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Global awareness, education, recognition, resources, and research for Visual Snow Syndrome 👁️🌨️🧠 #VisualSnowSyndrome

Los Angeles, CA
Joined January 2018
Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)Photo by Visual Snow Initiative (@VisualSnowInit)
💙 Sierra Domb, Founder Emeritus of the Visual Snow Initiative, was recently featured by CNBC Cures to share her journey with Visual Snow Syndrome (VSS). 🔗 Read more: visualsnowinitiative.org/res…
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This is a photography series by artist Anne-Marie Cove, which she began in 2022 and continues to develop. The project is based on her own experience of living with visual snow, which she describes as a constant flickering static over her vision despite having healthy eyes.
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Those selected will receive their sunglasses directly from VYNIX, with shipping costs covered. 3️⃣ Try the Sunglasses and see how they compare with your everyday eyewear, particularly when it comes to brightness, glare, and visual comfort. 4️⃣ Approximately 30 days after delivery,
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🕶️ VYNIX is offering 25 FREE pairs of Panoptes Extra Dark Polarized Sunglasses to selected members of the VSS community! 💙 How Can You Participate? 1️⃣ Visit the VYNIX application page and complete the online form 2️⃣ 25 eligible applicants will be randomly selected.
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☀️ To better understand how different eyewear options may support people with VSS, the #VisualSnowInitiative (VSI) is collaborating with VYNIX, a New Zealand-based eyewear brand, on a community feedback programme.
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For many people living with #VisualSnowSyndrome (VSS), sensitivity to light and glare can make everyday activities, especially spending time outdoors, uncomfortable. While sunglasses and tinted lenses may offer relief for some, finding the right eyewear can be challenging.
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developing an eye condition, demonstrating how changes in vision can become a subject of artistic expression. We'd love to see your artwork! Tag @visualsnowinitiative in your creations or submit your artwork through our Warrior of the Week form via the link in our bio.
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visually resembles the static-like appearance of visual snow. 🌅 Claude Monet used soft brushstrokes, shimmering light, and blurred details to capture the world through Impressionism. 👁️ Edvard Munch documented his own visual disturbances through paintings and drawings after
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skies, glowing stars, and radiant halos in works like The Starry Night, creating visual effects that may feel familiar to some individuals with VSS. 🎨 Georges Seurat developed Pointillism, constructing entire paintings from thousands of tiny coloured dots, a technique that
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transforming patterns, colours, and visual phenomena into something others can see and better understand. Interestingly, some of history's most famous artists created works that bear striking similarities to these visual experiences. 🌌 Vincent van Gogh painted swirling
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When your vision is filled with persistent static-like dots, afterimages, light sensitivity, and other visual disturbances, describing what you see to someone who has never experienced it can be difficult. Art offers a way to make these invisible experiences visible,
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Join us TODAY for our Visual Snow Syndrome Support Group @ 8:00 PM (EST)! 💬 👉 Join using the link in our bio or visit: ancan.org/visual-snow-syndro… We hope to see you there! 🩵
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POV: Me trying to understand all my Visual Snow Syndrome symptoms. 😵‍💫👀
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We live with something that other people may never fully understand. But we do. And that is why we need to support one another, keep raising awareness, and never give up hope. 📷 visualsnowinitiative.org/war…
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everything I had been through. This year, I’m learning how to live with my symptoms and understand my triggers. I’m trying to avoid unnecessary stress, slow down, and take things one day at a time. To everyone living with Visual Snow Syndrome: We are incredibly strong.
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prepared. I had written everything down, describing my symptoms and experiences in the smallest detail. And for the first time, I felt heard. They listened to me. And finally, I received my diagnosis: VISUAL SNOW SYNDROME. I was incredibly happy to finally have an answer after
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scrolling through TikTok, I came across a video demonstrating what it’s like to see the world through the eyes of someone with Visual Snow Syndrome. And my immediate reaction was: “YES! THIS IS EXACTLY HOW I SEE THE WORLD!” On November 14th, I went to my appointment fully
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neurologists, physiotherapists, and many others. The examinations revealed nothing unusual. According to the doctors, my eyes and vision were perfectly fine. But I knew something was wrong, and no one seemed to understand what I was experiencing. About a month later, while
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having a migraine attack and that everything would eventually be fine. Over the following days, I kept telling myself the same thing, but nothing changed, especially my vision. And that’s when my seemingly endless journey of doctor’s appointments began—ophthalmologists,
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