Independent organization of sickle cell stakeholders representing patients, caregivers and healthcare professionals
Hackensack, NJ
Joined July 2016
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Scholarships are still available until July 9th, go and apply. #WarriorsConvention2024
🚨ATTENTION COMMUNITY🚨
We have an important update about your scholarship accommodations:
1. **Check-Out Option:** Scholarship recipients can check out on Sunday, July 21st. Please notify us ASAP by emailing Maria Rivera at [email protected].
SickleCellForum retweeted
🎉 Join Us at the Campus Carnival! 🎉
🗓 Date: July 17, 2024
📍 Location: Warrior University at The Westin Atlanta Perimeter North
Do you remember orientation at school? Well, this is going to be even more fun for the whole family! 🎓🎈
🌐 Learn More: sicklecellconvention.org
Who ready for the Warriors Convention #WarriorsConvention2024
WE ARE Ready to see you at the 11th Annual Warriors Convention! Join us from July 17-21,in Atlanta, GA, where the power of the patient voice takes center stage.
register now at sicklecellconvention.org.
SickleCellForum retweeted
We want to offer you a chance to participate in our 🌏World Sickle Cell Day Talent Show 🎭. Please submit a 4 minute 📹video or less showcasing your talent🎤. Videos are excepted from participants across the globe.🗺️
🔗 Sign up for talent show: docs.google.com/forms/d/e/1F…
SickleCellForum retweeted
🏆 Kyrelle Lammy, an 11-year-old Coventry talent battling #sicklecell anaemia, clinches Disability Champion & Best Supporting Actor awards!
🎭 From Stage Coach at 4 to PQA Coventry training, Kyrelle's star is rising in TV, stage, and beyond!
rb.gy/zlb61i
#SCMidwest
The Lonzie Lee Jones Patient Advoacy Symposium has begun @SCDAAorg 51st Annual National Convention #SCDAA23 #SCDCommunity
Last night was Sickle Cell Family Feud with @ladybluecries Dominique Harvey as host. East Coast vs West Coast. Who do you think won? @SCDAAorg @SCCConsortium #SCDAA23 #SCDCommunity
CBO Knowledge Share: Building Successful Collaborations with @SCCConsortium Sharonda Sikes and Rae Blaylark has begun #SCDAA23
SickleCellForum retweeted
We have a few action-packed days ahead of us! Your health and safety are our top concern. Take breaks if you need to and stay hydrated. If you need help during the week, don’t hesitate to reach out to a staff member or volunteer for assistance. #SCDCommUNITY #SCDAA23
Thank you Vence Bonham for the new suggested Sickle Cell Anthem 'Aint no stopoin' us now' #SCDAA23
Lets make sure we honor parents and caregivers of sickle cell warriors - Vence Bonham #SCDAA23
The average life expectancy for Sickle Cell Disease in the U.S.A. is 76 years old #SCDAA23
Did you know that there are 7.74 million people living with Sickle Cell Disease globally? #SCDAA23
It's that time of year again. The 51st Annual @SCDAAorg National Convention. Follow along for some highlights and updates. #sicklecellconvention
SickleCellForum retweeted
Another great conference not to be missed! This one is extremely special as it focuses entirely on #Sicklecelldisease and #Thalassaemia. Thanks to @ascatconference founder @PdbInusa & @ERNEuroBloodNet. Patients are given the opportunity to share and be involved properly!
SickleCellForum retweeted
Dominic Goodson is a sickle cell warrior, advocate and president of @SCDForum.
After being diagnosed with sickle cell anaemia at age five, Dominique has learned to manage her condition and uses her experiences to advocate for people with sickle cell. 🧡
ow.ly/SUvj50P3eZB
