We are now the only charity that aims to raise awareness for early diagnosis, treatment & improved outcomes for all forms of Aspergillosis.
UK providing support worldwide
Joined July 2014
- Tweets6.6K
- Following2.6K
- Followers2.3K
- Likes10.5K
Aspergillosis Trust retweeted
We're excited to launch a music video "AMR heroes" a collaboration by The Hope Music Foundation &
@theAMRnarrative
The song honours all who tirelessly advocate to tackle #AMR globally
Watch here👉youtu.be/oi5ZNSTSqCE?si=igYf…
#theAMRnarrative
#AntimicrobialResistance
Aspergillosis Trust retweeted
I’m currently away focusing on writing commissions. It was a pleasure to meet with Lisa McNeil, the Chair of the Aspergillosis Trust @aspertrust, along with Trustee Katie Martin, to discuss a story I’m developing to help raise awareness about the condition. Individuals with respiratory issues are particularly vulnerable, including the 7.2 million people in the UK who are registered as asthmatic. I encourage you to visit their website to learn more about their mission and the critical work they are doing. aspergillosistrust.org/
Aspergillosis Trust retweeted
Looking forward to getting started on fosmanogepix clinical trials at Westmead Hospital @RENWestmead - covered today in The Pulse 👇
New hope for vulnerable patients as ground-breaking antifungal drug trials begin thepulse.org.au/2025/02/21/n…
Aspergillosis Trust retweeted
Finally there: The new reference for Candida infections & their management: Global guideline for the diagnosis and management of candidiasis @TheLancetInfDis - thanks to @CornelyOliver & team for coordinating! sciencedirect.com/science/ar…
Aspergillosis Trust retweeted
Join us for Aspergillosis 101! 🌟
📅 1st February 2025
🕕 6:00 PM – 8:25 PM IST
🩺Decoding Aspergillosis: From Basics to Best Practices
Let’s learn and raise awareness together!
Register now - us06web.zoom.us/meeting/regi…
#IDtwitter
#Medtwitter
@CidsIndia
Aspergillosis Trust retweeted
We are at the #EuropeanParliament today to share patient perspectives at the #EUHAC Policy Outlook: Strengthening Disease Prevention Through #CleanAir Measures event.
Patients must be heard in the fight for cleaner air. #BreatheCleanAir #HealthyLungsForLife #CleanAirForAll
Aspergillosis Trust retweeted
Pulmonary fibrosis is a #lung condition that increases the risk of chronic pulmonary #aspergillosis - patients and carers can find out more about #PF through this webinar being held tomorrow by @ActionPFcharity 🫁
#respiratory #respisbest #breathe #breathlessness @ARNS_UK
Have you or a loved one been recently told that you have PF?
Join our webinar 'An Introduction to Navigating the PF Journey'.
📅29 Jan, 6-7pm
This is a repeat of the webinar we ran in December.
Sign up:
us02web.zoom.us/webinar/regi…
Submit your questions:
forms.office.com/pages/respo…
ALT A photo of a laptop on a table with the text 'Recently diagnosed with pulmonary fibrosis? Join our upcoming webinar 'An Introduction to Navigating the PF Journey'
Aspergillosis Trust retweeted
Featuring two new patient stories from Mick (CPA) and Marcella (ABPA), talking about how their conditions (and treatments) affect their daily lives in ways that don't show up in scans and blood tests
They also talk about how they find joy in creative hobbies and social groups
Aspergillosis Trust retweeted
Dareen Marghlani (Imperial) @CPA_HRQoL will tell us about the CAPSULE study and the #QoL tool she is developing specifically for CPA patients
Aspergillosis Trust retweeted
Lisa McNeil will talk about what the Aspergillosis Trust @aspertrust does to help patients who often feel limited, anxious and isolated by this disease
Aspergillosis Trust retweeted
Registration is now open for our free online #WorldAspergillosisDay conference
WHEN: Mon 3 Feb, 9.30-3.30 GMT
WHERE: Microsoft Teams
WHO: for patients, carers, clinicians, scientists
Info: aspergillosis.org/world-aspe…
#respiratory #IDtwitter #medtwitter #AMR #resptwitter #pulmonary
Aspergillosis Trust retweeted
What is the future for inhaled antibiotics?
New paper just published from the brilliant @emma_d_johnson explores inhaled antibiotic trials, future directions and how these treatments might fit into an evolving landscape
tandfonline.com/doi/full/10.…
Aspergillosis Trust retweeted
As Chair of the @WHO Task Force of AMR Survivors, I invite you to share our "AMR is Invisible. I am not." campaign. Alternatively, please reach out to one of our members or identify a patient story within your local community.
This year’s WAAW theme is Educate. Advocate. Act Now. Let’s ensure we include the often unheard voices of those most affected by this global health threat.
#AMRsurvivors
#AMR #AntimicrobialResistance #WAAW
Aspergillosis Trust retweeted
Excellent review - airway clearance management, PR, self-care programs, while highlighting the importance of focusing in a multidisciplinary way on cough in bronchiectasis @AriettaSpinou @AnnemarieLLee1 @wha7tsername @OneillBon @MichalShteinbe1 publications.ersnet.org/cont…
Aspergillosis Trust retweeted
AMR, or Antimicrobial Resistance, is a natural phenomenon where infection-causing microorganisms (germs) such as bacteria, viruses, fungi, and parasites evolve to become resistant to the antimicrobial medicines that were designed to treat them. These antimicrobial medicines include antibiotics, antifungals, antivirals and antiparasitics.
AMR is a global health emergency, yet most patients and the public have never heard of it before. It is important that we can all play a role in protecting these life-saving medicines so they continue to work when we need them most.
We've created this short video which explains the basics of AMR.
Watch the full video and subscribe to our YouTube channel here: lnkd.in/eGGJK27q
#theAMRnarrative
#AMR
#AntimicrobialResistance
#HealthLiteracy
#PatientAdvocacy
Aspergillosis Trust retweeted
Our joint statement with @eupatientsforum on the #UNGA79 Declaration on #AMR calls for more patient and civil society participation in AMR policies.
According to MEP @BosseStine, patient organisations must work together with policy-makers to achieve real change.
➡️ bit.ly/3N1kHtn
#theAMRnarrative
#AntimicrobialResistance
Aspergillosis Trust retweeted
Prof David Denning talking about the need for sensitive and cheap diagnostic tests for fungal infections in Cameroon and in Africa.
Aspergillosis Trust retweeted
Let's meet on Saturday 21st September 2024 for an exciting webinar to raise awareness on fungal diseases.
Join us through zoom meeting.
us06web.zoom.us/j/4475168455…
Meeting ID: 447 516 8455
Passcode: ykpQ7u
Aspergillosis Trust retweeted
Humbled to announce that I have been selected as the 'Emerging Leader in Infectious Diseases' by the International Society of Infectious Diseases this year..
International Society of Infectious Diaeases is an organization which works in affiliation woth several other societies..
Aspergillosis Trust retweeted
Fantastic joint session led by @EMBARCnetwork at #ERSCongress on bronchiectasis- entering a new era
The room was full and huge numbers still trying to get in
Bronchiectasis is the hot topic at ERS 2024 !
