@YoungDemNetwork

The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.

youngdementianetwork.org/
Joined December 2010
  • Tweets8.2K
  • Following1.8K
  • Followers13.5K
1.3KMedia
Our short animation explains what the Young Dementia Network is, what it does and how to join, from the perspective of a person living with the condition. Please feel free to share it with your family, friends, colleagues and networks to help us grow our membership.
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Today is Young Onset Dementia Awareness Day (YODA), a Dementia Forward initiative which we are very pleased to support. The awareness day, now in it's fourth year, seeks to raise awareness of young onset #dementia, tackle stigma and champion change. Find out more about #YODA here: dementiaforward.org.uk/yoda/
Young Onset Dementia Awareness Day graphic

ALT Young Onset Dementia Awareness Day graphic

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Researchers at the University of West London are planning to run a focus group to understand how different parts of a person’s life and identity shape their experiences of living with young onset #dementia, including any barriers or unfair treatment people may face. Find out more by reading the study information: youngdementianetwork.org/wp-…
An open book with a human brain emerging from its pages. Below, text reads: "Young Onset Dementia and intersectionality: Exploring lived experiences through personal narrative accounts.

ALT An open book with a human brain emerging from its pages. Below, text reads: "Young Onset Dementia and intersectionality: Exploring lived experiences through personal narrative accounts.

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A very big thank you to everyone who came to see us on our stand at Dementia Forward's Young Onset #Dementia Conference in York on Tuesday, including Dr Jeremy Isaacs, National Clinical Director for Dementia and Older People's Mental Health at NHS England. Congratulations to @dementiaforward for organising such a fantastic and well-attended event. We met lots of inspiring people and hope to see you again next year!
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Researchers from the University of Nottingham are inviting people to share their experiences of living with young onset dementia or supporting someone with the condition. They plan to use the stories to develop an online tool called LEND (Lived Experience Narratives in Dementia) which will be designed to help and support other people affected by #dementia. Find out more by reading the study information: youngdementianetwork.org/wp-…
The image is a flyer for the University of Nottingham's LEND project about sharing stories of young onset dementia. It invites participation from those affected by or supporting someone with dementia. The LEND project aims to use these narratives to help others. Participants can share stories as audio or in writing.

ALT The image is a flyer for the University of Nottingham's LEND project about sharing stories of young onset dementia. It invites participation from those affected by or supporting someone with dementia. The LEND project aims to use these narratives to help others. Participants can share stories as audio or in writing.

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Dementia UK has grown its dementia support for families from the Chinese and South-East Asian communities living in the UK with a brand-new nationwide clinics service, delivering culturally tailored support. Free virtual or telephone appointments with a dementia specialist Admiral Nurse can be booked up to one month in advance. Visit the Dementia UK website for more information: dementiauk.org/information-a… @DementiaUK
Admiral Nurse Emily.

ALT Admiral Nurse Emily.

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University of Essex group offers ‘lifeline’ to people with young onset dementia gazette-news.co.uk/news/2663…

University of Essex group offers ‘lifeline’ to people with young-onset dementia

The University of Essex Health, Wellbeing and Care Hub in Colchester is running a group for people diagnosed with young-onset dementia.

gazette-news.co.uk
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The new ARC England Learning Disability and Dementia: Best Practice Support – Co-Produced Interactive Online Training is now available to book. The course takes learners through from pre-diagnosis to what best practice in post-diagnostic support looks like, including as #dementia advances. For more information and booking details visit the ARC website: arcengland.org.uk/home/train…
Logo of ARC England featuring abstract red and blue figures and the text "ARC England" in red, on a white background with a purple border.

ALT Logo of ARC England featuring abstract red and blue figures and the text "ARC England" in red, on a white background with a purple border.

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The resources section of the Working With Dementia Network Plus website has been improved to make the content easier to read and navigate and work better on mobile and tablet devices. You will find a variety of resources relating to #dementia and employment including downloads, videos, recordings and infographics: workingwithdementia.org/reso…
A badge icon with a yellow silhouette and a blue lanyard against a white background. Text on the badge reads "Working With Dementia.

ALT A badge icon with a yellow silhouette and a blue lanyard against a white background. Text on the badge reads "Working With Dementia.

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Peer support groups and services for younger people living with #dementia can be hard to find. @DementiaUK's unique database of groups and services across the UK is a great place to look for support where you live 👇
Dementia UK
@DementiaUKOct 13
This week on @itvcorrie, Ronnie attended a dementia support group as Debbie’s young onset dementia symptoms worsened. 💙 If you’re affected by young onset #dementia, finding a group that feels right can be difficult. Search our UK directory of groups and services: dementiauk.org/information-a… (Photo credit: ITV)
Text image with a bright design. It reads, "Looking for young onset dementia groups and services where you live? Visit our website: dementiauk.org/young-onset-support." There's a graphic of a tablet with a location pin icon.

ALT Text image with a bright design. It reads, "Looking for young onset dementia groups and services where you live? Visit our website: dementiauk.org/young-onset-support." There's a graphic of a tablet with a location pin icon.

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Dementia UK's free online Summer School took place in July 2026 for health and social care practitioners, students and allied professionals. Presentations included 'Frontotemporal dementia' and 'Tackling the stigma in young onset dementia'. Recordings of these and other presentations from the event can now be found on their YouTube: youtube.com/playlist?list=PL… @DementiaUK
Text on a blue background reads: "Annual Summer School. Dementia UK’s free online annual Summer School for all health and social care practitioners, including students, volunteer sector and allied professionals, with an interest in supporting families living with dementia.

ALT Text on a blue background reads: "Annual Summer School. Dementia UK’s free online annual Summer School for all health and social care practitioners, including students, volunteer sector and allied professionals, with an interest in supporting families living with dementia.

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With live performances from Younger People With Dementia's choirs and community group, Lyrics and Laughter, its Christmas Concert is sure to be a wonderful evening. 🎄 It takes place on Tuesday 15th December 2026 from 6.30-9pm at Sindlesham Court, Mole Road, Wokingham RG41 5EA. ❄️ Find out more and purchase your tickets here: tickets.matterpay.com/s/youn… @YPWD
A large group of people wearing festive costumes and accessories, like Santa hats and reindeer antlers, are singing on stage. A keyboard is visible in front of them. Inset is a photo of two people smiling. The logo for "Younger People With Dementia CIO" is displayed at the bottom.

ALT A large group of people wearing festive costumes and accessories, like Santa hats and reindeer antlers, are singing on stage. A keyboard is visible in front of them. Inset is a photo of two people smiling. The logo for "Younger People With Dementia CIO" is displayed at the bottom.

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Chelsea's dad was diagnosed with young onset #dementia on her brother's 16th birthday. Her dad was 49, and she was 26 at the time. She has created a series of short videos sharing her family's experiences. The first touches on the signs and symptoms that led her dad, a self-employed joiner, to get a dementia diagnosis. Watch on Dementia UK's YouTube channel here: youtube.com/shorts/Nk1ZobTFZ…
Chelsea pictured.

ALT Chelsea pictured.

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This is a fantastic opportunity for children and young people in families affected by #dementia to offer feedback on a new online peer support programme 👇
Consultant Admiral Nurse Children & Young People@HannahdementiaOct 7
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Young Dementia Network retweeted
UTV Live News
@UTVNewsOct 2
In the latest edition of the UTV podcast, Going the Extra Mile, @CarolJordanTV sits down with Emily Wilson. Emily campaigns for faster dignosis and better support services for young-onset dementia after her husband Jim started to develop the condition in his early fifties. @alzheimerssoc More here: itv.com/news/utv/2026-10-02/…
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Over a recent 10-week period, disAbility Cornwall & Isles of Scilly delivered a landmark Young Onset Dementia Pilot Programme in Redruth, in partnership with LivDem, for people under 65 who have recently been diagnosed with #dementia. When the programme ended, attendees were filmed talking about their experiences and what the group meant to them. You can watch the video here: youtube.com/watch?v=UfJflR9w…
Promotional image for "Living Well with Dementia Young Onset Programme," featuring logos for DisAbility Cornwall & Isles of Scilly, Discover Voices, YouTube, Spotify, Amazon Music, and Apple Podcasts.

ALT Promotional image for "Living Well with Dementia Young Onset Programme," featuring logos for DisAbility Cornwall & Isles of Scilly, Discover Voices, YouTube, Spotify, Amazon Music, and Apple Podcasts.

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There is still time to sign-up for our webinar on Wednesday 23rd October 2026, which will focus on the care of people with young onset dementia within mental health wards. Do join us for what will be a fascinating webinar, led by Professor Emma Wolverson. She will be joined by Christine Wise, a family carer, and Mark Jones, Team Lead at the Young Onset Dementia Service based in Cardiff. They will share their reflections on the challenges, opportunities and realities of care within these settings for people with young onset dementia: youngdementianetwork.org/new…
The three webinar hosts pictured.

ALT The three webinar hosts pictured.

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The Young Dementia Network is looking forward to attending Dementia Forward's U&ME young onset #dementia conference at York Racecourse on Tuesday 20th October 2026. The conference will bring people together to listen, learn and explore new ways of working collaboratively for the benefit of people living with young onset dementia and those who support them. Find out more or book tickets here: dementiaforward.org.uk/you-m… @dementiaforward
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Beyond Dementia has launched a new online support group for people who care for someone living with young onset #dementia. Free to attend, the relaxed and supportive group meets fortnightly on Wednesdays from 7-8.30pm. To find out more, call 01380 739055 or visit the Beyond Dementia website: beyonddementia.org.uk/servic…
Beyond Dementia: new young onset dementia carers group advert

ALT Beyond Dementia: new young onset dementia carers group advert

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Young Dementia Network retweeted
Dementia UK
@DementiaUKSep 25
This week on @itvcorrie, Debbie, who is living with young onset vascular #dementia, struggled to recognise familiar faces. For our advice on coping with this difficult situation, visit our website: dementiauk.org/information-a… (Photo credit: ITV)
Debbie pictured under text in a pink box that reads: "When someone with dementia does not recognise you..."

ALT Debbie pictured under text in a pink box that reads: "When someone with dementia does not recognise you..."

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"Awareness of young onset dementia – where symptoms develop before the age of 65 – has grown significantly. "More people now understand that #dementia can affect younger people, who are often working, raising families or supporting others." To mark the ten year anniversary of the Young Dementia Network, Dr Hilda Hayo OBE reflects on the Network’s achievements over the past decade and her hopes for the future: youngdementianetwork.org/new… @DementiaUK
Hilda smiling. Text reads: “As we celebrate the Network’s 10th anniversary, it's the perfect time to reflect on all we have achieved over the past decade.” A logo states “10 years of the Young Dementia Network.”

ALT Hilda smiling. Text reads: “As we celebrate the Network’s 10th anniversary, it's the perfect time to reflect on all we have achieved over the past decade.” A logo states “10 years of the Young Dementia Network.”

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