@SimonGHGA

Data Steward at GHGA/DKFZ Views are my own

 Heidelberg, Germany
Joined December 2016
  • Tweets189
  • Following88
  • Followers95
As we prepare to launch GHGA Archive, our latest white paper delves into data types, GDPR roles, ambitions, Consortium structure, and data protection! We’re committed to data security and transparency.  📷#GHGA #dataprotection ghga.de/news/detail/ghgas-le…

GHGA’s legal and data protection structure explained

As we prepare to launch GHGA Archive, a white paper describing both how our legal and data protection structure operates and how our obligations and ambitions have shaped our work has been published.

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⏳ Just one week left to apply for our GHGA Data Protection Course! Gain expertise in data protection regulations, especially #GDPR, and learn from our expert speaker, Simon Parker (@SimonGHGA). Apply by Oct 6, here: t1p.de/8zhvo #DataProtection #NFDIrocks
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Really great day meeting with new friends @CSCfi. It's really valuable to have the opportunity to talk about the work @GHGA_DE with another team also embarking on the same journey. The time flew by and I'm sure we'll have lots more to discuss tomorrow.
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Today is #DataPrivacyDay2023 ! At GHGA, we care about genomic data. We make it usable and protect it. Using a multilayered approach we keep sensitive patient data! Check out our consent tools here: ghga.de/resources/elsi-tools
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Looking forward to presenting later today at @LGCW2022. I will discussing how omics data sharing can support the development of cancer treatments. Why not join us lgcw.org.uk/event/the-ethics… @GHGA_DE
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Learn more about the GHGA consent tools! @SimonGHGA
Next Generation Sequencing Competence Network@NGSCN_de24 Oct 2022
#ngscnwebinars with @GHGA_DE ‘Introduction to consent and GHGA consent tools’ with @SimonGHGA and Andreas Bruns🤩 📌 9 November 11:00 CEST Working in biomedical research or/and healthcare? Come & let's talk "consent"! Register: hhu.webex.com/hhu-en/j.php?R…
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#ngscnwebinars with @GHGA_DE ‘Introduction to consent and GHGA consent tools’ with @SimonGHGA and Andreas Bruns🤩 📌 9 November 11:00 CEST Working in biomedical research or/and healthcare? Come & let's talk "consent"! Register: hhu.webex.com/hhu-en/j.php?R…
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We’re happy to announce the first public release of Data Safe Haven! 🥳 This is an open-source codebase that allows you to deploy a trusted research environment (TRE) like the one used here at the Turing Institute. There are a few things you can do to get involved 🧵
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Delighted to be at another stunning venue in Barcelona for the #DataSHIELD22 conference. Can't wait to explore more about how we can integrate @DatashieldNews in @GHGA_DE.
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Looking forward to presenting the tools we have developed at @GHGA_DE. These have been designed to help those working with consent for research do so appropriately. Beginners are welcome, it won't be too technical.
The German Human Genome-Phenome Archive@GHGA_DE26 Sep 2022
Interested in issues around informed consent in biomedical research? We have just the right webinar for you: ‘Introduction to consent and GHGA consent tools’, 07.10.2022, 13:00 CEST with @SimonGHGA and Andreas Bruns Register here: bit.ly/3C0m2Mm
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Really great time in Barcelona for the GA4GH Plenary. Particularly enjoyed catching up with Adrian Thorogood and Alex Bernier to debate data protection regulations. Also listening to sad British songs with @jan_eufinger in a cellar...
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In Barcelona for my first GA4GH plenary! Another lovely venue to host us today.
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The reception last night wasn't bad either.
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Simon Parker retweeted
EGA archive@EGAarchive21 Sep 2022
We are pleased to announce the launch of the Federated EGA, a resource for discovery and access of sensitive human data through a network of national data repositories The #FederatedEGA will accelerate disease research and improve human health ➡️ bit.ly/3LtqK8w
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Come join us! Bowties are mandatory.
The German Human Genome-Phenome Archive@GHGA_DE4 Aug 2022
The GHGA Team in Heidelberg @DKFZ is growing! Interested to join the our efforts to set up a state-of the art infrastructure for human #omics data! #ghgasquad #jobs More info here: ghga.de/about-us/jobs
Picture showing a group of people working. Next to it says Join the GHGA Squad.

ALT Picture showing a group of people working. Next to it says Join the GHGA Squad.

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Really interested in seeing how this group develops and what we can come up with.
Research Data Alliance (RDA)@resdatall31 Jul 2022
Another new group proposal at RDA! Learn more about the EOSC-Future & RDA Artificial Intelligence and Data Visitation Working Group and provide your feedback. bit.ly/3czRTsM
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We thank @DrBeccaWilson for a fantastic talk showcasing DataSHIELD, as a modern solution for sharing data in collaborative research environments.
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Delighted to be introducing @DrBeccaWilson later today!
The German Human Genome-Phenome Archive@GHGA_DE18 Jul 2022
Don't miss @DrBeccaWilson talk about "DataSHIELD: Secure Data Science Collaboration". Today at 4pm (CET). Register here: bit.ly/GHGAtalks
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First GHGA whitepaper is online! The toolkit of modules can be integrated into existing consent documents, informing patients about the possibility to share omics data with genome archives such as GHGA and the usage of such data for secondary research. zenodo.org/record/6828131#.Y…
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Reaching a milestone in #FAIR sharing of sensitive research data in Europe and internationally! 🎉GHGA has signed the #FederatedEGA #Collaboration Agreement with @EGAarchive! @dkfz ghga.de/news/detail/cooperat…

Cooperation Agreement with EGA Signed

GHGA reached an important milestone in signing a cooperation agreement to become a national node in the federated European Genome-Phenome Archive. This will make data in GHGA finadable and interope...

ghga.de
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