@ProjectLifeMBC

Project Life is a membership based virtual wellness house, for those living with metastatic breast cancer and their caregivers.

 Nationwide
linktr.ee/plmbc
Joined September 2020
  • Tweets906
  • Following249
  • Followers715
186Media
Where do folks send qualitative Cancer research? Non-cancer journals that publish qual work say it is better suited for cancer journals, cancer journals say “small cohort” qual work is not in scope… I just want folks to know about the great work we did with @ProjectLifeMBC 🥲
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Weekly drop ins with the mentors @ProjectLifeMBC is the highlight of my weekend! If you are living with #mbc and either want to mentor or want to be mentored, consider joining us. we’ve got an amazing team!! Email me at mentorship at ProjectLifeMBC.com. #bcsm #mentoring – at O'Fallon, IL

Home | Project Life MBC

Project Life is a virtual wellness house. Focusing on our five dimensions of wellness, we will offer programs to address the various topics that a Metastatic Breast Cancer patient and their loved...

projectlifembc.com
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Thankful to the team @ourmbclife for letting me help with this important episode. As you listen, keep an ear out for the upcoming @ProjectLifeMBC Advocacy Bootcamp coming soon!! #bcsm – at Orlando, FL
OurMBCLife@ourmbclife5 Apr 2023
How do we LIVE with #MBC?Guests share how #advocacy efforts have led to finding #purpose in the midst of adversity. #bcsm #MBCadvocacy #thisismbc #StageIVNeedsMore #LightupMBC #metavivor @cormerod @LightUpMBC @faceofstage4 @305pinkpack @malefitness @amjohnston1315 @JaniceTNBCmets
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Thanks to @AMJohnston1315 for leading this important discussion about advocacy, connection, & purpose. Listen to the latest episode of @ourmbclife here👉🏻 ourmbclife.org/episodes/mbc-… #bcsm #breastcancer #MetastaticBreastCancer #Advocacy @LivingBeyondBC @metavivor @ProjectLifeMBC

MBC Advocacy: Finding Purpose in Adversity — Our MBC Life

After a Stage IV Metastatic Breast Cancer (MBC) diagnosis, patients and the people around them are often left reeling and looking around to figure out how to make some sort of meaning from the...

ourmbclife.org
OurMBCLife@ourmbclife5 Apr 2023
How do we LIVE with #MBC?Guests share how #advocacy efforts have led to finding #purpose in the midst of adversity. #bcsm #MBCadvocacy #thisismbc #StageIVNeedsMore #LightupMBC #metavivor @cormerod @LightUpMBC @faceofstage4 @305pinkpack @malefitness @amjohnston1315 @JaniceTNBCmets
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Do you have a high risk for cancer? #GeneticTesting can help people understand their risk for #cancer, help them make treatment decisions & detect cancer early. @AMJohnston1315 & @force4sue with @FacingOurRisk discuss why it matters! Read it here ↓ thepatientstory.com/medical-…
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This is a great start! Let’s not forget people living with metastatic cancers along the way. #bcsm @ProjectLifeMBC
Hil Moss@hilmoss15 Dec 2022
The Comprehensive Cancer #Survivorship Act was introduced today, and, of course, I'm psyched about the provisions in there. Survivorship navigation, alt. payment models for survivorship care ... These would be gamechangers. A few thoughts (thread) canceradvocacy.org/introduct…

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act - Cancer Nation (Formerly NCCS)

Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today to introduce the Comprehensive Cancer Survivorship Act (CCSA),...

canceradvocacy.org
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Home from @SABCSSanAntonio. Such a wonderful time with exceptionally exceptional people. Thank you all for your support for @ProjectLifeMBC. Can’t wait till next year but first sleep.
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Replying to @ProjectLifeMBC
@ProjectLifeMBC is the patient experience— bringing heart and soul and science to #MBC. Congrats to visionary @LesleyKailani and @MyaLRoberson and the multi- talented team: @shonte19 @JaniceTNBCmets @AMJohnston1315 @faceofstage4. #SABCS22 #livingBeyondBC #bcsm
Abigail Johnston@AMJohnston13158 Dec 2022
Where we belong … so freaking proud of all the work we’re doing at @ProjectLifeMBC. Our first (and certainly not the last) poster in the poster session happening now at @SABCSSanAntonio!! #SABCS22 #bcsm
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Project Life retweeted
SABCS@SABCSSanAntonio9 Dec 2022
Replying to @MyaLRoberson
@MyaLRoberson was featured on the #SABCS22 blog a few months back. Got this photo of her flanked by Twitter chingona @itsnot_pink and @ProjectLifeMBC during Thursday night’s poster session. @OncoAlert
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Replying to @esrajustesra @AMJohnston1315 @marylinnminor1 @ElissaChandler7 @SFDiva2 @JaniceTNBCmets @SABCSSanAntonio @abreastcancer @LesleyKailani @ProjectLifeMBC
We're going to discuss some on zoom next week with GRASP. You can sign up at GRASPcancer.org There are some sessions still available. If you have questions feel free to DM me.

Grasp Cancer - Scientific Partnerships for Researchers & Advocates

Grasp Cancer connects and empowers patients and cancer researchers to advance breakthroughs together.

graspcancer.org
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Come find us at the #SABCS22 poster session today! Poster P5-08-16. Ask @LesleyKailani and I about @ProjectLifeMBC !!! – at San Antonio, TX
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Replying to @SABCSSanAntonio
@SABCSSanAntonio poster sessions always have multiple posters w/patients actively involved. A short collection with myself 😬 w/@elpPhD and @maryam_lustberg , @stage4kelly, @LesleyKailani & @ProjectLifeMBC team #SABCS22
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Replying to @ProjectLifeMBC
@ProjectLifeMBC took action on one of the gaps in #survonc care: attending to the survivorship needs of those living with metastatic cancer. @LesleyKailani you have made a difference cc @MyaLRoberson @JaniceTNBCmets #bcsm #mbc
Dr. Kelly Shanahan@stage4kelly9 Dec 2022
Congratulations to the whole @ProjectLifeMBC team, especially founder @LesleyKailani and PI @MyaLRoberson on this excellent, important work. #sabcs22 #bcsm #advocates
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"Nobody really talks about it, so I decided to be open about my stuff. You can make so many connections with people by being vulnerable and real." - Christine M., Our #AcuteLymphoblasticLeukemia Full Story ⬇️ thepatientstory.com/spotligh… #leusm #standuptocancer #thepatientstory
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It’s #FollowFriday and I’m updating a presentation w/the important work of @faceofstage4 & @mbcalliance #ASCO22 showing Black patients w/metastatic breast cancer value learning about clinical trials from those with shared experiences. Follow them! #clinicaltrials #bcsm
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This case study makes my day: In just 3 weeks of @BeLikeLight providing our @SocialProofSec Music & Spoken Security Awareness Training Videos, they've educated members from *11* cancer advocacy orgs w/ 75% completion already! Now they are turning on MFA & stopping password reuse!
Beautiful photo of The Light Collective team driven by community leaders.

ALT Beautiful photo of The Light Collective team driven by community leaders.

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Check this out friends! Based on the work of @BeLikeLight & the @themarkup follow up work. healthcareitnews.com/news/ad… 3M #patients PHI exposed in data breach. #infosecurity @BraveBosom @cvonraesfeld @eperakslis @GraceCordovano @muhammadc @kidneywarrior

Advocate Aurora notifies patients of potential tracking pixel breach

The health system says that, "out of an abundance of caution," it's assuming that anyone with Advocate Aurora Health MyChart account, including users of its LiveWell app, could be affected – as many...

healthcareitnews.com
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Have you heard about the MBC Access to Care Act? It would eliminate the 5-month waiting period for MBC patients to access Social Security Disability Insurance. Click to watch a video about this act & learn how you can help support it: youtu.be/rjgzR1y23-I #bcsm #ThisIsMBC
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My #FridayForum (I just made that up) for #patients: Biomarker testing - let’s talk about it…🗣 ➡️ Need waaaay more education around its implications on treatment options ➡️ Need waaaay more assurance it’s being done at point of diagnosis Major gaps. Thoughts? #clinicaltrials
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Today is Metastatic Breast Cancer Awareness Day (1 day out of 31 for the 43,000 dying in the US this year... okay). Still, so grateful to @LivingBeyondBC & the folks there who led me to this incredible community #4forStageIV #StageIVNeedsMore #cancer #NotDeadYet #DyingForACure
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