@angelman

Angelman Syndrome Foundation advances the awareness and treatment of Angelman Syndrome through education, information, research and support.

 Aurora, IL
angelman.org/
Joined July 2009
  • Tweets5.8K
  • Following697
  • Followers3.2K
2.2KMedia
Wishing Peace, Joy, and Love to the entire Angelman Community. We're honored to stand beside you on this journey. ☮️💙 #angelmansyndrome #angelman
4
9
1,668
It's Giving Tuesday! Thanks to a donor match, we can raise $90,000 to support individuals with Angelman syndrome! Donate here: support.angelman.org/powerof… #angelman #angelmansyndrome #angelmansyndromefoundation
2
12
2,468
News of the new Colin Farrell Foundation has the world interested in #AngelmanSyndrome. Jim Acosta invited ASF CEO, Amanda Moore, to discuss Angelman syndrome and its unique challenges. Watch here: youtu.be/69j1YimSAt4
3
21
3
53
15,655
You can support the ASF mission without spending! Share quality brand opinions with HundredX™ & up to $1.60 for each goes towards strengthening ASF programs! Complete 50 by July 14 & be entered to win a $100 gift card! Text ASF to 90412 or click here bit.ly/HXC-ASF-24
1
3
927
LAST CHANCE! Secure your 2024 ASF Walk retro tee. Attend in-person (in May) or virtually. But you MUST register today to receive a shirt. angelman.org/walk
2
4
915
FAST and ASF were invited to join other rare disease advocates at a special forum hosted by the White House Office of Science and Technology Policy in honor of #RareDiseaseDay! Watch the livestream tonight, Feb 28 at 5:30pm youtube.com/live/uG43oLZzeBE
1
2
681
#RareDisease Week is quickly approaching. FAST and ASF will be joining numerous other rare disease groups on Capitol Hill in person. We invite the #Angelman community to register for sessions to help spread awareness. Details: angelman.org/articles/rare-d…
1
5
610
It was a great day! Thanks for celebrating. 💙
Hillside Elementary Principal@MTL_HSPrincipal16 Feb 2024
It was a great spirit day at Hillside yesterday. There was definitely a sea of blue in honor of @angelman. Hillside was determined to spread awareness for Angelman Syndrome. #YearofDetermination
2
732
Spread the word. February 15 is #InternationalAngelmanDay #AngelmanDay2024
15
3
29
1,911
It's #InternationalAngelmanDay, so we have a special discount on ASF Walk registration! Use the promo code IAD2024 for $5 off all fees. #walkforangelman #angelmansyndrome #angelmanday2024
1
6
491
Front porches and famous landmarks around the world are ‘Lit Up Blue’ in honor of International Angelman Day, February 15. Interested in having buildings, bridges or natural landmarks Light it BLUE? Learn how: bit.ly/3O377Xa #InternationalAngelmanDay #AngelmanDay2024
4
5
733
2024 ASF Walk Registration is OPEN! Receive $5 discount on fees through Sunday! Join us on May 18 (in most locations). Find your location and register here: angelman.org/walk #walkforangelman #angelman
4
7
762
Scholarship applications for the ASF Family Conference are open. Scholarship awards cover up to 3 nights hotel accommodations at the standard group rate. Join us July 23-26 in Sandusky, OH. Learn more & apply here: angelman.org/2024-conference
1
3
443
Our Chicago Marathon team is about half full! From first-time marathoners to experienced athletes, the Windy City Angels have a common goal of raising critical funds and spreading awareness of Angelman syndrome. Join us on October 13, 2024! Details: angelman.org/events/chicago-…
2
5
466
2024 ASF Walk registration opens January 10! Plan to join us on May 18 in most locations. We’re celebrating the 25th anniversary of the ASF Walk. Receive a $5 discount on fees through January 14th. See more info & locations on angelman.org/walk
3
4
344
Hardships often prepare ordinary people for an extraordinary destiny. Supporting the ASF helps provide services and resources individuals with Angelman syndrome need to keep their resilience strong! Support: support.angelman.org/resilie… youtu.be/54ekzFXYKaM?si=9ABp… via @YouTube
1
3
492
Registration is open for the 2024 Bank of America Chicago Marathon. The Windy City Angels are committed to raising critical funds and spreading awareness of Angelman syndrome. Join us on October 13, 2024! Details: angelman.org/events/chicago-…
Windy City Angel, Sara, crossing the finish line on October 8, 2023.

ALT Windy City Angel, Sara, crossing the finish line on October 8, 2023.

2
449
We’re very excited to share a new #angelman clinic opening this week! The ASF Clinic at Children’s Hospital of Philadelphia will be headed by Eric Marsh, MD. To make an appointment, call (215) 590-1719. More information here: angelman.org/clinic/chop
1
1
444
ASF Family Fund Application is OPEN! Apply for adaptive bikes, safety beds, strollers, iPads, travel expenses to a clinic, therapy expenses - anything to help improve the quality of life of your individual with AS. Details & application: angelman.org/resources-educa…
354
ASF Family Fund OPENS October 1. Apply for funding that will help improve the quality of life of your individual with AS. Safety beds, adaptive bikes, strollers, iPads, travel expenses to a clinic, therapy expenses and more! More info: angelman.org/resources-educa…
2
326
Load more