Researching distance caring - experiences of distance carers & experiences of staying in touch from a distance.
Hull, England
Joined March 2017
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We are researching the experiences of people who 'care from a distance' - see reports from our research to date at hull.ac.uk/work-with-us/rese… & hull.ac.uk/work-with-us/rese…
Distance Carers retweeted
Our distance #carer research is looking for a research fellow to work on our @NIHRresearch funded study. See below for more details.
We are recruiting a Research Fellow to join us at @ILD_Greenwich to work full-time on an 18-month @NIHRresearch funded project around distance dementia care (working with a fab research team!).
Job description, person specification, and applications here: jobs.gre.ac.uk/vacancy.aspx?…
So important to shine a light on homecare in research. Delighted to see our colleague Cat Forward sharing findings of our research into homecare at end of life ⬇️
Looking forward to our upcoming Homecare Research Forum on 7th May, 2-4pm.
You can now register for your FREE place here: eventbrite.com/e/home-care-r…
Talks will focus on the 'SUPPORTED' study (end of life care), and forging relationships between homecare workers and researchers.
Distance Carers retweeted
Looking forward to our upcoming Homecare Research Forum on 7th May, 2-4pm.
You can now register for your FREE place here: eventbrite.com/e/home-care-r…
Talks will focus on the 'SUPPORTED' study (end of life care), and forging relationships between homecare workers and researchers.
Siblings can often get overlooked. Thank you to Sibs for introducing us to many #sibling carers who have supported our distance carer research, and to everyone who has shared their experiences. Best #nationalsiblingsday2025 to you all!
Happy #NationalSiblingsDay2025! We are celebrating siblings who have grown up with a disabled or neurodiverse brother or sister. Join the conversation and tell us your #ItsaSiblingThing
sibs.org.uk/nsd/#nsd-involve…
ALT Purple text on a yellow background reads: National Siblings Day, 10th April, visit sibs.org.uk
This is needs to be heard far and wide and calls attention to a deep fear for carers and those they support. We need to think the unthinkable and how people will manage the in the most dreadful of emergencies
shorturl.at/Oz6BN
Distance Carers retweeted
‘Nobody found him in time’: how neglect and stress led to the deaths of a full-time carer and his son theguardian.com/society/ng-i…
Distance Carers retweeted
It is important to be aware of emotions during the Christmas period, especially when music is played as particular songs may stir memories which can be both positive and negative 🎶
#ChristmasEmotions #ChristmasMemories #EmotionalAwareness #MindfulMoments #Dementia
Distance Carers retweeted
#Diversealz on Thursday: 10 things you learned caring for or interacting with somebody living with dementia. 8pmGMT/3pmET
Distance Carers retweeted
Exciting research opportunities 🔽
Looking for a new job challenge? Interested in joining us?
We need 4 new staff to join our research team @KingstonUni
See thread for details:
1. Research Fellow (Experienced project manager)
2. Research Associate (Engagement manager)
3. 2 researchers with a learning disability
Distance Carers retweeted
From next week, the kids are off school for 6.5 wks. Out of the numerous local summer camps on offer this summer, the play opportunities for disabled children are once again practically non existent. My son is now 15 and sadly this has been our reality for over a decade now.
ALT A boy with black hair and dark skin is sitting on a red trike and peddling away from the camera.
Distance Carers retweeted
Short breaks are fundamental. They hold families together & prevent them from reaching crisis.
For disabled children, they open up a new world, more independence, a chance to try new things.
69% of families receive no support outside the home.
This is an affront to society
Thanks for referencing our work. Which can be seen here - hull.ac.uk/work-with-us/rese…
Although conducted during the COVID pandemic, many findings remain relevant for any carers when apart from the person they support
Like distance care , supported care or a move to live in a residential care home distance will matter. In the end it will become another locality. Also about familarity and access (how far away). Anyone interested should look @dist_care study. #diversealz
Distance Carers retweeted
Caring for someone with #dementia can be overwhelming. 💙
This #CarersWeek, we're raising awareness of the challenges carers face, and how we can all help out.
What are your best tips? Tag a friend who might need them! 👇
ALT Pink border and pink and black text. Six illustrations. Text reads, Six ways to support someone who cares for a person with dementia. Picking up shopping (underneath an illustration of a carrier bag), being their lift to appointments (underneath an illustration of a hospital), cleaning the house (underneath an illustration of a spray cleaning bottle and rubber glove), babysitting their children (underneath an illustration of two adults and a child), cooking them dinner (underneath an illustration of a pot of soup), and providing a listening ear (underneath an illustration of a face smiling and listening).
Distance Carers retweeted
It's #carersweek24 - carers if a loved one moves to a #carehome, you are still their carer. You are still the person who knows their care best. You are an important part of their life. But you also need support, someone to care about you. Good care involves everyone.