Medically retired Speech Therapist with #SPMS #parent & #blogger - coffee drinking ☕️ and frequently sleeping 🛏 #loveoneanother 🙏🏼 #MSstrong 💪 she/her
England, United Kingdom
Joined March 2016
- Tweets7K
- Following1.6K
- Followers1.9K
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Jen ♿️ retweeted
"I’m aware that I can still walk (albeit wall-walk) at home, I can still drive, and using assistive devices helps me to stay independent. But it obviously is no comparison to what my body used to be able to do." 🔗trippingthroughtreacle.com/s… via @TrippingTreacle
#ChronicIllness #MS
Jen ♿️ retweeted
Tired? No, listen. MS sucks the life force from you, chews it up and spits it out. And then you get to watch as MS pisses all over it. Meanwhile, you can’t think straight b/c all your remaining energy is going into continuing to exist. That’s MS tired. #MS #MultipleSclerosis
Jen ♿️ retweeted
💥 My Current Blog Posts - Updated 💥
What's been happening in my world lately? Feel free to browse and explore at your own pleasure and leisure. Thanks. 🙂
→ rebrand.ly/current-blog ←
🫵 What has been the most important thing for *You* this week? ❓❓
Jen ♿️ retweeted
Happy #DisabilityPrideMonth folks. I wonder when we'll see the same ability to celebrate & have our voices heard that other groups get when they mark that they are proud to be who they are? Go us!
ALT All smart in a shirt and tie Infront of a huge flight of stairs.
Jen ♿️ retweeted
MS/menopause
Thrilled the Burning Debate @ECTRIMS23 will be:
"All women with MS should start hormone replacement therapy at menopause unless contraindicated."
With @drruthdobson, @rrvoskuhl & @melindamagyari
Recognising 2/3 of ppl with MS are women & all will go thru menopause
Jen ♿️ retweeted
I’m sure this had the best intentions as an act of friendship but… it’s classic non-disabled gaze. A wheelchair is the dignified way to move when you can’t walk, not a horrible thing to escape. Being lifted out of it and carried makes most of us (not all!) wince at the thought.
Jen ♿️ retweeted
True confession
After asking if ppl with MS often found themselves apologising/justifying their disability, I realised it was time to make some changes.
So today I took out my Transport For London "Pls offer me a seat" badge which has been in my drawer for 3 yrs.
Time to use it.
Jen ♿️ retweeted
Sharing this from my blog for #MEAwarenessDay #WorldMEDay ~ quotes from 42 people with #MECFS, on the reality of what it feels like living with this devastating disease.
“A life with ME is like a non-existence. I’m alive, yet not really living”
#pwME
notjusttired.com/2019/05/08/…
Jen ♿️ retweeted
I just experienced my first MS hug.
Scared me because it, at first, felt similar to the chest pains I had with my heart attack a year ago. This article helped me understand the difference. Whew!
multiplesclerosisnewstoday.c….
Jen ♿️ retweeted
Brilliant interview today with Prof Sarah Rugheimer. All round over-achiever and MSer.
We talked about disclosing your #MS to an employer. The good, the bad and the ugly.
Subscribe to theMSguide.com and tick the bell to be notified when the video is live.
Jen ♿️ retweeted
Beware! I'll be there. And compere!
Only 2 months to go until #ParallelWindsor taking place on the 2nd of July 2023! It will be the first large-scale disability-led event to take place on the historic Long Walk. Let’s all #MakeHistory together! More info: windsor.gov.uk/whats-on/para…
Tickets: racespace.com/gb/parallel-li…
Jen ♿️ retweeted
There's this idea that people who are chronically ill and can't work are doing nothing and just laying in bed watching TV all day, when in reality, managing a health condition 24/7 is much harder work than any job or education I've ever done. (6/7)
Jen ♿️ retweeted
🥳UKIP have lost ALL of their six remaining councillors.
This means UKIP has been *completely* wiped out as an electoral force.
As of today, there isn’t a single UKIP politician elected anywhere in the country.
Jen ♿️ retweeted
I visited my old school today
to talk to yr 13s
and I swam in the pool
that's been filled in
ate a school dinner
in the demolished dinners block,
acted in Twelfth Night
on a stage that isn't there,
and talked to Andy
who was in the sixth form
when he died in a car crash
Jen ♿️ retweeted
OMG, my two biggest MS crushes in one video! How did I get so lucky?! @themsguide & @MarkWebb_ are forces for good in the world of this shitty disease, and I am grateful. 🧡💜
One of Britain’s most authoritative #disabled influencers has #multiples... youtu.be/Y-HZzEhmMqw
Jen ♿️ retweeted
"We live inside unpredictable bodies that don’t work as they should – trapped inside a body that keeps us from living. The worst thing is there is no escape. And so, it creates fear and a fear of going out." 🔗brainlesionandme.com/a-chron… via @serenebutterfly
#ChronicIllness
Jen ♿️ retweeted
May’s very special issue of @BritishVogue is on newsstands from today.
To see disabled women in the pages of Vogue will be genuinely moving for a lot of readers. Huge congrats to @TheSineadBurke for all her work.
ALT Selma Blair stands with a black cane and wears a black strapless dress and court shoes.
ALT Aaron Philip wears a black silky dress and sits in a power chair.
ALT Ellie Goldstein, who has Down’s syndrome, wears a red strap dress.
ALT Sinéad Burke stands in a black and green cape dress.
Jen ♿️ retweeted
Many people with #MS reported that mobility issues can cause them to feel depressed or anxious. Watch Caz's journey. How does MS make you feel? Join the discussion this #MSAwarenessWeek.
#MSMakesMe #MultipleSclerosis #MSAwareness #MultipleSclerosisAwareness #InvisibleIllness
Jen ♿️ retweeted
Today I bought a Disabled Persons Railcard so I can get 1/3 off train travel.
All ppl with MS in the UK are eligible thx to Dominic Shadbolt, @themsguide, who campaigned to ensure ppl with an MS diagnosis automatically qualify.
disabledpersons-railcard.co.…
dominicshadbolt.com/about/