UK-based patient advocate organisation calling for the recognition and treatment of Topical Steroid Withdrawal Syndrome (TSWS)
Joined March 2020
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It’s time #topicalsteroidwithdrawal got the recognition it deserves in the UK. We’re campaigning to raise awareness about this preventable, iatrogenic (medication-caused) skin condition. Follow us for updates!
Scratch That UK retweeted
"We are so happy to hear TSW finally being discussed on a parliamentary level. We were so humbled to find Scratch That were mentioned alongside the incredible team at @itsan.nonprofit."
- @ScratchThat_UK
Learn more here: ow.ly/9YUS50I0EQc
Scratch That UK retweeted
Having this trouble with many doctors who aren't believing the thousands (myself included) who are now suffering #TopicalSteroidWithdrawal because docs did us wrong. Now won't admit this is real @ITSANnonprofit @balmonds_uk @ScratchThat_UK
Holly from @ScratchThat_UK spoke to @bbcrb this morning about TSW following the latest report from @MHRAgovuk recognising the condition. Hear the full transcript through the link in our bio!
Across 34 studies of Topical Steroid Withdrawal patients: "Almost all authors recommended discontinuing the use of TCS (95.5%)" Source: nationaleczema.org/wp-conten… #TSWStudySaturday #RecogniseTSW
Across 34 studies of Topical Steroid Withdrawal patients: "The most frequently reported
symptoms were burning/stinging, exacerbation
with heat or sun, pruritus, pain, and facial hot
flashes" Source: nationaleczema.org/wp-conten… #TSWStudySaturday #RecogniseTSW
Scratch That UK retweeted
Describe your own #skin to inform #dermatology research and education from @CEBDNottm #InternationalClinicalTrialsDay forms.office.com/r/VGaDiN8ib…
Huge thank you to @CebdNottm and @ECO_eczema and all the TSW warriors who joined for the wonderful meeting yesterday. It means a huge amount to us that the TSW community is being listened to. What a brilliant discussion!
Scratch That UK retweeted
GRIDD Delphi Survey #1 participants - you are now invited to complete Survey #2. Check your email for the link. Only respondents from Survey #1 will be contacted to complete Survey #2. The Survey is open until May 26.
ow.ly/iJbQ50EPZ8P
@globalskin_iadpo #itsan #tsws
“The most common sign was erythema (92.3%). One article...described a sharp cutoff between red and normal-appearing skin that often ran down the mid to outer cheeks whereas the nose and the ears remained clear” Source: nationaleczema.org/wp-conten… #TSWStudySaturday #RecogniseTSW
Scratch That UK retweeted
Calling our TSW warrior guys! ITSAN's Spark conference is this Saturday! Connect with others at the Men’s Group Breakout Session:
May 15, 2021
2:20-2:50pm EST
7:20-7:50pm GMT
Sign up here: ow.ly/VAfc50EHPsE
TSW warriors - use the link to register for the conference too!
Scratch That UK retweeted
These TSW warriors are bringing their success stories and strength. Come join us! Sign up here: ow.ly/keiI50EvJpL
This conference is complimentary; please consider donating to ITSAN to help cover costs if you are able - thank you! ow.ly/ZBIF50EItsO
@tsw_trooper
Across 34 studies of Topical Steroid Withdrawal patients: "The majority of the described patients were using either mid- or high-potency TCS (98.6%)" Source: nationaleczema.org/wp-conten… #TSWStudySaturday #RecogniseTSW
Scratch That UK retweeted
Thank you Joana Ceddia for continuing to share your voice, to raise awareness about Topical Steroid Withdrawal Syndrome and to reach millions! Link to Joana's YouTube video: ow.ly/SCBG50Ey39S
@JoanaCeddiaOfficial #itsan #topicalsteroidwithdrawalsyndrome #tsws
Scratch That UK retweeted
So proud of my blog which just turned 12 years old and also my two books. Head on over to whatallergy.com for heaps of information about #allergies #anaphylaxis #eczema #asthma #topicalsteroidwithdrawal and lots of free resources too!
Scratch That UK retweeted
Do you have concerns about topical corticosteroid withdrawal?
Share your views on topical corticosteroid evidence at online event 19th May 5-7pm.
Email [email protected] for further information and to sign up.
#topicalsteroidaddiction #topicalsteroidwithdrawal
Scratch That UK retweeted
Topical steroid addiction: Patients call for more support bbc.in/3tFKImv
From a metaanalysis conducted by the NEA: “The majority of patients with manifestations of TCS withdrawal were women (81%) who had used TCS on their face (97%)” Source: nationaleczema.org/wp-conten… #TSWStudySaturday #RecogniseTSW
While there is a stark lack of robust research on #TopicalSteroidWithdrawal, there are existing studies that identify the clinical and histological features of TSW. Every Saturday we’ll share an excerpt from one of these for #TSWStudySaturday #RecogniseTSW
Scratch That UK retweeted
Do you have concerns about topical corticosteroid withdrawal? Share your views on topical corticosteroid evidence at online event 19th May 5-7pm. Email [email protected] to sign up #tsw #itsa #topicalsteroidaddiction #redskinsyndrome
