RMC Alliance is a non-profit bringing together clinicians, researchers, and patient advocates to better understand RMC. Tweets = RMC Alliance Staff
Joined April 2020
- Tweets415
- Following156
- Followers130
- Likes202
RMC Alliance retweeted
Grateful to @TheVFoundation for supporting our #kidneycancer research leading to our clinical trial targeting Ca-125 in #RenalMedullaryCarcinoma and #EpithelioidSarcoma: clinicaltrials.gov/study/NCT… Excited for the synergies with @RareCancerRF to accelerate #rarecancer discoveries.
We are proud to work with organizations like @RareCancerRF to help our researchers like @PavlosMsaouel make moves for cancer research. Click the link to learn more about Dr. Msaouel’s discovery because of this relationship!
v.org/story/a-collaborative-…
ALT Image of Dr. Msaouel in his lab. Text is in dark blue and white.
It all started with one patient. Dx at 18 with #renalmedullarycarcinoma, a rare cancer hitting young people with #sicklecelltrait. He fell through the cracks. Advocacy turned this into a mission. Now, it's getting the attention it deserves at the #NCI: cancer.gov/grants-training/t…
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RMC Alliance retweeted
KCA has partnered with @power4patients (PEN) to share with you Digitally Empowered™, a series of video modules guides that will open the door to a whole new world of knowledge. It's free, accessible online and available in English and Spanish. kidneycancer.org/kca-pen/
RMC Alliance retweeted
Our friend @KimrynRathmell @NCIDirector shared how a young #RMC patient ignited her #patientadvocacy. And was brought to tears seeing @kaydaustin, who shared her story w the Rathmell lab @VUMCKidney, in the audience. Grateful for the passion of #kidneycancer community! #ASCO24
RMC Alliance retweeted
Next Friday, join the KCA and @MDAndersonNews for a #kidneycancer education event and learn about treatments, side effects, rare kidney cancers, and more! This FREE event is on Friday, June 14 at 10:30 am CT. Register now: bit.ly/49JgAvJ
RMC Alliance retweeted
👇Unfortunately sunitinib, pazopanib and cabozantinib are ineffective against #RenalMedullaryCarcinoma and need to be taken off this chart as they will produce toxicity without benefit. More info here: rmcalliance.org/treatment-in… @AlbigesL @KidneyCancer @RmcAlliance @renalmedullary
The @myESMO guidlines make a clear distinction between papillary and other ‘non-clear cell’ renal cancers. Mixing these together has hampered new treatments. Sarcomatoid needs upfront PD1 combos. Other subgroups (chromaphobe etc) need more data ow.ly/nZA050RP77l
RMC Alliance retweeted
Research, teamwork, determination, and patient advocacy can transform the “impossible” into reality. #RenalMedullaryCarcinoma #endRMC #RareCancers #KidneyCancer @Heather_w98 @kaydaustin @naborala @ChadTangMD @LabGenovese @perelli_luigi @RmcAlliance @renalmedullary @RMCAwareness
This #MothersDay we're sharing a special story of motherhood bit.ly/3ybQrI2
Heather is the first active #RMC patient to give birth - she's now mom to daughter Indy. Today, let's harness the unstoppable nature of all mothers in our mission for a cure. #UnstoppableTogether
Facing #RenalMedullaryCarcinoma? You're not alone. Passionate advocates & respected researchers are raising awareness and improving survival rates. Stay tuned as experts work towards doubling survival rates #RareCancers #kidneycancer
📢Exciting news! House Energy and Commerce Committee announced a hearing focusing on bolstering Medicaid access to ensure care for millions of Americans in need. #RMC is on the agenda!! Learn more: bit.ly/4d9ECSJ, #HealthcareReform @RmcAlliance, @KidneyCanc, @kcCURE
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RMC Alliance retweeted
Grateful for the pivotal first funding support for #RenalMedullaryCarcinoma by @ConquerCancerFd & @KidneyCancer @MDAndersonNews. It takes a village for progress in #RareCancers & appreciative of trailblazing efforts by @NCICCR_UroOnc @markballmd across #kidneycancer subtypes.
The first-ever funded research on renal medullary carcinoma (RMC), a rare kidney cancer, was launched by Dr. @PavlosMsaouel, a Conquer Cancer-funded researcher. The work he would ultimately use for the lifesaving treatment of one of his own patients. brnw.ch/21wJ6BY
RMC Alliance retweeted
NEW VIDEO @HemeReview Herman Connor (patient HC), a survivor of Renal Medullary Carcinoma, tells his story directly -RT!
youtu.be/w5zLOZE-Goc
What are the challenges with diagnosing #RenalMedullaryCarcinoma? Dr. Nizar Tannir from
@MDAndersonNews via @power4patients explains: bit.ly/3U4gjwF #RMC, #kidneycancer
@RMCAwareness @kidneycan @renalmedullary @RmcAlliance @KidneyCanc @kcCURE
"As long as you have a #blooddisorder that could cause red blood cell sickling, #sicklecelldisease, #sicklecelltrait, or any of these variants like #hemoglobinSCdisease (SC) or #sicklecellbetathalassemia (S-beta), you are at increased risk for #RMC": bit.ly/43Lh4zb
RMC Alliance retweeted
This is the Way! Much more work to do but every setback is a learning opportunity getting us one step closer towards eradicating #RenalMedullaryCarcinoma and other rare and common #kidneycancer subtypes! #endRMC
RMC Alliance retweeted
We're THRILLED to work alongside @MDAndersonNews @DocMattCampbell @PavlosMsaouel @SurenaMatinMD @ChadTangMD @DubauskasLim @kaydaustin and other #kidneycancer experts to bring you this in-person patient education event! Register now: bit.ly/49JgAvJ
Very excited to partner with @KidneyCancer and @MDAndersonNews for the Empowering You #KidneyCancer Education Event for Patients and Caregivers. @PavlosMsaouel @SurenaMatinMD @GEVaughan1 @ChadTangMD @kaydaustin
RMC Alliance retweeted
March is #KidneyCancerAwarenessMonth! Revisit @Uro_Rich and @d_shapiro1's WInnovations podcast discussion exploring UW's multidisciplinary approach to treating kidney cancer – and how these collaborations are leading to exciting advances in the field! winnovations.podbean.com/e/a…
🧪What tests are necessary to confirm a #renalmedullarycarcinoma diagnosis? Check out our FAQs: rmcalliance.org/faq/
#endRMC @KidneyCancer @RMCAwareness @renalmedullary @RareCancerRF @d_shapiro1 @PavlosMsaouel
RMC Alliance retweeted
👇Elated to see this international trial open for #RenalMedullaryCarcinoma. Goal remains to get median survival to 24 months by 2025 and to 5 years by 2030 on track to eradicate this rare #kidneycancer. #EndRMC @RmcAlliance @KidneyCancer @kidneycan @RMCAwareness @renalmedullary
📢 Our latest clinical study ‘’Activity of Pembrolizumab plus Enfortumab Vedotin in Collecting Duct and Renal Medullary Carcinoma (REPRINT trial)’’ is now out!
ClinicalTrialGov n. NCT06302569
#CancerResearch #oncology
@AIOMtweet @AntureIT @meeturoIT @thermcrf @TumoriJ @IKCCorg
RMC Alliance retweeted
Most rad oncs probably have never heard of renal medullary carcinoma (RMC). It's a rare, and usually fatal, disease seen in patients almost exclusively diagnosed in young men/women of African descent. Check out this video by my buddy @chubbyemu. rb.gy/ayb8nz
Could the distinct methylation profile found in #RMC pave the way for #targetedtreatment or personalized therapies? Learn more: bit.ly/3wPGlfb
#mutation @danshapiro @PavlosMsaouel
#endRMC @KidneyCancer @RMCAwareness @renalmedullary @RareCancerRF