@WorkingWithLC

All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler

Joined October 2023
  • Tweets8.9K
  • Following929
  • Followers594
9Media
WorkingAndNotWorkingWithLongCovid retweeted
Cat in the Hat 🐈‍⬛ 🎩 🇬🇧@_CatintheHatOct 25
Replying to @WillowLymeInfo
X/Twitter can be very annoying at times. Try reading on from here for the rest of the thread 👇🏻
Cat in the Hat 🐈‍⬛ 🎩 🇬🇧@_CatintheHatSep 28
Replying to @_CatintheHat
THE BIG REVEAL: Scotland’s IPC team have decided to place COVID in the R1 category. That means they consider that COVID: ▪️does NOT cause severe disease ▪️is UNLIKELY to spread to the community ▪️and there IS prophylaxis or treatment readily available. nipcm.hps.scot.nhs.uk/media/…
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WorkingAndNotWorkingWithLongCovid retweeted
Irene@UKFCOTOct 25
Thanks @covidinquiryuk The lives and deaths of the social care workforce matter very much. Data is the bedrock for parity of pandemic protection and commemorations.
Extract from p201 from Module 6 Report published in October 2026 - about collection of mortality data.

ALT Extract from p201 from Module 6 Report published in October 2026 - about collection of mortality data.

Irene@UKFCOTJun 20
Great example of power of collaboration and need for data. Disappointed our FOI request @The_HCPC didn't yield much whatdotheyknow.com/request/h… Did @theRCOT track impact Covid & Long Covid on members who lost their lives and livelihoods, through membership data & Advisory Service?

HCPC Data about COVID-19 and Long Covid - a Freedom of Information request to Health and Care...

Under the Freedom of Information (FOI) Act 2000, I request data held by the Health and Care Professions Council (HCPC) about the impact of the COVID-19 pandemic and Long Covid on HCPC registered...

whatdotheyknow.com
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WorkingAndNotWorkingWithLongCovid retweeted
Neil Duncan-Jordan MP@NeilForPooleOct 23
We should support people who can work into employment. You don't do that by cutting the already meagre support disabled people rely on to live. Restricting eligibility doesn't mean less people will be disabled, just that more will be in poverty. That's not the Labour way.
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WorkingAndNotWorkingWithLongCovid retweeted
M.C@melanie_morbyOct 24
Meanwhile as a former Nurse I’m now disabled by Long Covid. Dismissed by an uncaring NHS, they have the audacity to say I can’t prove I caught it at work. The UK was in lockdown where else could it have come from…
Jock Tamson's Bairn@happymonkey1874Oct 12
£50 MILLION of taxpayers' money to "SG Recruitment" for PPE! Tory peer helped secure the deal WHILE holding a financial interest in its parent company! More than HALF the supplies were unsuitable! £24 MILLION lost. Company now in liquidation! 🚫 Do YOUR job @metpoliceuk
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WorkingAndNotWorkingWithLongCovid retweeted
@Dr Jenny Ceolta-Smith PhD RetiredOT 💙💛@JCeoltaSmithOct 23
TW suicide & #LongCovid research 👇 When previously advocating with #LongCovid groups this is something we warned about in our written U.K. government submissions @WorkingWithLC We must have #SuicidePrevention @LC_Physio @SupportingHH_UK
Prof. dr. Vivienne Matthies-Boon@V_MatthiesBoonOct 23
Sometimes it is with a heavy heart that the increasing relevance of particular research projects is brought home. So too with our funded project on "living death, social death and #suicide amongst #LongCovid patients in the Netherlands and Germany".
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WorkingAndNotWorkingWithLongCovid retweeted
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinicOct 22
🚨 My new paper on small fiber #neuropathy in NONPAINFUL conditions is published. Neuropathy is traditionally defined by neuropathic (tingling, numbness, burning, shooting) pain, but there are neurologic and non-neurologic conditions where objective findings of small fiber neuropathy are highly prevalent despite the pain being absent or minimal. I outline comprehensive treatment options for small fiber neuropathy with both evidence-based and emerging therapies in the Table. 🧠 clinmedres.org/content/24/3/…
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WorkingAndNotWorkingWithLongCovid retweeted
Todd Davenport@sunsopeningbandOct 22
People who insist exercise is medicine have the burden of proof. That is their assertion and therefore their obligation to prove it…or not. People who ask for proof do not have the burden of providing it because they are not making the assertion. Them’s the rules. That is all.
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WorkingAndNotWorkingWithLongCovid retweeted
Nancy Malek MBBS FANZCA
@N95AnaesthetistOct 22
Interesting preprint: SARS-CoV-2 is evolving to become less recognisable to human B cells, while also escaping existing antibodies.
Bloom Lab
@jbloom_labOct 21
In new study, we show that SARS-CoV-2 has evolved decreased inherent antigenicity in humans, as quantified by a ~3-fold decrease in the number of naïve human B cells that can bind the spike RBD. doi.org/10.64898/2026.10.15.…
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WorkingAndNotWorkingWithLongCovid retweeted
Seeking Boston Marathon@seeksboston26miOct 22
Kindly vote for my daughter and podcast partner in the Top Host podcast contest! Vote daily and share. We'd appreciate it. Let's get the long Covid story on @iHeartRadio tophost.org/2026/Ty-Godwin #LongCovid #cancer #cancersucks
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WorkingAndNotWorkingWithLongCovid retweeted
Disability News Service@johnpringdnsOct 22
The Times blocks DNS from raising concerns with its readers about DWP deaths, in response to Burnham ‘welfare inquiry’ article @TheTimes #DWP #DWPdeaths disabilitynewsservice.com/th…

The Times blocks DNS from raising concerns with its readers about DWP deaths, in response to...

The Times has blocked Disability News Service from alerting its readers to research which exposed how previous reforms to out-of-work disability benefits led to hundreds of deaths of disabled peopl…

disabilitynewsservice.com
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WorkingAndNotWorkingWithLongCovid retweeted
Disability News Service@johnpringdnsOct 23
Three leading social media companies have failed to act over animations that are spreading hate and lies about disabled people who receive benefits at an “alarming” rate. #PIP #Instagram #Facebook #TikTok disabilitynewsservice.com/in…

Instagram, Facebook and TikTok fail to act on animations spreading hate and lies about PIP claimants

Three leading social media companies have failed to act over animations that are spreading hate and lies about disabled people who receive benefits at an “alarming” rate. The animations – focusing …

disabilitynewsservice.com
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WorkingAndNotWorkingWithLongCovid retweeted
Wayside Scribbles@waysidescribbleOct 22
– Are you gonna stay dry forever, or what?
A black-and-white cartoon in a loose sketch style by @waysidescribbles. Heavy rain falls as two people stand outside. On the left, a completely soaked person standing in a puddle says: ‘ARE YOU GONNA STAY DRY FOREVER, OR WHAT?’. On the right, another person stands dry under an umbrella.

ALT A black-and-white cartoon in a loose sketch style by @waysidescribbles. Heavy rain falls as two people stand outside. On the left, a completely soaked person standing in a puddle says: ‘ARE YOU GONNA STAY DRY FOREVER, OR WHAT?’. On the right, another person stands dry under an umbrella.

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WorkingAndNotWorkingWithLongCovid retweeted
Long COVID Physio@LC_PhysioOct 22
Replying to @cv_cev
@cv_cev Pleased to support this letter from our allies at CVF. Everyone should be able to access safe healthcare. Neither staff nor patients should pick up an infection simply due to being in a healthcare setting. Anyone can become clinically vulnerable
Clinically Vulnerable Families 💙💜💗@cv_cevOct 22
Our open letter to UK infection control leads went today. Patients can be asked to remove their FFP2 or FFP3 mask, or swap it for a surgical one, while staff can now choose a respirator if treating a patient with respiratory symptoms. clinicallyvulnerable.org/let… #RightToMask

The right to mask in healthcare

Open letter: Clinically Vulnerable patients should be able to keep wearing their own FFP2 or FFP3 mask in the NHS, just as staff can.

clinicallyvulnerable.org
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WorkingAndNotWorkingWithLongCovid retweeted
Disability News Service@johnpringdnsOct 23
Disability News Service will continue to operate and produce stories for its website and subscribers, despite its editor being made redundant. #Canary #DisabilityNewsService disabilitynewsservice.com/di…

Disability News Service will continue publishing stories, despite indefinite closure of Canary

Disability News Service (DNS) will continue to operate and produce stories for its website and subscribers, despite its editor being made redundant. DNS, which was founded by disabled journalist Jo…

disabilitynewsservice.com
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WorkingAndNotWorkingWithLongCovid retweeted
Augusta Lees@AugustaLeesOct 22
Who wants to come to a mask and lateral flow negative test required concert on Saturday with me? Also remote option available, see below. lso.co.uk/whats-on/drake-mus… My friend is one of the artists being showcased & they're amazing.
A photo of me in a black ffp3 oxyline mask with a black cloth musical design mask over the top.

ALT A photo of me in a black ffp3 oxyline mask with a black cloth musical design mask over the top.

Wide view of a stage performance in a concert hall, featuring a seated musician surrounded by keyboards, microphones, and audio equipment under red stage lighting, with a sign language interpreter standing at the side of the stage. Jerwood Hall Drake Music Artist Showcase 2026 LSO St Luke's Artistic Partner LSO St Luke's Saturday 24 October 2026 • 6.30pm Featuring music from: Kindred Prisms

ALT Wide view of a stage performance in a concert hall, featuring a seated musician surrounded by keyboards, microphones, and audio equipment under red stage lighting, with a sign language interpreter standing at the side of the stage. Jerwood Hall Drake Music Artist Showcase 2026 LSO St Luke's Artistic Partner LSO St Luke's Saturday 24 October 2026 • 6.30pm Featuring music from: Kindred Prisms

Important Information Please be aware that there will be artists and members of the audience who are immunocompromised and therefore attendees will need to be comfortable wearing a mask for the duration of the event, as well as taking a Covid test on the day of the concert before arrival, alongside other safety precautions being taken. Covid tests will be at the audience’s own expense however there will be a limited number availble at the door on the day of the event. Please read the full information in the More Information section carefully before booking.

ALT Important Information Please be aware that there will be artists and members of the audience who are immunocompromised and therefore attendees will need to be comfortable wearing a mask for the duration of the event, as well as taking a Covid test on the day of the concert before arrival, alongside other safety precautions being taken. Covid tests will be at the audience’s own expense however there will be a limited number availble at the door on the day of the event. Please read the full information in the More Information section carefully before booking.

Tickets In person £11.50 Standard (£10 + £1.50 booking fee per transaction) £9.50 Concessions (£8 + £1.50 booking fee per transaction £7.50 Under-18s (£6 + £1.50 booking fee per transaction). Under-18s must be accompanied by an adult. Please select ‘Stalls’ when booking Book in-person tickets Live-stream Pay what you can: £5 or £2.50 or £0 (free) Book live-stream tickets

ALT Tickets In person £11.50 Standard (£10 + £1.50 booking fee per transaction) £9.50 Concessions (£8 + £1.50 booking fee per transaction £7.50 Under-18s (£6 + £1.50 booking fee per transaction). Under-18s must be accompanied by an adult. Please select ‘Stalls’ when booking Book in-person tickets Live-stream Pay what you can: £5 or £2.50 or £0 (free) Book live-stream tickets

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WorkingAndNotWorkingWithLongCovid retweeted
Disability Rights UK@DisRightsUKOct 21
📢A benefits system should enable Disabled people to live their lives, not make them afraid to live them. We are calling for a fairer benefits system for all. Join us in #DismantlingTheActivityTrap tomorrow👇 tinyurl.com/4ba7n9cz

Dismantling the Activity Trap: A call for action

Sharing new Activity Trap research and action needed so disabled people can be active without risking social security

eventbrite.co.uk
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WorkingAndNotWorkingWithLongCovid retweeted
Disability Rights UK@DisRightsUKOct 22
When Disabled people are repeatedly framed as a cost, it affects how society sees us. @Channel4's The Experiment confronts ableism, segregation and the consequences of devaluing Disabled lives. Read a blog on the programme here: disabilityrightsuk.org/news/…

Watch The Experiment on Channel 4

disabilityrightsuk.org
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WorkingAndNotWorkingWithLongCovid retweeted
Rachel Hext@HextRachelOct 22
6 years ago today I contracted #LongCovid Ill health retired from Nursing at 36, I’ve lost my career, my health, my independence and financial security. I’m not the Mum, Wife, Nurse or friend I want to be. I miss it all, and I’m angry that the #Covid decision makers walk free
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WorkingAndNotWorkingWithLongCovid retweeted
@longcovidtheanswers@longcovidanswerOct 19
Why can PEM symptoms be delayed? Prof @sunsopeningband explains #PEM can start hours or days after physical, cognitive, emotional or sensory exertion. Like waves building towards high tide, repeated exertion before symptoms settle can cause effects to accumulate. #LongCOVID
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WorkingAndNotWorkingWithLongCovid retweeted
Supporting Healthcare Heroes UK@SupportingHH_UKOct 20
A Swiss court has ruled that Long Covid in a nurse IS an occupational disease. None of the four UK nations have done this yet. shh-uk.org/swiss-court-recog… #LongCovid #LongCovidAwareness #HealthcareWorkers #NHS #MECFS
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