Advocating for a better quality of life for people living with Metastatic Breast Cancer through Patient-Centered Dosing. https://xitter.cf/t.co/ItsQei3Ut6
Joined October 2024
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4/ Dosing isn’t just a science issue. It’s a quality of life issue—especially for people on treatment for the long haul. Read the article online ascopubs.org/doi/full/10.120… #DoseOptimization #MBC #Oncology 🧵
3/ The article aligns @The_Right_Dose with FDA’s Project Optimus—part of a broader movement to rethink the “maximum tolerated dose” in favor of what patients can actually tolerate over time. 🧵
2/ Our 2020 survey of 1,221 people with metastatic breast cancer found:
• ⚠️ 86% experienced major side effects
• 📉 43% had to skip treatments
• ✓ 83% felt better after dose reductions
• 🗣️ 92% want to talk about personalized
🧵
1/ Big moment for patient-centered dosing:
A new @JCO_ASCO article calls for change—and backs it with real-world data from @The_Right_Dose 2020 survey. (Our new survey’s in progress now!) 🧵
PCDI The Right Dose retweeted
Look! The @The_Right_Dose survey was featured at #HarvardBreastCancerCourse by @antgiorda—thanks for highlighting dosing in your Phase 1 trials talk!
Anne Loeser was the brains and engine behind this work, and the whole team played an integral role: therightdose.org/about-us#te…
📢 In Seattle for #MASCC25? Don’t miss @stage4kelly presenting our PCDI poster “Patient Survey on Antibody Drug Conjugate Dosing” during the Rapid Oral Poster Session on Shared Roles & Decision Making — Thursday, June 26 at 3:30 PM PT. #PCDI #mascc25 #ADC
PCDI The Right Dose retweeted
Last week, we were on the ground at
@SABCSSanAntonio, the world’s largest conference dedicated to breast cancer research. We spoke with Julia Maués (@itsnot_pink), co-founder of @GRASPtweets and @The_Right_Dose, MBC thriver, and BCRF ambassador, to hear her #SABCS24 highlights.
PCDI The Right Dose retweeted
Two impactful pt advocates were honored at @abreastcancer @SABCSSanAntonio:
•Anne Loeser, founder of @The_Right_Dose (PCDI) & author of Insider’s Guide to MBC.
•Sheila Johnson, advocate & author of A Survivor’s Lens, whose story inspired God’s Grace: The Sheila Johnson Story.
They are deeply missed!
#SABCS24
#bcsm
PCDI The Right Dose retweeted
Important FDA special session at #SABCS24! Grateful to @awolff for championing the shift from #MTD to minimum effective dose in #clinicaltrials.
Follow @The_Right_Dose (PCDI) for updates on #doseoptimization in #metastaticbreastcancer. It’s not just about living longer—it’s about living better! #QoLmatters
@SABCSSanAntonio
@OncoAlert
#bcsm
#DoseOptimization
PCDI The Right Dose retweeted
When 45% (or more!) of people on a trial need a dose reduction, we must move past MTD. @The_Right_Dose (PCDI - patient centered dose initiative) has been saying this and TPTB (the powers that be) are starting to listen. #SABCS24 #bcsm
PCDI The Right Dose retweeted
Excited to support my friend, & #PCDI lead @itsnot_pink as she represents @The_Right_Dose, bringing invaluable patient expertise on #doseoptimization to #SABCS24!
Changing the conversation, moving away from #MTD, toward #PersonalizedMedicine in #Oncology.
#SABCS24
@SABCSSanAntonio
#bcsm
PCDI The Right Dose retweeted
Really proud of my work wife (@itsnot_pink) filling the shoes of the late Anne Loeser - the driving force & founder of @the_rightdose. She leaves a legacy that improves the lives of MBC patients who are on treatment indefinitely through drug dose optimization.
#SABCS2024 #bcsm
PCDI The Right Dose retweeted
So happy to support my friend @itsnot_pink as she brings the @The_Right_Dose patient expert perspective on dose optimization to #SABCS24
PCDI The Right Dose retweeted
We patient advocates, who are volunteering our limited time (heck, we all have life shortening MBC!) CAN make a difference. But we need to oncology research community to get on board and helps! @The_Right_Dose #SABCS24 #bcsm
PCDI The Right Dose retweeted
Front & center, right where the patient expert belongs, is @The_Right_Dose leader @itsnot_pink #SABCS24 #bcsm
At @SABCSSanAntonio? @itsnot_pink is on the Clinical Workshop Panel for Dose Optimization in Breast Medical Oncology at 2:00pm. Join this clinical workshop to hear practical guidance for developing clinical research protocols that put patients first. #SABCS #PCDI #PCDIatSABCS
In a recent survey of 1,221 of MBC women, 86% reported having had at least one treatment related side effect. The PCDI survey also showed that 43% of respondents said they missed at least one treatment due to side effects. Read the full article online.
ow.ly/mfOf50Ubqw2
Talking with your doctor shouldn't be painful. Download our helpful information sheet about speaking with your doctor about your treatment-related side effects.
ow.ly/WWUi50Ubqte
#pcdi #therightdose #downloadtoday #informationsheet
In case you missed #TheRightDose in the news this month, we're making it easy. Read all about the need for dosing reform in #MBC.
ow.ly/Y4OS50TReMC
#inthenews #dosingdoneright #breastcancer #advocacy
The Patient-Centered Dosing Initiative (PCDI) advocates for a more balanced approach to cancer treatment, where both the effectiveness of the therapy and the patient’s quality of life are considered.
#therightdose #pcdi #patientcentered #discuss #collaborate #patientsfirst
