Save A Spoon

A No chemical solution: Laundry is a monumental fete (if you can do it at all). When you need an outfit for a Dr (etc), attach a safety pin inside your sweater. No static cling, no dryer sheets! #spoonie #chronicpain #longcovid

Do you use a heart rate monitor (HRM) to keep within your (often surprisingly low) energy limit: what you can “do” w/o major impact to your health? (An Alarm can go off) I Used 1 yrs ago-so helpful! I’m Trying it again. Just need a good watch, no body band. Suggestions? #spoonie

Seizures were amongst the first symptoms reported in #MECFS cases yet now Drs act like you are nuts if you develop them since they often present as A-Typical. If YOU know something is wrong, you are right. Don’t be pushed around, help is out there #chronicillness

Having this kind of day?! #spoonie #chronicillness

#Chronicillness is lonely, it can lead to suicidal thoughts we are afraid to tell. The #Suicide Lifeline is always there. Call or now text! (More helplines coming) Please Call or text #988 - 24/7 -don’t suffer! Online: 988lifeline.org #spoonie #pain #help

#Spoonie Home Hack: Have problems w mold & mildew? When you buy a new shower curtain, wash it with salt, it will keep it mold free! #chronicillness #ChronicPain

Realities of a Doctors’s Appointment! …

SECRET SUPPORT: It’s shocking patients w the ravages of #ChronicIllness #SevereME often deal w/ it in silence for fear getting help might be labeled “crazy”. If you need some support, PLEASE: TEXT - or CALL 988 for immediate private suicide crisis support

#SpoonieSymptoms I have battled #nausea for yrs, this is the first OTC product that actually helps me. (There is no link,to help prove I’m NOT selling them). I just want to help others. #pain Plz make sure these are ok for *you to take #chronicillness

If this is how your day goes, you are not alone. #spoonie #ChronicPain

Keeping track of medical information is tough when you have a cold, bug, etc What ABX did I take? When? How long? I never write it down, I’m miserable. Now I keep a tiny notebook in w my meds: I gently tear label off ABX bottle, etc & tape it in notebook #ChronicIllness #Spoonie

The Best #spoonie Halloween costume they made!

#spoonie Game Changer! Life comes w a lot of cords! Now imagine you have piles of medical devices too. Keeping track is confusing. 1) Put a label / tape on it. 2) Take white-out or nail polish, mark the *top of the cord, you will always know how it goes in! So Worth it!

Pt 1/1: Too sick to get to the dentist/ brush your teeth? "Oil Pulling" is an all natural TX that dates back thousands of yrs. It fights; cavities, tarter, bad breath, gum disease &swelling. Best of all it detoxifies the lymph & blood system! When you *first wake up... #spoonie

Pt 2/2 - take 1 TBS of Coconut Oil (liquid is easier) & swish 5-20min. They suggest 20, but start w 5 & go slow. You may have some dry mouth, thirst, etc. at first. *Ask your Dr if this is okay for you. **Spit oil in trash! Don't clog your drain!** #spoonie #spoonieTip

Illusive #sleep I've tried everything: ear plugs, meds, white noise, black curtains. A friend said: put ear buds in, volume on low, play a show (something you won't get glued to). To my shock it helps shut my brain down. It's Not perfect, but it helps! #chronicillness

BEST #ChronicIllnes HACK! Everytime you see a new Dr, go to the ER -you have to fill out 20 forms w the same Q's (on 1 line!). This tip COULD SAVE SO MUCH PRECIOUS ENERGY!