Congratulations to Dr. Bruce Cohen of @AkronChildrens on receiving the Hower Award from the @ChildNeuroSoc! This recognition honors Dr. Cohen’s contributions to the field and his continued dedication to improving the lives of individuals affected by #mitochondrialdisease.
We’re grateful to everyone who joined us for UMDF’s Energy for Life Walk – Kansas City! Every step you take helps raise awareness and support the #mito community. Scroll through to relive some of our favorite moments from this special day!
Congratulations to @Mighty_Tx and @ucb_news on being named Industry Innovator Honorees as part of @RareDiseases Rare Impact Awards! This well-deserved recognition celebrates both companies’ ongoing contributions to advancing care for people living with #mitochondrialdisease.
Thank you to UMDF Ambassador, Jenny Hobbs, for sharing her #mito journey and helping spread the word about the upcoming Energy for Life Walk – Charlotte on @wcnc this morning! There’s still time to join us and register for UMDF's Charlotte Walk on 10/24.
youtube.com/watch?v=0YjCoTM6…
There's one final stop left on UMDF’s Biorepository Roadshow with @combined_brain for 2026! Patients with a confirmed #mitochondrialdisease can participate on December 3-4 in Denver, CO. Email [email protected] for availability and to secure your spot.
This #BlindnessAwarenessMonth, we’re highlighting the impact of eye & vision challenges in the #mitochondrialdisease community. According to mitoSHARE, 96% of respondents report at least one eye or vision problem. Join mitoSHARE to share your experiences. umdf.org/mitoshare-registry
Find your support circle at one of UMDF's weekly Virtual Support Meetings. Check our events calendar for log in details and to connect with patients and families in the #mitochondrialdisease community. umdf.org/events-calendar/
A big thank you to @ucb_news, @Drive4Modern, @UPMC, and @PNCBank for sponsoring this year’s National #Mito Movement Challenge! Thanks to everyone who participated, we exceeded our goal of raising $30,000 in honor of UMDF’s 30th anniversary!
A big thank you to everyone who came out to support UMDF's Energy for Life Walk – Indianapolis! Your participation helps raise awareness and funds for the #mito community. Take a look at some of our favorite moments from the day and let's celebrate this incredible community.
Join UMDF for a new virtual support group meeting on Oct. 21, at 12 PM ET on Rare Disease Drug Access. Designed for #mito patients and caregivers, this session will cover prior authorizations, navigating claim denials, the appeals process, and more. umdf.org/event/rdda/2026-10-…
Missed this year’s #MitoMed 2026 family programming in Orlando, FL? You can now catch up on the recorded sessions! Explore topics like Approved Therapies Coverage Landscape and Living with Leigh Syndrome: Care, Science, and Support Together, plus more. bit.ly/4jLqftt
Do you have questions about access to therapies and treatments for #mitochondrialdisease? Join us for our Ask the Mito Doc webinar on Oct. 27 at 7 PM ET as we explore Understanding Access to Therapies in Mitochondrial Disease. Register: bit.ly/4ywhrvz
Support is just a click away! Join one of UMDF's upcoming Virtual Support Meetings where patients and families can connect, share experiences, and find encouragement in the #mitochondrialdisease community. Check our events calendar and join us. umdf.org/events-calendar/
October is #BlindnessAwarenessMonth. Vision issues can be an important part of the #mitochondrialdisease experience. In our mitoSHARE community, 54% of participants have reported a major vision issue, an optic nerve abnormality, or a retinal abnormality.
UMDF, alongside our partners at @MitoAction, International Mito Patients (IMP), @4Lilyfoundation, @MitoCanada, @AusMito, and Mitocon, are hosting a community update regarding the PRIZM study on Oct. 8 at 7 PM ET. To register, visit: bit.ly/4yjrgwM #mito #MELAS
Do you want to host an in-person support meeting? We recently gathered at Columbia Doctors in NYC, bringing members of the #mito community together to share their experiences. If you’re interested in hosting an in-person meeting, email Margaret Moore at [email protected].
The latest issue of UMDF Connect is here! Check your inbox for a recap of #WorldMitoWeek2026, new #mito support meetings launching, exciting updates coming to mitoSHARE, and more from across the UMDF community. To read the newsletter: umdf.org/oct26_newsletter/
Here’s your opportunity to help researchers understand POLG-related #mitochondrialdisease. We are excited to announce that UTHealth Houston has been activated as the first clinical site for the #POLG Natural History Study and is now accepting participants. [email protected]
Join us in supporting the #mito community at our upcoming walks in Chicago on October 10 and Charlotte on October 24. Whether you walk, donate, sponsor or cheer us on from the sidelines, your support helps power the #mitochondrialdisease community. energyforlifewalk.org/
A community that understands your journey starts here. Connect with patients and families through weekly Virtual Support Meetings hosted by UMDF to share experiences and find encouragement in the #mitochondrialdisease community. umdf.org/events-calendar/

























