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CF NSW

@CFNSW

We support people with cystic fibrosis (CF) and their families in NSW through services, lobbying and contribution to research.

 Sydney, NSW
cysticfibrosis.org.au/nsw
Joined December 2009
  • Tweets660
  • Following362
  • Followers749
161Media
Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)Photo by CF NSW (@CFNSW)
Attn. all CFNSW members. The deadline to send in your proxy/consent forms for the upcoming CFvic merger meeting is March 28th. Thanks! – at Canberra, Australian Capital Territory
Image from CF NSW (@CFNSW)
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New parking concessions for frequent hospital visits are being rolled out :) dailytelegraph.com.au/news/n…
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Thanks for the support guys, glad you had fun :)
65k 65 Roses for @cfnsw #Facepainting on that gloomy Saturday. Shout out to all the amazing… instagram.com/p/BQ_V8Y3Dx70/ – at Sydney, New South Wales
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What do I do when I go to to Australia for work. Find a CF walk. #curecf #65k465roses 📷: @sluggers09
Image from CF NSW (@CFNSW)
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Team Leash claiming their territory at the @65K_4_65Roses Walkathon. Welcome back team! #65kroses #teamLeash – at Sydney, New South Wales
Image from CF NSW (@CFNSW)
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Team Libby and Kenzie powering through the 65k 4 65 Roses Walkathon 👏 #65kroses #cf #walkforcf
Image from CF NSW (@CFNSW)
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Ruby and Co. doing the rounds at the @65K_4_65Roses Walkathon ^_^ #65kroses
Image from CF NSW (@CFNSW)
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The brave souls about to kick off the 65km @65K_4_65Roses Walkathon. Good luck guys! #65kroses #cf
Image from CF NSW (@CFNSW)
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Hi friends! walking to help find a cure for cystic fibrosis this weekend! Help me reach my goal of $700! @cfnsw 65kroses2017.everydayhero.co…
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And the offical registration # for the @65K_4_65Roses Walkathon is 1156! You can still register on the day, visit 65kroses.com – at Canberra, Australian Capital Territory
Image from CF NSW (@CFNSW)
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Social worker Lauren is doing #65kfor65roses to help raise awareness for the incurable condition. Help by visiting 65kroses.com
Image from Westmead Kids (@westmeadkids)
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Online registrations for Saturday's @65K_4_65Roses Walkathon are closing MIDNIGHT TOMORROW (Wednesday). Register at 65kroses.com – at Canberra, Australian Capital Territory
We're looking volunteers to help out at the @65K_4_65Roses Walkathon this Sat Feb 25th. If you're keen, contact us via [email protected]
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Just renewed my @CFNSW membership & highly encourage others to join & support the cause too.
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Vlog of the #Orkambi and #kalydeco protest for #cysticfibrosis at Parliament. Check it out. youtu.be/UEL132rgfqw
Image from Lauren Rowe (@RejectingRowe)
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Great wrap of yesterday's #cfprotest in Canberra. Thanks to everyone involved! #WeNeedOrkambi facebook.com/WINNewsCanberra… – at Canberra, Australian Capital Territory
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Official statement from @VertexPharma, confirming that the 30 young kids waiting for Kalydeco will have it this week! #YesToKalydeco
Image from YesToTrikafta (@TrikaftaAus)
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Sonia Marshall with her daughter Evie who desperately needs life-saving drug #Orkambi to treat cystic fibrosis #WeNeedOrkambi #auspol – at Canberra, Australian Capital Territory
Image from CF NSW (@CFNSW)
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