Experiences of young people with sickle cell. Follow us for updates! @LSHTM researchers: @cicely, @renedo_alicia, @sammiles87. Part of @DEPTH_LSHTM #health
London, England
Joined June 2015
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1/3: August brings good news about our latest #sicklecell research article. 'Communicating & understanding pain: limitations of pain scales for patients with sickle cell disorder & other painful conditions' by Peter Collins @cicely & @renedo_alicia is out NOW, free & open access!
ThisSCLife retweeted
Today's #throwbackThursday #tbt is our 'This Sickle Cell Life @NIHRresearch @ThisSCLife report by @LSHTM DEPTH researchers @renedo_alicia @cicely @SamMiles87, along with our patient & carer experts & clinician colleagues. Read it here, free & open access: tinyurl.com/yxkx2eze
Today's #followFriday #ff is the @YouTube channel for @SickleCellUK. Check out their videos, live Q&As & informational videos: youtube.com/c/SickleCellSoci… #sicklecell #health #media
Today's #mondaymotivation is via @GiveBloodNHS: Around 15,000 people in the UK have sickle cell and it's the fastest growing genetic disorder in the UK. We need more Black donors to come forward to help #sicklecell patients who need regular transfusions: bit.ly/3nRZYKB
This looks great - Sickle cell society @SickleCellUK are running a #BlackHistoryMonth #BHM2020 Interactive Storytelling Workshop with Usifu Jalloh for young people aged 6-17. Sign up here: eventbrite.co.uk/e/black-his… #sicklecell #storytelling #halfterm #create
Today's #mondaymotivation is this new #research @CannabisJrnl that demonstrates a rationale for research into the possible therapeutic effects of marijuana in #sicklecell disease: ncbi.nlm.nih.gov/pmc/article… #SCD #health #chronicillness
We're very excited to share this systematic review from our former @LSHTM @DEPTH_LSHTM MSc student Benjamin Kadia & his colleagues for @BioMedCentral @SpringerNature. Check out 'Iron stores in pregnant women with #sicklecell disease: a systematic review bmcpregnancychildbirth.biome…
ThisSCLife retweeted
Have a listen to LGR now! We are live for National thalassemia day!
#talkthalassaemia #thalassaemiamatters #nationalthalassaemiaday
Today is #nationalthalassaemiaday, organised by @teamukts! Check our more here @givebloodNHS: blood.co.uk/news-and-campaig… #sicklecell #health #wellbeing #media
ThisSCLife retweeted
‘You’re literally keeping one more person on earth every single time you donate.’
Layla talks about her daughter's Sickle Cell diagnosis and the need for more ethnically matched donors. Sign up to #GiveBlood, and save lives this #BlackHistoryMonth. ♥️
my.blood.co.uk/preregister
ThisSCLife retweeted
Make sure to subscribe to us on YouTube for all our latest videos, including all our Live Q&As, sickle cell panels, informational videos and more: youtube.com/c/SickleCellSoci… #SickleCell #Video
ThisSCLife retweeted
Today's #followFriday is for our new students & staff on @twitter - check out our @LSHTM colleague groups! @MARCH_LSHTM @SaME_LSHTM @LSHTM_Vaccines @MRC_Uganda @MRCTEG_LSHTM @LSHTM_AMR @cmmid_lshtm @LSHTM_Planet & many more..tag others below! #global #health #research #uni #ff
ThisSCLife retweeted
Today's #mondaymotivation is this new #research by @SamMiles87 @LSHTM & Regan Koch @QMUL. In @ProgHumGeog they lay out new geographies of encounter & intimacy using digital technology. Read #openaccess: journals.sagepub.com/doi/ful… @Grindr @Tinder @Uber @Airbnb @AcademicChatter #tech
We're celebrating #BlackHistoryMonth in the UK by sharing the achievements of our Black staff, students & alumni.
But first, we revisit Alice Ball's story, a Black chemist from @uhmanoa who discovered the first effective #leprosy treatment.
Proud to have her name on our frieze.
ThisSCLife retweeted
Today's #Fridayfeeling is our DEPTH @LSHTM website. We made it ourselves & we're very proud of it. You can check out our #blog, publications (with lay summaries), projects & who we are: lshtm.ac.uk/research/centres… #global #health #research #SRHR #tech #LSHTM
This fantastic article via @Sicklecelluk in @MetroUK is by @Nmozz, who explores what it is like living with #sicklecell during the #COVID19 pandemic. Have a read: metro.co.uk/2020/09/14/livin… #health #SCD #NHS #media
Today's #fridayfeeling is via @SickleCellUK! If you live with #sicklecell and are aged 6-17 years, then you are invited to their virtual Carnival Themed Workshop. Join for music, dance, arts and crafts and more. Spaces are limited: eventbrite.co.uk/e/virtual-c… #youngpeople #health #ff
ThisSCLife retweeted
To mark #SickleCellAwarenessMonth sickle cell patients have filmed emotional messages to encourage people of black heritage to give blood.
We’ll be sharing these to help others understand the daily battle and pain sickle cell patients go through. #DearSickleCell @UnsickleMyCells
ThisSCLife retweeted
The 2nd Hackney Engagement Project sickle cell panel opens discussions with men living with sickle cell, including Calvin Campbell, Soul Brother 1ne and King Juslin. Topics include blood transfusions, A&E, lesser talked about symptoms & more. Watch here: youtu.be/AxO1AQxFK2E
ThisSCLife retweeted
Today's #throwbackThursday is our @LSHTM article for @SHIjournal 'Transitions to adulthood: self‐governance and disciplining in the making of patient citizens'. We argue for helping young people develop identities that help them achieve life goals. More at onlinelibrary.wiley.com/jour…
