@WorldBladderCan

A global umbrella organisation for bladder cancer advocacy groups. Contact us at [email protected]

 Brussels, Belgium
worldbladdercancer.org
Joined January 2018
  • Tweets4.5K
  • Following982
  • Followers3K
2.4KMedia
New opinion piece 📖 "The first chance is the best chance" by @jteoh_hk, Dr Makarand Khochikar & @filicevas on surgical quality, cost of care and life after #bladdercancer treatment. 👉 worldbladdercancer.org/news_…
2
6
293
World Bladder Cancer Patient Coalition retweeted
Shilpa Gupta
@shilpaoncOct 12
Thanks @filicevas @UroDocAsh @WorldBladderCan for a great SAB meeting. Excited to lead the young onset bladder ca effort to build upon our young onset bladder ca sessions and working group that we launched in collaboration with @BladderCancerUS @IBCG_BladderCA in 2024! More to come!
2
15
707
World Bladder Cancer Patient Coalition retweeted
CANVES Alianza por el Cáncer de Vejiga en España@CANVES_ESOct 16
🌍 CANVES participó en el #BladderCancerForum26 de la @WorldBladderCan compartiendo la voz de pacientes y cuidadores y aprendiendo junto a organizaciones de distintos países. 💛 Seguimos trabajando para mejorar el apoyo a las personas con cáncer de vejiga. canves.es/canves-lleva-la-vo…
1
2
62
🧠 Today is #WorldMentalHealthDay. #Bladdercancer affects more than the body. Fear, sadness and “scanxiety” are common, and support matters. Our new factsheet on mental health and emotional well-being is out now 💜 📄 worldbladdercancer.org/news_…
3
122
🎙️ Our Executive Director Alex Filicevas is speaking at #EuropeanCancerSummit 2026! 📅 Wednesday, November 18 | ⏰ 14:45-16:00 CET 📍 Brussels and online 💡 Digital Cancer Innovation for Better Care and a Stronger Europe 👉 Register: europeancancer.org/summit#re… #BladderCancer
4
123
🗣️ #Bladdercancer is not only an older man's disease: 1 in 4 patients are women. Every voice counts in the #CANCERSurvey by @WECANadvocate, for patients & carers across Europe. 🕛 25 min · 🌍 15 languages Take it & share 👇 picker.fra1.qualtrics.com/jf…
2
97
Caring for someone with #bladdercancer does not fit a 9-to-5 🕘 Appointments move. Plans change. Needs shift overnight. This #EuropeanCarersDay, we stand with @Eurocarers_info : care does not follow a schedule. Flexibility matters. Learn more: worldbladdercancer.org/news_…
3
108
📚 10 bladder cancer factsheets are now available in Italian! 🇮🇹 Created with our Italian member organisation @PaLiNUro, they explain bladder cancer in simple words for patients, survivors & carers. 👉 worldbladdercancer.org/news_… #BladderCancer
4
112
World Bladder Cancer Patient Coalition retweeted
BCLEAR@EU_BClearOct 1
Blood in your urine, even once, is the #1 warning sign of bladder cancer 🩸 Caught early, survival can reach 90%. That's why BCLEAR is at the EU Cancer Mission showcase in Brussels today 🇪🇺 Come & meet Sara at our booth! 👉 patients.uroweb.org/bclear #BladderCancer #HealthLiteracy
1
1
3
83
World Bladder Cancer Patient Coalition retweeted
IKCC Kidney Cancer@IKCCorgSep 29
🤝 Putting patients at the heart of cancer care At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.
1
2
3
234
World Bladder Cancer Patient Coalition retweeted
Bladder Cancer India
@BladderConnectSep 23
Building Stronger Voices for Bladder Cancer Advocacy We were honoured to be part of the World Bladder Cancer Patient Forum, bringing together patient advocates and representatives from 30+ countries to connect, learn, and share perspectives. The forum was a valuable opportunity to understand the diverse challenges and healthcare gaps faced across regions, while exploring how shared experiences can lead to meaningful ideas and actionable solutions. A heartfelt thank you to the organisers and everyone who contributed to this enriching conversation. Together, we can continue strengthening the patient voice and bladder cancer advocacy globally. 💙🌍🤝 @WorldBladderCan @BladderCancerUK @IBCG_BladderCA @Cancer_Free_IND @Sanjeev_33 #BladderCancerIndia #WorldBladderCancerPatientForum #BladderCancer #PatientAdvocacy #PatientVoice #GlobalHealth #BladderCancerAwareness #Healthcare #PatientCommunity
3
3
122
World Bladder Cancer Patient Coalition retweeted
Campaign 4 Cancer@campaign4cancerSep 22
The 6th World Bladder Cancer Patient Forum 2026 brings the bladder cancer community together in Hong Kong. Patients, advocates and experts are sharing and strengthening patient voices. #UnheardPatientStories #LeukaemiaVoicesSA #BreakTheStigma #campaign4cancer @WorldBladderCan
1
3
317
🌍 #BladderCancerForum26 The Public day of the Forum brought together patients, carers, advocates, healthcare professionals, researchers and policymakers from across the world, in Asia for the first time, to share ideas, experiences and solutions to improve bladder cancer care. 👏 Thank you to every speaker, and to our Global Impact Partners, Premier Partners & Sponsors for their support, as well a everyone who followed online. #BladderCancerForum26 #BladderCancer #PatientAdvocacy
2
7
204
🚺 Addressing gaps in support for women with bladder cancer, closing #BladderCancerForum26 1 in 4 people diagnosed with bladder cancer is a woman. Our survey found 69% were diagnosed with another condition first, and 39% of those were told it was a UTI. Christine La Rose moderated Angela Pelletier, Hilda Kwok and Dr Makarand Khochikar. 💬 The myth that bladder cancer is more aggressive in women? The biology is the same. What differs is how long the diagnosis takes. Learn more here: worldbladdercancer.org/news_… #BladderCancer #WomensHealth #PatientAdvocacy
1
2
4
841
💬 Capturing lived experience with bladder cancer, at #BladderCancerForum26 🗣 Amit Rele, diagnosed at 45 with no symptoms, three years on from bladder removal and back to golf, the gym and the sea. 🗣 Junichiro Sano, vice-president of Japanese Bladder Cancer Patient Organisation, could not find another bladder cancer survivor in Japan, so he built the group that did not exist. 🗣 Amy Samuel, who refused to wait 45 days for a biopsy result in Senegal, and has since put bladder cancer on national media across West Africa. 👉 Learn more here: worldbladdercancer.org/news_… #BladderCancer #PatientAdvocacy
1
4
215
🗣️ Charting the path to Shared Decision-Making at #BladderCancerForum26 📊 Our 2023 survey found 82% of patients needed more information than they were given. The panel, moderated by Adam Lynch, looked at why: 🔹 Patients do not know what to ask, and what they need to ask about is life afterwards 🔹 Doctors are trained to deliver the best clinical outcome, not to hand the decision over 🔹 Consultations are too short for a real conversation 💬 One fix already working in Malaysia: a trained navigator sits with the patient afterwards, and nobody decides the same day. Learn more here: worldbladdercancer.org/news_… #BladderCancer #SharedDecisionMaking
7
128
World Bladder Cancer Patient Coalition retweeted
ImmunityBio, Inc.
@ImmunityBioSep 22
We're excited to join the World Bladder Cancer Patient Forum 2026 in Hong Kong, bringing together voices from across the globe to advance bladder cancer care and advocacy. Today, ImmunityBio's Anjali Malhotra joined a panel on patient-centric clinical trial design, contributing to an important conversation about putting patients at the center of research. #BladderCancerForum26
4
20
1
174
7,230
🤝 Role of carers in the healthcare system, at #BladderCancerForum26 🔎 A bladder cancer diagnosis does not stop with the patient. It reaches partners, parents and children. Lori Funk moderated Laurent Gemenick, who lives with bladder cancer, and David Garrigues Ronda, his partner and carer, both co-founders of @CANVES_ES . 💬 Carers live the illness too, not physically, but psychologically. They listens, organises appointments, filters online information, prepares the questions, and remembers what was said in the room when the patient cannot. 👉 Learn more here: worldbladdercancer.org/news_… @Gabaldingue #BladderCancer #PatientAdvocacy
1
4
108
🌍 WBCPC and our global impact at #BladderCancerForum26 Our Executive Director, Alex Filicevas spoke on what our community has built so far: 17 member organisations across 14 countries, and growing. ✔ Members Connect every two months ✔ Free guides on fundraising, online communities and working with clinicians ✔ More than nine patient resources in plain language ✔ @EU_BClear, our project helping patients take an active part in decisions ✔ A BCAM campaign that reached over 41 million people. Learn more here: worldbladdercancer.org/news_… #BladderCancer #PatientAdvocacy
2
74
Load more