSA - Primary Immunodeficiency Network SA retweeted
Jeffrey Modell Foundation (JMF)
@Info4PI15 Mar 2023
The Jeffrey Modell Foundation is saddened to hear that Dr. Shereen Reda has passed away. She was a brilliant physician, professor, researcher, and mentor. She will be missed in Cairo, in Egypt, and throughout the global Primary Immunodeficiency community ❤️
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PiNSA - Primary Immunodeficiency Network SA retweeted
IPOPI
@ipopi_info2 Mar 2023
In search of a free and easy way to monitor your immunodeficiency? 4ID is here for you. 👩‍⚕️ Immunodeficiency parameters 🤒 Symptoms 💊 Prescription and treatments 🗓️ Appointments and absences 🔔 Reminders Sign up now 4ID.ipopi.org #4IDHealthAgenda
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PiNSA Celebrating World RARE Disease Day today 💙💚💜 28 February 2023 💙💚💜 PiNSA is joining hands across the globe to help raise awareness about World Rare Disease Day Primary Immunodeficiency (PID) is one such illness #RareDiseaseDay #rarediseaseday2023
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Calling all PINSA members for a mass infusion. We want to set a world record of the most infusions administered over World PI Week 22-29 April 2023, in creating awareness for people living with Primary Immune deficiencies ⁦@ipopi_info⁩ ⁦⁦⁦⁦@rarediseasessa⁩
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South African hospital thinks outside the box to boost COVID-19 testing who.int/news-room/feature-st… @JanGrabSA @RARE_X_ @RarediseasesSA @WorldPIWeek
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PiNSA - Primary Immunodeficiency Network SA retweeted
The SANBS
@theSANBS17 Aug 2020
We need 4500 units of #NewBlood - help us save the lives of South Africans by becoming a new blood donor today. #YourBloodSavesLives
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