#Endometriosis APPG official twitter account. Chaired by Hannah Bardell MP & Emma Hardy MP. Email us on: [email protected]
UK
Joined March 2020
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APPG on Endometriosis retweeted
#JobOfTheWeek: #Policy and #PublicAffairs Officer @EndometriosisUK £28,000 - £32,000 pro rata DOE (including #London Weighting) | #LondonBridge --> details & apply through the #PubAffairs industry jobs board: bit.ly/3XAeY19
Watch live from 16.30: parliamentlive.tv/Event/Inde….
The APPG recognises the need to improve employment rights & support for all with #endometriosis.
Join me for the fertility treatment and employment rights debate! #FertilityAmbassador #FertilityWorkplacePledge #Infertility #Fertility #FertilityInTheCity #TwoCities teapaw.org/i/broadcasts/1mrGmkOgR…
The APPG is meeting with #endometriosis patient group representatives this afternoon in #Westminster and online. We want to hear their concerns in order to inform our work in parliament. #engagement #WomensHealth
We have rescheduled our next meeting at which #endometriosis patient group representatives are invited to attend. Meeting will now take place on Tues 25 October. More details here: endometriosis-uk.org/appg-ho… #engagement
On behalf of the Endometriosis APPG, we are saddened to hear of the death of Her Majesty the Queen. Parliament will be adjourned for 10 days from Monday, and we will consequently be rearranging our upcoming meeting. We will update you in due course with a new meeting date.
We want to engage with #endometriosis community groups to inform our work in UK Parliament including at our next meeting on Weds 21 Sept. Organisations & groups representing those with endometriosis, please get in touch. More info here: tinyurl.com/u3c2c86j Thanks! #outreach
Thank you Nadine for sharing your #endometriosis experience. If you have received treatment in England, please fill out this survey to have your say on the future of care in England.
We're encouraging women to share their stories to help shape the future women's health strategy.
Watch Nadine share her experience of endometriosis 👇
Have your say: gov.uk/government/consultati…
#TalkWomensHealth @EndometriosisUK
We urge everyone with #endometriosis to complete this survey and have your say. We will be working with the @DHSCgovuk to ensure endometriosis plays a key part in the outcomes of the Inquiry
Many women struggle with heavy and painful periods, yet this can be overlooked by healthcare professionals.
Help us shape the future of women’s health care so women's health and care needs are better met.
Have your say today 👇🏾
gov.uk/government/consultati…
#TalkWomensHealth
APPG on Endometriosis retweeted
Great coverage on BBC news of the clinical trial being led by @horne_research at @exppect
APPG on Endometriosis retweeted
1 in10 women live with endometriosis- a condition where tissue similar to the lining of the womb grows elsewhere inside the body. It can be incredibly painful & take years to diagnose. Treatment hasn't improved in 10yrs. Until now? #EndometriosisAwarenessMonth @EndometriosisUK
One of the calls in our APPG report on #endometriosis was to call for more research into #endometriosis. Great to see this discussed on @BBCNews
"Endometriosis: How new treatment 'changed my life": @BBCNews: bbc.co.uk/news/health-562455…
APPG on Endometriosis retweeted
#Endometriosis can have just as much of an impact on mental health as it does on physical health. To mark #EndometriosisAwarenessMonth, today I asked for a debate on this subject.
@endoAPPG
@EndometriosisUK
Thank you so much to all the amazing speakers at the APPG meeting last night. The event will be up on YouTube later this week for anyone who missed it. @cystersgroup @DrLarisaTV, @EndometriosisUK and Amy James Kelly
Next up @neelamheera from @cystersgroup, who is discussing the urgent need for research into additional barriers faced by those from under represented groups.
APPG on Endometriosis retweeted
The main focus of awareness month is to break down that stigma. Workplaces as well as the government need to recognise that 10% of their female (or those assigned female at birth) will have #endometriosis
APPG on Endometriosis retweeted
Emma Cox, CEO of @EndometriosisUK discusses that 80% of 16-24 would put off going to the GP about #endometriosis. That’s why raising awareness around this topic is so important to ensure symptoms aren’t minimised.
Sir David Amess MP is today calling on the Government to make a commitment to reduce diagnosis time for #endometriosis with a target of an average of 4 years or less by 2025, and a year or less by 2030. @amessd_southend
Sir David Amess MP @amessd_southend says it is absolutely unacceptable that diagnosis for #endometriosis takes on average 8 years, and the APPG is committed to turning this around.
APPG on Endometriosis retweeted
March is Endometriosis Awareness Month and with research from @EndometriosisUK showing that 62% of women would put off going to the doctor if they were having symptoms of endometriosis, it’s essential that we continue to raise awareness and understanding of this condition. (1/2)
Did you catch @DrLarisaTV on @thismorning to talk about #endometriosis? Dr Larisa will be joining the APPG this afternoon to talk about the impact of the pandemic on endometriosis patients' mental health.
Watch the interview here: itv.com/thismorning/articles…
