Teesside Cystic Fibrosis Centre. Delivering care to children from newborn to 18 years. Contact us on 01642 854684
James Cook University Hospital
Joined May 2019
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Excellent conference. Lots of learning and networking. Great ideas to take back to @TeessideCF team. Exciting times in cystic fibrosis care #ecfs2024
Teesside Cystic Fibrosis Centre retweeted
Thought provoking presentation by Charlie Dawson @GreatOrmondSt on the ever evolving role of the CF nurse
#ECFS2024 @CFNA_UK
Teesside Cystic Fibrosis Centre retweeted
Following NICE's statement today, our Chief Executive, David Ramsden, has shared the following video, giving an update on where things stand.
You can read the statement from NICE here.
➡️ ow.ly/JlwO50QwhLv
Teesside Cystic Fibrosis Centre retweeted
A huge congratulations to childrens outpatients JCUH for achieving a diamond accreditation 💎 Truely putting children, young people and their families at the heart of all they do! @hilarylloyd13 @NatalieCock29 @spittsy @Nicola_Howe79
Teesside Cystic Fibrosis Centre retweeted
And here’s a link to the paper I presented last week at #ecfs2023.
Important to know that research into better treatments continues and doesn’t end with kaftrio.
#CysticFibrosisweek
Prof Alex Horsley, Medical Director at NIHR Manchester CRF @WythenshaweHosp presented new data on the next-generation triple therapy for Cystic Fibrosis at the @ECFSConference in Vienna last week.
This study was led from Manchester CRF 🔬
#CysticFibrosisWeek
Teesside Cystic Fibrosis Centre retweeted
Do you receive any hospital-prescribed medicines directly to your home? Have you experienced any problems?
With a recent review announced of a homecare delivery company, we want to hear about your experiences.
Click the link to fill in the survey:
surveymonkey.co.uk/r/ZPDSSNM
Teesside Cystic Fibrosis Centre retweeted
Paeds physios! Questionnaire on Infant/Baby PEP provision in UK and Ireland. Big variations in the way baby PEP is taught, the questionnaire aims to identify any consensus.
forms.gle/a2KSnVjmxCxgN6SB8
Any questions please contact Emma Dixon @EmmaDIX39217881
Many thanks!
Teesside Cystic Fibrosis Centre retweeted
Worth reflecting on #InternationalClinicalTrialsDay quite how far cf care has come, not just through modulators. It’s an amazing story, driven by clinical trials and by amazing people (patients and researchers).
Teesside Cystic Fibrosis Centre retweeted
Exciting opportunity 👀
We are looking for a lead nurse/AHP for nutrition and hydration to join the team at #JamesCookHospital.
Interested? Apply by 15 May at beta.jobs.nhs.uk/candidate/j…
#SteesJOBS
Teesside Cystic Fibrosis Centre retweeted
We need your help to reach our survey response goal!
Here are three simple steps you can take to help out:
⭐ Fill in the survey.
⭐ Share the survey with your friends and family.
⭐ Retweet this post.
Make your voice heard today!
🔗 surveymonkey.co.uk/r/Yourlif…
Good luck team ☘️
Our CF Nurse and other team members are doing the coast to coast raising money for York Hull CF, through York and Scarborough Hospitals Charity. Good luck!!
Any donations will be most welcome!
York & Scarborough Hospitals Charity: Beat the Tide (enthuse.com)
Teesside Cystic Fibrosis Centre retweeted
Petitions that get shared more often, get more signatures. If you know someone with CF please share this every day this week. Thanks.
petition.parliament.uk/petit…
@Wessex_adult_CF @ChildrensUnit @AdultCystic
@CF_PROSPER @saporedisale14 @TeessideCF @nickluck @yorkhullcf #cfaware
We also have a brilliant supportive social worker. I’m sure our families will agree Sara is amazing too
Teesside Cystic Fibrosis Centre retweeted
We’re developing training resources to help CF centres improve exercise provision for people with #cysticfibrosis.
If you’re an adult with CF, or a healthcare professional, you can help by filling in our survey about exercise and CF.
➡️ ow.ly/IJle50NmNBK
Teesside Cystic Fibrosis Centre retweeted
Pleased to be able to share this nice piece of work from @Manchester_cf and @ChrisvanderGast team at MMU. Posting sputum back to the lab does not reduce our ability to culture CF bugs!
sciencedirect.com/science/ar…
Teesside Cystic Fibrosis Centre retweeted
Nutrition and Hydration week in CYPED, #anappleadaykeepsthedoctoraway #hydrationstation #NHW2023 @ste_mck1 @Sir_Souter @CathyBrammer @KeepGoinEoin @algordon94.
Teesside Cystic Fibrosis Centre retweeted
It was nice to return to a face to face meeting of our annual “North East CF Club” tonight. It was great to see our regional colleagues and share experiences of the new era of CF care. Here is our very own Dr Duffy presenting on CF and Pregnancy 🤰🏻
Teesside Cystic Fibrosis Centre retweeted
Supporting free prescriptions for people with cystic fibrosis in England: join us?
@CFpaedsGNCH @cf_newcastle @TeessideCF
petition.parliament.uk/petit…
Please sign and support people with CF to be able to claim free prescriptions. Petition: Free prescriptions for all cystic fibrosis (CF) patients petition.parliament.uk/petit…
@TeessideCF attending @vitalograph paediatric spirometry workshop. Meeting ARTP standards for lung function tests 💨
