#DarrenCantWaite CF sufferer fighting to get #trikafta @ 13% lung capacity.
Joined September 2012
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Darren Waite retweeted
Vitalik Buterin, the creator of #ethereum , donated most of his wealth (more than $1 billion) to a covid charity.
While #WeLoveYouElon is trending, it's worth remembering what a *real* hero looks like.
(Yes, a real hero looks even nerdier than Elon. 😘)
youtu.be/XW0QZmtbjvs
Darren Waite retweeted
Totally agree, have been trying for a week to get groceries for my husband @daz6151. We're trying to isolate to keep safe, but if I have to go to supermarket, isn't all that hard work out the window, and we're once again at risk!
@cftrust @sainsburys HELP 😢👇🏻
People with #cysticfibrosis need food,
Not charity bits & bobs from well intentioned neighbours
It’s not sustainable @DavidRamCFT please put a call in to the grocery chief executives as CF are already being sacrificed enough no clinics/admissions?
Darren Waite retweeted
I don't understand . As usual, I invite an explanation from experts because I am NOT an expert. But shouldn't as many people as possible be tested - especially people with a known contact - but also random tests - to establish precisely what is happening in the population?
Darren Waite retweeted
As #Budget2020 is upon us, is it strange that I’m extremely preoccupied with the Chancellors Rishi Sunak magically changing folder colour. Watch closely.
Just starting my Trikafta today. Well done you i bet you're feeling amazing.
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Thank you @VertexPharma for giving me a lifeline. I'm exhausted, but happy. Thanks for the support everybody! And thank you team Frimley! @strawfie @ChrisMRiches @SimonBamber1 @CF_Foundation @cftrust
We got the call! @daz6151 has been granted compassionate grounds for #trikafta What a victory! Now we wait for the drug. Will keep u posted! Thx @VertexPharma words cannot express our gratitude. Thx for supporting us, ur all amazing!
#DarrenCantWaite @ChrisMRiches @SimonBamber1
Still waiting on @VertexPharma to decide my fate. My life is in their hands, if they could only permit me to have #trikafta on compassionate grounds it will give me a second chance at life. Time is not on my side #DarrenCantWaite @JaneWaite19 @SimonBamber1 @ChrisMRiches
