🌐 We’re happy to announce the next @Screen4Rare event in the European Parliament: As the EU advances its Life Science Strategy, prepares the new Biotech Act, and reviews the legislation on Orphan Medicinal Products, Newborn Screening for Rare Diseases (NBS) must be part of the conversation. Against the backdrop of the genomics revolution and following the disbanding of the US NBS advisory committee, Europe is uniquely positioned to take the lead on early diagnosis, equity, and innovation in Rare Disease care. Hosted by MEP @TomislavSokol (EPP, Croatia), supported by the MEP Alliance for Rare Disease Newborn Screening, and organised by #Screen4Rare (@ipopi_info, @ISNSNeonatal and @ESIDsociety), this high-level discussion will bring together policy makers, patient advocates, clinicians and global experts to explore how we can advance early diagnosis, equity and innovation in Rare Disease care in the #EU and beyond. This discussion comes at a crucial moment, following the adoption of the WHA Resolution on Rare Diseases, which calls for equitable and timely access to NBS programmes worldwide – a global signal that reinforces the EU’s responsibility to act. 📌 Places are limited – don’t miss out! 🔗Register now: lnkd.in/dSCQCcGq For more information, please contact: [email protected] #RareDiseases #NewbornScreening #Genomics #LifeScienceStrategy #BiotechAct #OrphanDrugs #PublicHealth #Screen4Rare #EU4Health #healthinnovation

🗣️“Every year, 45M babies are screened. 30,000 lives changed." Patricia Guthrie honors her father Dr. Robert Guthrie’s legacy and celebrates the global impact of newborn screening at the Intl Neonatal Screening Conference. #NewbornScreening #PublicHealth

In 2021, only 27% of babies born around the world were screened at birth Despite its potential to diagnose many treatable diseases, there are still many inequities when it comes to access to neonatal screening 👉 That's why we celebrate International Neonatal Screening Day #INSD

👶🏻 How many countries in the world have implemented national neonatal screening for SCID?

👶🏾 Which US State was the first to pass a law to mandate Neonatal Screening for PKU?

👶🏽 The big breakthrough for Neonatal Screening was in 1961 with the development of the first blood test for PKU by Dr Robert Guthrie?

#Screen4Rare event on Newborn Screening as a Life-Saving Intervention has kicked-off! @JohanPrevot takes the floor to discuss the origins of #S4R & why we need strong EU support to enhance newborn screening programs Thank you for joining us! #INSD #NewbornScreeningMatters