Advanced MS. Adult educator to help HCP students at Uni. Public patient involvement. Love my Travelscoot The Trike. Always optimistic.
Woolwich Arsenal
Joined January 2012
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Living with advanced MS and finding good exercises to help me is not easy. Read my latest blog including a good video of exercises from the @NHNN_therapies
aid4disabled.com/advanced-ms… – at Greenwich, London
Has Stuart Andrew, the UK sports minister, really sent a letter to the International Olympic Committee supporting the involvement of Russian athletes in the 2024 Paris Games. Sounds like more #ToryChaos
Patrick B, I walk very slowly retweeted
Thank you, @MarkWebb_ for being part of #ChariotMS💪 #EDSS 6.5-8.5? Visit chariotms.com or email [email protected] to join @themsguide @RachelHorne19 @aid4disabled @Florianadea @miriblackmar @Stelelh @ETallantyre @nikosevangelou3 @dr_niall @Dr_BaderMohamed
There are three key steps to stopping MS. We have clinical trials in progress for all of them:
🔸 prevent immune damage
🔸 promote myelin repair
🔸 protect nerves from MS damage
Read more about our plan to #StopMS and explore current #MSResearch: mssoc.uk/4c70OMR
ALT Image shows a picture of Mark holding a weight, along with the text "Let's stop MS together"
Patrick B, I walk very slowly retweeted
This Government is an absolute disgrace
Please RT if you agree
Rehabilitation enables a better quality of life and improves social capital
@GavinGiovannoni @KlausSchmierer @themsguide @shiftms @RachelHorne19 @Paul_Griffin1 @Kimberley_AP @AndreaLisher @AndreaStennett
Please sign the petition shown below. NHS rehabilition is crucial and RT
After my spinal injury, NHS rehabilitation helped restore my life. Scandalously, it isn’t available to everyone. Please support this new campaign to end the postcode lottery and join me in adding your signature. PETITIONFORREHAB.COM. #RightToRehab
Suffering from a horrible cold. Sore throat, bouts of sneezing and box of tissues beside me all the time
So dammed unfair
Patrick B, I walk very slowly retweeted
If you come across a sheep lying on its back with its legs up, it is 'cast'. Please be so kind as to tip/roll it back over; if left like this they can die as they cannot get up. Please be kind enough to share.
Peristeen equipment gas arrived. Just got to pluck up the guts (ha-ha) to christen it.
The first time is always the hardest. Busy week ahead but need to find the time
On a Clipper Thames river taxir travelling up to London. Going to see Hills of California . The new play by Jez Butterworth
My latest blg. A wobble cushion really does help to strengthen my core muscles. Only 10 minutes a day makes a world of difference aid4disabled.com/
Took over 6 months to arrange an appointment to be shown how to use Peristeen. Saw a specialist nurse on Tuesday and shown in an hour. Expecting delivery today.
Initially i received so much conflicting advice but ultimately very straight forward.
Finally seen a doctor and Peristeen has been arranged. Expect delivery within a week. Its all taken so long. Phew
#MSCHARIOT. Another visit to 11D at the Royal London hospital. Blood test to see if my white blood cell count is high enough. What destroys white blood cells, is it cladribine?
Patrick B, I walk very slowly retweeted
#ChariotMS - Another reason to cherish #SelmaBlair Visit chariotms.com #EDSS 6.5-8.5 @MarkWebb_ @cannedpix @aid4disabled @mssocietyuk @mssociety @Barts_Charity @NIHRresearch @NIHRtakepart
Bummer, Thames barrier closed so no river taxis running as far as Woolwich. The tide is highest I have seen
BBC News - XL bully dogs killed Esther Martin in Jaywick - Essex Police
bbc.co.uk/news/uk-england-es…
My attitude to any bulldog will never be the same again.
Patrick B, I walk very slowly retweeted
Lee Anderson, he of ‘30p is more than enough for a meal’ and Rwanda obsessive fame, has told the new PopCorn? party that only the ‘odd weirdo in the corner’ cares about climate change.
Repost if you DO care about Net Zero.
Like if you DON’T think that makes you a weirdo.
Patrick B, I walk very slowly retweeted
“What are you doing for New Year’s Eve?”
I’ll be watching telly in my pyjamas like every other night of the year, all being well.
