Lived Experience Researcher

Malawi
Joined May 2011
Thank you, Boston Children’s Hospital, for sharing the Curse of Stigma film and hosting an engaging panel discussion on combatting epilepsy stigma at home and abroad. The panel featured Dr. Archana Patel, Chris Ryan, Susan Linn, and Kurt Eichenwald. It was a wonderful night!
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Understanding the ethics-related practices of NGOs engaged in mental health research is critical. This study addressed these questions in a Malawian context. plos.io/3Uqc7sR
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Policy action & advocacy in Africa by Action Amos presented by Patrick Ngechu from KAWE Kenya. They managed to enlist the help of the wife of the VP as an ambassador in Kenya and they are making a difference in enlisting the help of government for projects and medication
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First Group photo of the day. One of many #stampoutstigma
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IBE CEO Donna Walsh presenting on building a movement and raising awareness on epilepsy and building collaboration using the #50millionsteps campaign and the International Epilepsy Day. – at Ethiopia
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Prof. Gus Baker, Secretary General IBE, presenting on generating evidence followed by @SebastianWinter recorded presentation on the global epilepsy needs survey(GENS). Key outcome is a report of that will inform the core needs of people with epilepsy globally. – at Ethiopia
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Action Amos IBE Africa VP presenting 2024 plans guided by 3 focus areas namely; raising awareness, capacity building and policy dialogue #stampoutstigma – at Ethiopia
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Thank you Africa for being part of the #50MillionStepsforEpilepsy Global Challenge and commemorating the @intepilepsyday with us. We indeed raised awareness, improve visibility, and increased the understanding of #epilepsy in #Africa and beyond.
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IBE #Africa Achievement Award Join us on the 14th of December 2021, at 2:00 pm Pretori Time, during the inaugural IBE Africa. Let us honor an Epilepsy Advocate who gave it all to ensure that #Epilepsy is recognized in #Africa. To receive link email: [email protected]
BRINGING EPILEPSY OUT OF THE SHADOWS-A PUBLIC HEALTH IMPERATIVE Invitation to a virtual roundtable discussion to inspire a decade of action guided by the International Global Action Plan on #Epilepsy and other Neurological Disorders. Register via link: cts.vresp.com/c/?ILAE/2b7646…
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VACANCY!!! – Advocacy Trainer IBE, with support from Band Foundation, is looking for an ‘ADVOCACY TRAINER’. #Apply #epilepsy #epilepsyawareness epilepsyafrica.org/vacancy-a…
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What a shining example indeed......others need to emulate this!!!!!
I am happy to have fulfilled my promise to the community of Persons with Special Needs, by assenting to the Disability Bill. We have also inaugurated a National Commission for Persons with Disabilities, to take the work to the next level, and implement our vision in full.
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Dr Charlotte Baker.....this a good platform for learning and share experiences.
Our first speaker @actionamo is speaking about ‘conceptualization of mental health in Malawi’ #alternativeexplanations
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Our speakers from the first panel are now taking questions from other participants and they have really left an impact on the listeners because of which there are now a lot of questions/clarifications from them. @actionamo @PreethiLN Joanne Bloch 💯💯💯 #alternativeexplanations
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We cant wait !!!!!!
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