Online Halloween activities:
Art Workshop Thurs 29 Oct @4pm UK Register here.
tinyurl.com/5bpbwhfh
A dramatic reading of H.G. Wells, Invisible Man, Sat 21 Oct @2am UK. Create an account: twitch.tv/corywysz
Steven’s spooky readings. Join anytime
tinyurl.com/y4ey3p5b
You can support ex Olympian Beth Dobbin in her campaign for increased ME research funding.
tinyurl.com/yc3sxss2
#ThereForME & AfME's MP briefing -Send this to your MP
Briefing: linktr.ee/ThereForME?lt_utm_…
Letter template tr.ee/t7FLOe0LPV
WG's COVID-19 pandemic review will not have stat powers 2 compel wit. 2 give evidence, says First Minister. Campaigners representing families who lost loved ones 2 Covid-19 have warned they'll not take part if wit. are'nt reqd 2 give evidence under oath
tinyurl.com/ykmzauh5
ITV Border News reports on the devastating impact of ME/CFS on farmer Andrew Jackson in Cumbria, who struggles to work on the family farm, with physical exertion often causing days of debilitating symptoms. [4 mins]
tinyurl.com/yyamwxfs
MERUK highlighted PoTS Awareness Day, 25 Oct. PoTS is a subset of the broader category of orthostatic intolerance, where symptoms are mainly experienced when upright. Some people with ME/CFS may also have PoTS as a co-existing condition.
tinyurl.com/y878x4an
The UK Covid inquiry is guilty of “a deep disservice” to disabled people neglected in their own homes during the pandemic by failing to examine their experiences in detail in its crucial report on the social care system, say campaigners.
tinyurl.com/bdekazuf
4th PRIME online workshop Wed 28th Oct 2-5pm GMT will cover:
why neurology has become such an important area of research in ME/CFS;
how findings are shaping future studies;
their potential to improve dx & identify therapeutic targets.
Register in advance.
tinyurl.com/36u5a7yc
MERUK shares some of the responses to their recent survey about the experience of Orthostatic Intolerance.
tinyurl.com/ycxpuynh
Nick says:
I’ve long had a nagging feeling that, for some advocates of the mind-body model of ME and Long Covid, the desire to help patients is secondary to the desire to test, validate, and promote the model through these conditions. And I don’t like it.
tinyurl.com/uxt7pczb
Prayati says that once we learn that it is not just one type of activity that can overload us, but also that a collection of otherwise manageable activities can trigger a crash, we need to learn how to communicate our limits to those around us.
tinyurl.com/4paxp9e2
Channel 4 prog The Experiment doesn’t pull its punches. From outset it draws strong parallels between Nazi ideol which saw Disabled ppl as unproductive, costly & burdensome & polit policies & attitudes 2wards Disabled ppl in UK 2day
tinyurl.com/yeyjvs48
tinyurl.com/y9mwfh3r
OT Abby says that when illness takes away the old routines, it can feel like the meaning went with them. But the values that mattered weren’t stored in the activity, they’re still in you. The work is finding new forms that can carry them.
tinyurl.com/r9hjd6y2
Dr Rob Wust talks about Delineating the physiology of skeletal muscle fatigue and post-exertional malaise in long COVID and ME/CFS [25 mins] +Transcript +Chapters
tinyurl.com/mr2r7my7
Cardiff Airport’s Special Assistance team has won Airport category at International Travel For Every Body Awards 2026. They beat a strong field of finalists inc Liverpool's John Lennon, Manchester, US's Orlando Intl & Canada's Victoria Intl
tinyurl.com/4bwzwamn
MERUK note that a review paper found ppl with ME/CFS generally had lower cortisol levels, when measured at different times of day. This suggests stress-hormone system is less responsive in ME/CFS i.e. ability to deal with or regulate, stress may be reduced
tinyurl.com/yps48r5y
Replying to @WAMESMECFS
A report from an industry-led accessibility group says there is ‘much more to be done’ to provide Disabled passengers with better safeguards when flying, a year after a review led by Tanni Grey-Thompson.
tinyurl.com/5ycnzwt5
UK Gov changes:
tinyurl.com/4w5fw65w
Cort explains PrecisionLife focuses on identifying biol causes driving subsets of ME/CFS & LC, & targeting txs to them. Its Long COVID DNA Wellness educational report requires only saliva sample & provides info abt yr genetic inheritance Cost:$495 (£369)!!
tinyurl.com/ymszax47
A treatment’s mechanism of action is the specific biological process by which it produces its effect in the body. OMF explains this component of the Data Analysis stage of the research process when looking for effective treatments for disease.
tinyurl.com/2uynmzej
Fred considers all the ways he has dealt with grief in the past when he has lost a cat: walking; working; music. "Illness took the walking first. Then it took much of the rest." He tried writing a song to his cat, but it wasn't the same as walking.
tinyurl.com/2xv6xbv8





