Rare disease advocate for Familial Chylomicronemia Syndrome. https://xitter.cf/t.co/E9tpMxIHOX Run, read, meditate, write: https://xitter.cf/t.co/u53S0fsPhV

Seattle, WA
Joined March 2008
大家都在发 Muse邀请码互助 我的是 HIQG13 但这个互助原理是啥呢?
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The 3rd Annual FCS Summit brought our amazing FCS community together in Milwaukee for learning, laughter, and shared experiences. From inspiring presentations to meaningful conversations, this Summit reminded us how strong we are when we come together. #LivingWithFCS
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FCS is a disorder in which the body cannot properly break down triglycerides. The Foundation for Triglyceride Disorders helps connect patients with caregivers and clinicians to provide education, resources, and community. ow.ly/zCH450ZV97f #FCS #TGDisorders #livingwithFCS
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Fred Saremi Memorial FCS Foundation Virtual 5K 💙 #livingwithFCS
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Today, celebrating 10 years of progress, the FCS Foundation officially becomes The Foundation for Triglyceride Disorders 🎉 Same mission. Bigger reach — FCS, MCS, sHTG, TiP & more. No one should navigate this alone. tgdisorders.com/ #TriglyceridDisorders #FCSFoundation
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Join Community Connections 💬 A supportive virtual space for people living with #FCS & caregivers, guided by rare disease psychologist Dr. Al Freedman. 🗓 May 13, 2026 | 6–7:30 PM ET Connect, share, or just listen. ow.ly/kGn450YYjtt Thanks to @ionispharma & @ArrowheadPharma
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Heading to Atlanta for the American Medical Informatics Association annual symposium and will present our work on machine learning models predicting the needs of ICU patients tomorrow. #Amia2025
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折返点 2540 十五年前的那场 5K 和半马 conge.livingwithfcs.org/2025…
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Qingyang Li retweeted
We’re thrilled our medicine for familial chylomicronemia syndrome (FCS) has been shortlisted for the @Citeline 2025 #ScripAwards in the Best New Drug Award category. We are honored to be recognized! citeline.com/en/awards/scrip… #LivingwithFCS #RareDisease
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Qingyang Li retweeted
Severe hypertriglyceridemia (sHTG) occurs when triglycerides exceed 500 mg/dL, posing risks such as acute pancreatitis and cardiovascular disease. HCPs, learn more: tgaware.com/associated-risks…
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2025 八月读自由主义 魔法 蘑菇 ADHD AI …… 10 本 conge.livingwithfcs.org/2025…
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折返点 2537 报名了波士顿马拉松 conge.livingwithfcs.org/2025…
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