Sam Robinson retweeted
Coffee morning 9-12 noon today for @NIKRFcharity . Come Visit 30 bog road, Portavogie, East Coast Day Opportunities #Portavogie. lovely cakes, scones, refreshments & conversation! Glad we could call in - well done NIKRF volunteers. #RenalResearchNI @RareDiseaseNI
Sam Robinson retweeted
Calling those that care for someone with a rare condition. You are warmly invited to attend Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool
4th April, 9.30-1.30 pm,
Riddel Hall, Stranmillis.
events.humanitix.com/caring-…
Sam Robinson retweeted
Love this message from our #RAiN CRAG #RareDiseaseNI ⬇️
Sam Robinson retweeted
🧬 Genetics can be tricky, but you’re not alone!
🎙️Join us in the 29th episode of our #ERAPodcast #APinchOfSalt featuring Emilie Cornec-Le Gall as we explore genetics and kidney disease.
🎧 Hit play now 👉 bit.ly/3SdsxU0
Sam Robinson retweeted
Wow…further evidence #multiomic analysis supports understanding #RareDisease. genetic disease testing DNA variant, methylation and RNA to improve #diagnosis and #prognosis. Substantive new finding 👇🏻#RareDiseaseNI nature.com/articles/s41586-0… #RARDTAC #RAiN @RAiNAllIreland
Sam Robinson retweeted
What a difference a year makes - supporting @NIKRFcharity at Bob’s beer garden. @cindymc44436528 @CindyMc16677738 @SamRob45
Sam Robinson retweeted
With the professional pics now available! #QUB_SMDBS_PGR #Graduation #LoveQUBResearch thank you everyone 👍🎉👏. @CPH_QUB @WWIEM_QUB @QubPGJCCR @MHLSQUB #LoveQUB
Congratulations to all our #QUB_SMDBS_PGR graduates today. Pleasure to share your day - formal pics to follow. Well done everyone!!!. 🌞 #LoveQUBResearch @QUBelfast @MHLSQUB @CPH_QUB @QubPGJCCR @WWIEM_QUB #LoveQUB
Sam Robinson retweeted
Senior #postdoc #job available for ambitious #kidney researcher #RenalResearchNI. Come join us with your own project @CPH_QUB #LoveQUBResearch #LoveQUB @QUBPostdoc #RareDiseaseNI @NIKRFcharity @UKKidney @IrishKidneyAs @THKC1 @QUB_SMDBS
Sam Robinson retweeted
Raising awareness of #RareDiseaseNI issues with Mr Mayor Alistair Cathcart @ANDborough. #RareDisease #RARDTAC #RDTAP Thank you for hosting us today - looking forward to delivering change! @RAiNAllIreland @22Q11_NI @MDUK_News @NIKRFcharity @nichstweet @AwarenessHdani @CPH_QUB
Sam Robinson retweeted
Replying to @NIKRFcharity
@NIKRFcharity supporting research into #RareDiseaseNI. Almost all #kidney failure in children is caused by #RareDisease. qub.ac.uk/sites/RareDisease/ -#RenalResearchNI
Sam Robinson retweeted
Kidney disease: often undetected until very severe. Can affect any of us. Every day 20 people are diagnosed with #Kidney Failure #ESRD. Research is required to help people at risk & living with this devastating condition. m.youtube.com/watch?v=6Ifc3K… @NIKRFcharity #RenalResearchNI
Sam Robinson retweeted
Volunteer run charity supporting local kidney care and research @NIKRFcharity #RenalResearchNI #RareDiseaseNI
Crew running to support @NIKRFcharity this evening at Bob’s beer garden. The sun is shining - come join us…on hand to answer questions about #RenalResearchNI #kidney
Sam Robinson retweeted
1 in 10 people are living with #kidney disease. @NIKRFcharity support vital #RenalResearchNI to prevent kidney disease, detect problems earlier, and find new treatments. @CPH_QUB @qubengagemhls_d come join us at Bob’s beer garden - weather beautiful!
Sam Robinson retweeted
📢Register for our online workshop for #Carers of people living with rare disease in Northern Ireland.@HRCIreland @bright_owls @rhodajwalker
@NI_RDP @CPH_QUB @UlsterUni @QUBengagemhls_d
@publichealthni @healthdpt @RAiNAllIreland @a_j_mcknight @Deepost30 forms.office.com/pages/respo…
Sam Robinson retweeted
Much needed NI #bereavement signposting #support website. #RareDiseaseNI #PregnancyLoss #Miscarriage #MentalHealth #Carers Delighted to see the launch 👇🏻 bereaved.hscni.net/ @RobinSwann_MLA @publichealthni @healthdpt #RenalResearchNI
Sam Robinson retweeted
Thank you @SuzMcGonagle & @irish_news sharing progress & hope for the future for people living with #RareDiseases #RareDiseaseNI. Looking forward to driving change with co-leads @Tim_Barrett2 Dave Jones & Volker Straub @QUBelfast @unibirmingham @UniofNewcastle @qubengagemhls_d
Queen’s University creates £12 million research centre to improve efficiency of rare disease trials to unlock more tests and treatments irishnews.com/news/northern-…
Sam Robinson retweeted
Many thanks everyone who contributed to today’s @RAiNAllIreland #ECR event @QUBelfast today. The future of #RareDisease #research @RAiNAllIreland is promising with so much exciting work presented & promising collaborations. #RareDiseaseNI #RARDTAC #RAiN #RenalResearchNI @sujas15
Delighted to welcome #RareDisease colleagues from across Ireland to @VisitBelfast @MHLSQUB #RAiN #RARDTAC #RareDiseaseNI #LoveQUB @CPH_QUB @QUBPostdoc @WWIEM_QUB @spacequb @uk_biobank @AlCRIproject @NIKRFcharity @nichstweet @NI_RDP @HSCRandD @QubPGJCCR Safe travels!
Sam Robinson retweeted
RAiN are on the road to Tralee 🚗🚘 Join us at @MTU_ie in Tralee for our Summer Symposium on the 10th of June from 11:30-16:15 hours. Register using the link below 👇👇
forms.gle/d38QxXaVEggv7dfeA




































