Online survey aimed at urgently assessing needs of children and young people with a serious condition and their parents, during the COVID-19 outbreak.
Joined July 2020
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SHARE Study retweeted
🌟Calling all 16-39 year olds with a lived experience of cancer – we want your input! Join our get together session, in-person or online, and help us explore how we can better involve young diverse voices in our research. Scan the QR code for more info and to register!
SHARE Study retweeted
Great to see some more research published from the SHARE study, that informed our work with parents during the COVID-19 pandemic adc.bmj.com/content/early/20… @asdarlington @drbobphillips @drjessmorgan @CCLG_UK
SHARE Study retweeted
Experiences & support needs of UK Young People with kidney condition during first covid wave. Significant differences shielded vs non-shielded
See at #RCPCH21
@BAPNnephrology @arvnagra @DrDeano @ReadySteadyGo3
Video summary co-produced with young people
youtu.be/LYX0BuHoi70
SHARE Study retweeted
In 2020 @unisouthampton & @HuddersfieldUni launched studies to understand experiences of lockdown/shielding. We’ll be sharing the results very soon. The Southampton team are running their survey again to see how parents & young people (under 30) are coping:cysticfibrosis.org.uk/news/s…
SHARE Study retweeted
In 2020 @unisouthampton & @HuddersfieldUni launched studies to understand experiences of lockdown/shielding-we’ll share the results with you soon. The Southampton team are running their survey again to see how parents and young people (under 30) are coping cysticfibrosis.org.uk/news/s…
