Exploring intersections between faith; politics, policy and practice; and personal behaviour; esp for social justice and a sustainable world #pwME
Joined October 2013
- Tweets8.3K
- Following882
- Followers300
- Likes25.9K
Nigel Taylor 💙 😷 retweeted
Since 23 September, we have received credible reports of conflict-related sexual violence against women and girls in Tigray. Last time, the world took too long to name it. Act now. The women and girls of Tigray cannot be failed again.
easeing.org #Tigray #CRSV
Nigel Taylor 💙 😷 retweeted
Why do people with ME claim to know more about the medical aspects of their disease than their doctors? Bc the mechanisms that ensure doctors' knowledge fail in the case of ME, and sick people have created mechanisms of knowledge production and dissemination to pick up the slack
ALT Screenshot of the header of a published paper: Studies in History and Philosophy of Science Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis Chloé de Canson
Nigel Taylor 💙 😷 retweeted
On 15 October, Alison Bennett MP will lead a debate in Parliament on support for unpaid carers.
To inform the debate, she would like to hear about carers' experiences and insights...
petition.parliament.uk/petit…
Nigel Taylor 💙 😷 retweeted
‘There must be serious review of the government’s inadequate response to #ME, with its cost to us all. Still considering best options to call for including George Monbiot’s proposed public inquiry, Select Committee Inquiry, a Czar or even referral to HSSIB.’
Tessa Munt on 🦋
Nigel Taylor 💙 😷 retweeted
We're excited to share something we've been working on for a while.
ThereForME is now a registered charity! 🥳
1/4
ALT We’ve got news! ThereForME is now a registered charity. ThereForME is a Charitable Incorporated Organisation registered in England and Wales. Registered Charity No. 1218590.
Nigel Taylor 💙 😷 retweeted
The next All Party Parliamentary Group (APPG) on ME meeting is scheduled to take place on 2nd September.
The meeting will discuss the initial findings of Action for ME’s Big Survey and explore what action members can take to redress the issues identified.
The APPG will also hold an Extraordinary General Meeting (EGM) to appoint a new Vice Chair as Jo Platt MP has been appointed as a Parliamentary Private Secretary (PPS) to the Prime Minister, Andy Burnham in July.
Date: 2nd September 2026
Time: 1-2pm
Location: Room T, Portcullis House
Find out more: appgme.co.uk/
#MECFS #APPG #MyalgicEncephalomyelitis #pwME
ALT IMAGE DESCRIPTION: Photo of the Houses of Parliament. Heading: "APPG on ME meeting scheduled to take place on 2nd September: contact your MP" Logos: APPG on ME
Nigel Taylor 💙 😷 retweeted
Trying to access an outpatient appointment with my consultant for example, has taken FIFTEEN people to sort out accommodating me because the department cannot take stretcher patients.
Me & mum are called all the time to ask us to make the go-between phonecalls. It’s wiped us out.
Nigel Taylor 💙 😷 retweeted
actionforme.org.uk/wp-conten…
One of the most necessary and accurate (to my and many others’ experiences) reports I’ve ever seen.
I wish all my friends, family and medical teams would read it. 1/6
Nigel Taylor 💙 😷 retweeted
instagram.com/reel/DbxtpVXEv…
Something I will always be incredibly proud of.
#iwouldbehereificould #mirrorbox #severeME #SevereMEday
Nigel Taylor 💙 😷 retweeted
People who care about civilians in Sudan should read the memo we wrote to UKUN to send to @FCDOGovUK one month before the fall of El Fasher to RSF last year. This document has never been more relevant and now it is public. #keepeyesonsudan
We have published a memo drafted by war crimes investigator @nattyray11 for the UK’s UN delegation in 2025, advising the FCDO on preparing for the fall of El Fasher 🧵
committees.parliament.uk/wri…
ALT Typed memo titled 'Yale HRL Assessment on El-Fasher, Contingency Planning, Recommendations' with briefing date 26 September 2025.
Nigel Taylor 💙 😷 retweeted
3/ The SPR must carry this information to avoid senseless aggravations. Win-win!
So grateful to Tessa for all her work on our behalf. She is a really dedicated champion for all #pwME in Parliament and understands the huge difficulties that we continue to face.
Nigel Taylor 💙 😷 retweeted
2/The SPR will mean that all information about a patient’s health and care will be kept in one record. For #pwME, accommodations to minimise PEM, and address sensitivities, can make all the difference in a hospital visit.
Nigel Taylor 💙 😷 retweeted
Tessa Munt MP has emailed me:
1/The NHS Modernisation Bill going through Parliament will set the stall for the NHS for coming years. By tabling amendments I’m
looking to address specific issues for #pwME and similar conditions.
First target… the Single Patient Record (SPR)…
Nigel Taylor 💙 😷 retweeted
Have you ever felt dismissed, unheard, or not taken seriously by a doctor? 🏥
At King’s College, we’re running a study on how patients experience healthcare 💊
If you live in the UK and have a long term condition, please help us at the link below ⬇️
tinyurl.com/4zzcd93u
Nigel Taylor 💙 😷 retweeted
It seems only a very small - tiny - number of people can see / acknowledge what the Covid pandemic is doing to population health. What do we do with that knowledge when no one wants to listen to us / hear it? Is the truth even true if nobody acknowledges it?
Nigel Taylor 💙 😷 retweeted
Articles seem to be completely pointless on here, but I'm trying it again.
No one sees them, no one reads them.
What's the point?
Nigel Taylor 💙 😷 retweeted
📆 My 2027 calendar designs are finalised & off to the printers - Berneray & Outer Hebrides by drone, all photographs taken by me 😊 These are now available for pre-order with delivery towards end of June 🙂 which is your favourite photo? #OuterHebrides coralbox.co.uk
Nigel Taylor 💙 😷 retweeted
“The way politicians like that make jokes is highly-considered for digital content, so moments like that are revealing. Humour? They just dont have it!”
Lib Dem MP gets his revenge on Reform in the Commons, and Robert Jenrick isn’t impressed…
@maitlis | @lewis_goodall