The Psoriasis and Psoriatic Arthritis Alliance is a UK registered charity dedicated to providing a positive approach for people affected by psoriatic disease.
UK
Joined May 2010
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We recently asked people informally about the length of time it took to get a psoriatic arthritis diagnosis. The results are an interesting snapshot of a moment in time. Read the story in the link. #psoriaticarthritis #arthritis #psoriasis
papaa.org/news/current-featu…
This World Arthritis Day, let’s challenge myths about psoriatic arthritis and build understanding.
Share | Care | Learn 💙
Explore information and support from PAPAA: papaa.org
#WorldArthritisDay #PsoriaticArthritis #RMDreams
papaa.org/news/current-featu…
As patients, it’s hard to fit overlapping conditions into neat silos. Fatigue is a good example, we often experience it without knowing exactly why or what’s driving it.
#PatientExperience #ChronicIllness #Healthcare #Fatigue #PatientCentredCare
papaa.org/news/current-featu…
PAPAA has launched a new AI-assisted search to make trusted information about psoriasis and psoriatic arthritis easier to find.
It’s the first step in wider work—and we’re keen to collaborate with patients, partners and organisations to shape what comes next.
#Psoriasis #Psoriaticarthritis
PAPAA retweeted
August 13 is GPP Awareness Day.
Generalized Pustular Psoriasis (GPP) is a rare, severe, and potentially life-threatening form of psoriasis. It affects 1–9 people per million worldwide.
➡️ Targeted research and early diagnosis are crucial.
🔗 Learn more: eu1.hubs.ly/H0xCVPM0
Heatwave + regular medicines = extra care needed.
PAPAA breaks down MHRA’s advice on safe storage, hydration and sun‑sensitive treatments for people with #psoriasis and #psoriatic arthritis #heatwave papaa.org/news/current-featu…
Our latest Skin ‘n’ Bones Connection (Issue 63) looks at how care for psoriasis and psoriatic arthritis is changing, from support closer to home and clinical homecare to new treatments. Free download, print copies in the PAPAA shop. papaa.org/shop/skin-n-bones-…
#psoriasis #psoriaticarthritis #psoriaticdisease #patientsupport #healthcare #dermatology #rheumatology #PAPAA #summer
🚨 New PM, new Health Secretary. Andy Burnham has appointed Yvette Cooper to lead the DHSC 🏥
What does it mean for NICE-approved treatments and social care reform if you're living with psoriasis or psoriatic arthritis? We're watching closely 👀
#Psoriasis #PsoriaticArthritis #NHS #HealthPolicy papaa.org/news/current-featu…
If you are interested in hearing some background thoughts about the early drive to understand #psoriaticarthritis and #psoriasis from a patient perspective check out this interview open.spotify.com/episode/7Eb…
💙 Two new research opportunities for people living with psoriasis — could you spare some time to help?🧵
papaa.org/research/opportuni… #Psoriasis #PsoriaticArthritis #PsoriaticDisease #SkinCondition #PatientResearch #TakePartInResearch #PatientVoice #ClinicalResearch #HealthResearch
How are changing times affecting you with psoriasis or psoriatic arthritis? 💬
#psoriasis #psoriaticarthritis #chronicillness
papaa.org/news/current-featu…
🤖 Made with AI
PAPAA retweeted
It’s #StressAwarenessMonth.
Most people feel stressed sometimes. But if stress is affecting your daily life, there are things you can try that may help. ⬇️
Many people find their #psoriasis or #psoriaticarthritis changes with the seasons . Explore how weather might affect you, and find practical tips on skincare, sun, and triggers.
papaa.org/news/current-featu…
💙 Psoriasis/psoriatic arthritis impacts skin, joints, work & wellbeing. PAPAA offers information on all aspects, treatments & self-management. papaa.org Share with someone who needs it on this Autoimmune Awareness Month.
#Autoimmunity #AutoimmuneAwareness #PatientSupport
In this, the final week of #AutoimmuneAwareness Month is a reminder that awareness should lead to action. PAPAA is proud to be part of Connect Immune Research, helping to drive better understanding, treatment and support for autoimmune disease. #autoimmunity papaa.org/news/current-featu…
🌱 The spring equinox can feel like a fresh start – but with psoriasis or psoriatic arthritis, it can be a mixed time. Take this moment of balance to check in: how are your skin, joints and energy levels today? What small change could help this week? 💚
#Psoriasis #PsoriaticArthritis #SpringEquinox #ChronicIllness #SelfCare #MedTwitter papaa.org/news/current-featu…
🤝 Via Connect Immune Research, PAPAA works with partner charities to link autoimmune conditions to join up research and share common issues for mutual benefit
#Autoimmunity #AutoimmuneAwareness #ConnectImmuneResearch
