Project aiming to advance clinical development of orphan drug Vamorolone for treatment of DMD.
Joined October 2016
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The VISION-DMD project is proud to announce ' Santhera have Received Positive CHMP Opinion Recommending Approval of AGAMREE® (vamorolone) for the Treatment of Duchenne Muscular Dystrophy' Read the press release here CHMP-press-release.pdf (vision-dmd.info)
VISION-DMD rare disease day final project newsletter - mailchi.mp/d0b9b678c1c7/visi…
Vision-DMD Project retweeted
Eric Hoffman, Suzanne Gaglianone @smgag19 from @ReveraGen and Ritchie Head from Ceratium share their experience on what Patient Organizations can do to have data return from clinical trials
#DPA2021 #duchenne
Vision-DMD Project retweeted
Throughout the study, Vamorolone:
→ Showed sustained efficacy across multiple endpoints over 48 weeks
→ Good safety and tolerability profile was confirmed
More about the topline results from the @Vision_DMD study 👇
worldduchenne.org/news/topli…
Vision-DMD Project retweeted
💬 What is the patient perspective on returning individual clinical trial data back to participants after a trial has ended?
Help @Vision_DMD answer this question. Please complete this short 4-minute survey 👇
worldduchenne.org/news/retur…
#Duchenne #ClinicalTrial #HealthData
Vision-DMD Project retweeted
🚨 Important notice on 'stem cell therapy for Duchenne'. Please RT!
→ Currently, there are no approved stem cell therapies for #Duchenne
→ You NEVER pay for a clinical trial
→ If a ‘trial’ is not on clinicaltrials.gov, it is not a legitimate trial
worldduchenne.org/news/warni…
The power of collaboration: Positive results in VISION DMD study funded by #Horizon2020, #DMD #PatientGroups and US Gov – we are now entering the final phase towards Market Authorisation @santhera @ReveraGen @CORDIS_EU @EUScienceInnov #WDAD2021
Today, @Santhera and @ReveraGen announce topline results with Vamorolone in pivotal VISION-DMD study. Santhera will hold a conference call / webcast today at 16:00 CEST, 15:00 BST, 10:00 EDT. Details: globenewswire.com/news-relea…
Vision-DMD Project retweeted
Thanks #EUfunded @EJPRareDiseases research co-fund for advertising this White Paper of #EUfunded research @Vision_DMD project: returning individual clinical trial results back to patients - important not only for rare disease patients ! @EU_H2020 #ResearchImpactEU
New VISION-DMD White Paper: Returning Individual Clinical Trial Results Back To Patients. It focuses on addressing the ethical and technical challenges, using the vamorolone clinical trial experience.
#clinicaltrials #scicomm #medtech
vision-dmd.info/return-of-pa…
📍 New VISION-DMD White Paper: Returning Individual Clinical Trial Results Back To Patients. It focuses on addressing the ethical and technical challenges, using the vamorolone clinical trial experience.
#clinicaltrials #scicomm #medtech
vision-dmd.info/return-of-pa…
Interesting talks, free and online
Its nearly over - catch our last sessions this afternoon h2020transys.eu/transys-onli… #horizoneurope #transys #genderbias #OpenScience
