6/21 is #SplashForSyngap - Listen to this important segment from the latest episode of 𝘚𝘠𝘕𝘎𝘈𝘗𝟣 Stories - then share with your world! Spread awareness of #SYNGAP1 and the place in this world for our loved ones suffering from this terrible disease! Listen to all episodes at cureSYNGAP1.org/Stories or wherever you listen to podcasts. #CureSYNGAP1 #SYNGAP1 #Epilepsy💜 #Autism💙 #IntellectualDisability💚 #RareDisease #SYNGAP1StoriesAndrew

291

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Jun 20, 2025 · 6:40 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP120 Jun 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/_ZvHghcytrQ #SYNGAP1

TOMORROW 6/21 IS SYNGAP1 AWARENESS DAY #ILOVESOMEONEWITHSYNGAP1 #S10e173 Friday June 20, 2025. Week

TOMORROW 6/21 IS SYNGAP1 AWARENESS DAY #ILOVESOMEONEWITHSYNGAP1 #S1...

youtube.com

471

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · May 31, 2025 · 12:33 AM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP131 May 2025

🇪🇺 Webinar for our friends in 𝙀𝙪𝙧𝙤𝙥𝙚: 🎤💻 New SYNGAP1 #SRFWebinar with @camp4tx 🧬 SRF EU | What you need to know about ASOs before clinical trials — CAMP4 Case Study 🗓 Wednesday, June 11 🕘 2:30pm ET 🕔 8:30pm CEST 👉cureSYNGAP1.org/CAMP4EU

354

SYNGAP1 Global Network (SGN) · Mar 19, 2025 · 5:31 PM UTC

SYNGAP1 Global Network (SGN)@SyngapNetwork19 Mar 2025

RT @cureSYNGAP1: 🎤💻 New SYNGAP1 #SRFWebinar with Virginie McNamar & Mike Graglia 🧬 SRF | SRF’s 2024 Impact Report 🗓 Thursday, March 27 🕘…

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Mar 12, 2025 · 2:27 AM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP112 Mar 2025

Listen to the latest #SYNGAP10 episode with special guest host Monica Meyer! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/bK2z0xPQGWQ #SYNGAP1

614

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Mar 12, 2025 · 2:14 AM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP112 Mar 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/S5fEoVu8zww #SYNGAP1

Tell me your UnMet Need. CHCO ProMMiS! Gut Paper with Citizen Health. Rx Repurposing - #S10e164

Tuesday, March 11, 2025 - Week 11CHCO Press Releasehttps://www.l...

youtube.com

608

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Mar 1, 2025 · 2:04 AM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP11 Mar 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/iDvW7HfzSGA #SYNGAP1

723

Hope for ULD™ · Feb 28, 2025 · 9:25 PM UTC

SYNGAP1 Global Network (SGN) retweeted

Hope for ULD™@HopeforULD28 Feb 2025

Hope for ULD is celebrating Rare Disease Day by raising awareness for our fight against the ultra rare EPM1, Unverricht-Lundborg Disease. We are working to end the suffering of ULD! #rarediseaseday #epm1 #unverrichtlundborgdisease #genetherapy #RareEpilepsy

261

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Feb 25, 2025 · 11:23 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP125 Feb 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/oG46c4SUgVo #SYNGAP1

We are on the Hill Advocating for a better future – Sprint, DREEM,...

Tuesday, February 25, 2025 - Week 9ADVOCACY - Thank you Jessica, ...

youtube.com

550

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Feb 12, 2025 · 5:44 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP112 Feb 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/l8aCqQbE7LM #SYNGAP1

Impact Report is out! Read the Stanford Knowles article. Sign up for Dreem. - #S10e161

Impact Report is out! Read the Stanford Knowles article. Sign up fo...

youtube.com

540

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Feb 4, 2025 · 5:16 AM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP14 Feb 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/-6XnYok6EnY #SYNGAP1

716

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Jan 15, 2025 · 6:04 AM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP115 Jan 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/ymCUn9YGMYQ #SYNGAP1

459

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Jan 10, 2025 · 9:14 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP110 Jan 2025

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/FE49Ok2Dtaw #SYNGAP1

2025 is the year we double down on SYNGAP1. Tune in now. - #S10e157

2025 is the year we double down on SYNGAP1. Tune in now. - #S10e1...

youtube.com

1,206

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Jan 1, 2025 · 10:28 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP11 Jan 2025

How many people have SYNGAP1? 4Q24 #SYNGAPcensus = 🌏1,530 Details: cureSYNGAP1.org/Census 🇺🇸432 🇬🇧128 🇩🇪126 🇨🇳113 🇫🇷99 🇳🇱55 🇪🇸53 🇮🇹52 🇦🇺45 🇵🇱44 🇨🇦41 🇷🇺33 🇧🇷32 🇰🇷22 🇦🇷16 🇨🇭15 🇳🇴🇸🇪🇨🇴13 🇩🇰🇧🇪12 🇮🇪11 🇮🇱10 🇵🇹🇯🇵🇨🇱9 🇹🇷8 🇸🇮7 🇫🇮🇮🇳6 🇷🇸🇲🇽5 🇪🇪🇧🇾🇦🇹🇪🇬🇺🇦🇨🇿🇬🇷🇷🇴4 🇩🇴🇭🇺🇦🇪3 🇭🇰🇸🇷🇲🇦🇲🇾🇧🇦🇸🇰🇸🇬🇭🇷2 🇹🇹🇩🇿🇻🇪🇽🇰🇸🇦🇲🇨🇶🇦🇳🇿🇦🇲🇮🇷🇵🇪🇮🇸🇹🇭🇹🇼🇰🇿🇹🇳🇦🇱🇮🇶🇬🇹1 If we missed you, let us know! #SYNGAP1 #SYNGAPCensus #CureSYNGAP1 @SyngapAus @SyngapGlobal @SRFEurope @SyngapAmericaLatina

800

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Dec 18, 2024 · 6:25 AM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP118 Dec 2024

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/xtB1SBh4fxc #SYNGAP1

AES & SYNGAP1 Conf were great for SynGAP. 2 wks left to raise funds in ‘24 - #S10e156

AES & SYNGAP1 Conf were great for SynGAP. 2 wks left to raise fund...

youtube.com

446

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Dec 8, 2024 · 3:46 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP18 Dec 2024

#SYNGAP1 @ AES 2024 @cureSYNGAP1 @VirginieMcNamar @SyngapNetwork @SyngapAus #SYNGAPConf

571

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Nov 26, 2024 · 9:50 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP126 Nov 2024

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/ZTTuaMXiKF0?si=x7a2… #SYNGAP1

Annie - #S10e155

Annie - #S10e155Tuesday, November 26, 2024Annie passed yesterd...

youtube.com

507

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3) · Nov 26, 2024 · 4:32 PM UTC

SYNGAP1 Global Network (SGN) retweeted

CURE SYNGAP1 aka SynGAP Research Fund 501(C)(3)@cureSYNGAP126 Nov 2024

The SYNGAP1 community is at a loss as we share the passing of Annie. Please keep her family in your thoughts during this difficult time. As a community, we promise to always fight in your honor, Annie.

611