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Today is my 6 year Covid anniversary. The person I was in 2019 no longer exists. Despite all of this I am grateful for the wonderful people I have met with mecfs and long covid. I am also grateful to have been given the opportunity to participate in trials like Ampligen, CovidUpp and Sipavibart.
Pictures:
Left to right:
2019 me, me during the 2023 Ampligen trial, me during the current Sipavibart trial, Nancy Klimas (a person I got the honor to meet)
Everyone in America is sleeping and the Europeans are awake...so by definition I am European...hehe
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That muscle relaxant is a bomb 💣 😭😭😭😭😭😭 and I mean you take one pill and your ass is dead asleep. Like, no joking... Tizanidine...take it, when your ass needs a good knock out. But my muscles are happy now 🙂↕️🙂↔️
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There is a certain kind of...gentle intimacy that comes with sharing your art. Forget about flirting or whatever. No, this resonates on a deeper register. You are exchanging little pieces of your soul
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Blessed to have met this wonderful artist to share ideas with, it is so refreshing, I truly had never shared art in such a way
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Yeah I am one of those millennials who likes drinking Starbucks coffee. At least they taste good. You know what doesn't taste good, a freaking mortgage. No thanks, I will keep drinking my lattes, hmm yum
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Ramy2.0 retweeted
A nation’s progress is also measured by how it welcomes all people with disabilities and particular needs. Their lives are not a burden on society. They are a blessing, because they can help us to remember the foundation of the dignity of every human being and what is truly important in life. #ApostolicJourney #Argentina
The meditation brain is an interesting brain. After 10 weeks. Well I saw a roach the other day, safe to say it is my phobia, a bad one. I observed it, well there lies a roach. I was...apprehensive but something felt calmer. Same with heights, the fear is there, but no panic
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Ramy2.0 retweeted
I have 2.5 months until my next major neurosurgery, please RT and QT and reply to this ⬇️ fundraising post ⬇️ even if you can’t donate, everything helps! Thank you ❤️🩹
In 3 months, I’ll get another major neurosurgery: Craniocervical Fusion, Extradural
Decompression of the LLCT/MTH, Bilateral C1 Tubercle Resection
This procedure will be out-of-state, costly and have a long recovery
Please donate and boost! Ty
gofundme.com/f/help-emily-ge…
I do have an idea. Well this is not my idea. This has already been done, so not my idea but. I want to use stickers, buy them from someone I guess and place them in public spaces where the law allows it. I will try to do that in my walks. #TreatMECFS
How is it that the person who wrote 5 poems in a row the other day has absolutely and I mean it, no idea of what to write today...
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Meditation has become easier and easier. Now in week 10, sometimes I say to myself...let's just meditate and while meditating instead of saying I want to end this, sometimes I say, keep going! Don't go back to the real world. Lol
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Oh no! Someone is sitting near the meditation tree. Gosh...ok another place, oh this tree here looks ok
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Ramy2.0 retweeted
Image is a Substack headline, "Autoinflammatory Diseases, ME/CFS and Long COVID: What they teach us about immune activation, disease flares and persistent symptoms"
There’s something that has always struck me about ME/CFS and Long COVID.
Many patients experience a worsening of their symptoms after physical exertion, an infection, a poor night’s sleep, or a stressful situation. And for years, this worsening has sometimes been used to suggest that the illness has a psychological origin.
But did you know that some of these very same factors can also trigger flares in inflammatory diseases whose biological mechanisms we understand quite well?
I want to share a study that I find particularly interesting, because I think it challenges the way we interpret symptom flares in ME/CFS and Long COVID.
What if we’ve spent years confusing what triggers a flare with what actually causes the disease?
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