The White Sutton Syndrome Foundation™ is a global non-profit. Our mission is to serve, educate and fund research for those effected by White Sutton.

Joined March 2018
We did it! 🎉 We’ve officially reached our $150,000 funding goal for #WhiteSuttonSyndrome research at Nationwide Children’s. Big thanks to WSS parent Nora, who led an incredible push to raise the final $40K. ❤️ Fully funded. Let’s get to work. 🧬 #POGZ #RareDiseaseResearch
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Home stretch for #POGZStudy fundraising! Thanks to a group effort from #WHSUS community (most recently a HUGE lift by a parent - THANK YOU Nora!) we’re almost there, and RESEARCH HAS BEGUN! Still ~5k to go though - we need your help to meet our $150k goal! bit.ly/pogzstudy
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On #RareDiseaseDay, we’re closing in on $100K raised—and preparing to begin distributing funds to our researcher. Thank you for pushing this work forward! whitesutton.org/2026-researc… #RareDiseaseDay #POGZ
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🚨 Episode 2 of POGZcast is live! In Episode 2, we sat down with Dr. V. Reid Sutton and Dr. Jansen White — the very researchers whose names define #WhiteSuttonSyndrome! 🎧 Listen wherever you get podcasts or visit 👉 whitesutton.org/pogzcast #POGZ #Autism #Research #WHSUS
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White Sutton Day is a wrap! $12,774 was raised, and with matching funds applied, the total impact is over $25,000 for #WhiteSuttonSyndrome research. This puts us very close to $100,000 raised for #POGZ research! Thank you to everyone who helped! #grateful whitesutton.org/2026-researc…
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Final hours of #WHSUSDay 💙 We’re at $10,118 raised—thank you SO much to everyone who showed up. There’s still time to add to the impact and help push #POGZ research forward. Let’s finish strong. whitesutton.org/2026-researc… #WhiteSuttonSyndrome #Autism
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Update: $6,835 raised = 46% of the match unlocked 🎯 There’s still time to keep it moving—every gift helps claim more matching funds for #WhiteSuttonSyndrome research. Jump in if you’ve been waiting. whitesutton.org/2026-researc… #POGZ #Autism
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Honest #WHSUSDay update: today’s been quiet—and that’s okay. Momentum towards #POGZ research matters more than spikes. If you can’t donate, starting or sharing a fundraiser helps a LOT. One post can change the day. 💙 Find out how to get started at whitesutton.org/2026-researc… #Autism
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#WHSUSDay Midday update: So much generosity! Keep it going - every gift fuels #POGZ research + helps unlock more of the $15K match. Let’s maintain this momentum! whitesutton.org/2026-researc… #WhiteSuttonSyndrome #Autism
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#WHSUSDay is here! 🌟 Today we push research forward on #WhiteSuttonSyndrome. We’ve already hit $71,000, and your gift today unlocks part of a $15,000 donation match, doubling its power. Let’s go! 🧬❤️ whitesutton.org/2026-researc…
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And so #WHSUSDay begins...can't wait to see what the #WhiteSuttonSyndrome community can do today. Don't forget: your donations today will be doubled, up to $15k. Let's make #POGZ research happen! bit.ly/pogzstudy
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Tomorrow is White Sutton Day! 🎯 We’re at $71K+ and we have $15K in matching funds from Teddy's Stores and @BFARRFL ready to go — doubling your impact for research into POGZ and real treatments. Let’s do this. 🧬💪 whitesutton.org/2026-researc… #WHSUSDay #WhiteSuttonSyndrome #POGZ
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🎙️ The POGZcast is live! From the #WhiteSuttonSyndrome Foundation & created for the White-Sutton syndrome community. ✨ Because individuals with White-Sutton syndrome exist—and their stories matter. 🎧 Listen wherever you get podcasts or visit 👉 whitesutton.org/pogzcast
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Huge news! 💚🏈 The @Packers — currently fighting their way through the NFC playoffs — just donated $15k to our 2026 #POGZ research campaign! Thanks for believing in this and helping get closer to our goal. 💙 👉 whitesutton.org/2026-researc… #POGZStudy #WhiteSuttonSyndrome #GoPackGo
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Because of you, we’re ending 2025 at $47,679 raised for 2026 research. 💙 TY for every fundraiser, share, and donation! Rest up, enjoy Christmas… then get ready: White Sutton Day (Jan 6) is our next big push. whitesutton.org/2026-researc… #WhiteSuttonSyndrome #POGZStudy #WHSUSDay
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Dear #WhiteSuttonSyndrome community, I don’t even know where to begin except with this: thank you. Our first push to fund #POGZ research officially launched yesterday in a huge way. Head over to our Facebook page to read the full letter from our President: facebook.com/WhiteSuttonSynd…
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🚨 #GivingTuesday is almost over, but we're not done yet! Every dollar right now until we hit $5k for the day = DOUBLED for POGZ research! Let’s finish strong, claim the full match, and push this science forward. 👉 bit.ly/pogzstudy #POGZStudy #WhiteSuttonSyndrome
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The images you've seen today are individuals with #WhiteSuttonSyndrome who will be directly impacted by advances in #POGZ research. We're making real headway today! Please take a moment out of your #GivingTuesday to donate to help us hit our funding goal! bit.ly/pogzstudy
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We are halfway through #GivingTuesday, and also halfway to claiming the entire $5000 match the #WhiteSuttonSyndrome Foundation has been offered today! Want to know about the research we're trying to fund? Head to bit.ly/pogzstudy - you can donate there too! #POGZ
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This #GivingTuesday, help fuel research into #WhiteSuttonSyndrome! Scientists are building 3D brain organoids and using gene editing to crack how POGZ variants affect development—and how to fix them. Real steps toward real treatments! Donate at bit.ly/pogzstudy #POGZ
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