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Natural world, dogs, gardening, science, health, sci & fi & food for the soul. Chronic illness review "0/10 Do Not Recommend"

Leeds, UK
Joined April 2013
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Listened to R4 The Life Scientific by chance today. It featured one of our senior oncologists from Leeds. Spoke abt closure of Cookridge Hospital & move to the new oncol wing at St James. That was the most intensive work I've ever done & got exhaustion burnout that fuelled my ME.
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I've still got tears in my eyes from laughing so much
7 Days Until Halloween 🍂🎃🍂
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One for the nuclear physics aficionados*... (*I could've said nerds, and been equally correct)
I used to walk past this blue plaque on a regular basis.
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It's fun to read @TanteRos 's dream reports, so thought I'd mention mine from last night. I dreamed someone made a round of tea & I was sad not to be included. But I was. Yes I dreamt the most British* thing ever 😆 (*could also be Irish if it was Barry's tea)
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Excellent news: found out yesterday that my application for NHS Ill Health Retirement has been successful. Both Tiers. Am relieved, grateful, & utterly exhausted. Odd to read the letter, I feel I've both won and lost. Won this support, but lost my career & previous life. #mecfs
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Please look at this scam described by Whitney in his post below, scammers are posing as a charity fundraiser platform based in the USA. Please can you stop their operation so they can't defraud anyone. Thanks @Cloudflare @FTC IC3 via @FBI @stripe
‼️Someone is scamming ME/CFS patients in my name ‼️ I need your help to report this scam to the authorities. I'm already having a really bad day and can't possibly do this myself. We need to stop these f**rs. Scamming ME/CFS patients for an already underfunded illness? How low can you get. If you donated to the fraudulent campaign please contact your card issuer immediately and pleaase consider donating to my legitimate campaign, Ron needs the funds. Here is my LEGITMATE fundraiser on Spotfund spot.fund/lgwxsktsc Here is the fake one, you can see the domain isn't even spelled right humanunityfoundation.org/cam… It's spelled "humanunity" This is what chatgpt said to do, with a script you can copy paste and send to these organizations. Please help and let's stop them and hopefully F them up a bit😉 SCRIPT ========= I am reporting a fraudulent fundraising campaign impersonating ME/CFS advocate Whitney Dafoe and exploiting his family’s work. Whitney Dafoe has confirmed that he did not create, authorize, approve, or benefit from this campaign. “Whitney Callister,” the listed organizer, has no authorization to raise money for Whitney, Dr. Ronald W. Davis, or their ME/CFS research. Fraudulent campaign: humanunityfoundation.org/cam… Whitney Dafoe’s legitimate fundraiser: spot.fund/lgwxsktsc The fraudulent page claims to have raised $41,200 from 428 donors and falsely labels the campaign “verified.” Its checkout identifies Stripe as its payment processor. The website provides no EIN, identifiable officers, physical address, or specific state of incorporation. Its domain was registered on August 3, 2026, despite displaying campaign and organizer activity supposedly dating from before that. This campaign is deceiving vulnerable ME/CFS patients and diverting donations intended for desperately needed research. Please immediately: Disable the campaign and prevent further donations. Freeze or hold all related funds and payouts. Preserve the organizer’s identity-verification, banking, transaction, access-log, and IP records for law enforcement. Investigate the entire Human Unity Foundation website for additional fraudulent campaigns. Provide a case or reference number if possible. ======= Please report it to these websites and let us know if you have. But the more reports they get the better so they act faster. It would be good if these people faced conseqeuences so it did not happen again. REPORT HERE: Do these today, in this order 1. Preserve evidence before the site changes. Save full-page screenshots/PDFs of the campaign, checkout showing Stripe, About, Contact, Terms, and refund pages. Preserve your correspondence, dates, headers, and the legitimate Spotfund campaign. Do not send the suspicious site identification documents. 2. Report it to Stripe immediately. Ask Stripe to disable payment collection, hold payouts, and preserve the merchant’s identity-verification, bank, IP, transaction, and account records. Use Stripe’s complaint form. Stripe’s own guidance says fraudulent transactions should also be disputed through the cardholder’s bank. Stripe fraud guidance 3. File an FBI IC3 complaint. The FBI specifically directs charity-fraud reports to IC3, and IC3 says to report even when uncertain whether a matter qualifies. File with IC3 and see the FBI charity-fraud guidance. 4. File with California’s Attorney General. The page claims Palo Alto, California, and California investigates fraudulent charitable solicitations. Use the California charity complaint form information. 5. Report the infrastructure. Report the complete campaign URL—not merely the homepage—to Dynadot, the domain registrar, and Cloudflare. Select fraud/phishing/impersonation as applicable. 6. Report it to the FTC: ReportFraud.ftc.gov. ‼️ Please repost and share! 🤬🤬‼️
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Some healing words for diminished lives.
Søren Kierkegaard, from a letter to his cousin Hans Peter in 1848... "Above all, do not forget your duty to love yourself; do not permit the fact that you have been set apart from life in a way, been prevented from participating actively in it, and that you are superflous in the obtruse eyes of a busy world, above all, do not permit this to deprive you of your idea of yourself, as if your life, if lived in inwardness, did not have just as much meaning and worth as that of any human being in the eyes of all-wise Governance, and considerably more than the busy, busiest haste of busy-ness — busy with wasting life and losing itself." The Yerres • Effect of Rain (1875) 🎨 Gustave Caillebotte
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I'll use the same mthod to watch this eclipse as back in 1999 when I was at Jodrell Bank. Use a pair of binocs to project the suns image onto a piece of card DO NOT look thro binocs! Just hold in hands or tripod & put the card ~12" behind the eyepiece. #solareclipse #eclipse
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Looking forward to seeing the major partial solar eclipse this evening. ~92% in Yorkshire. Weather gods are smiling (minor miracle for the UK) Just need a view to Western horizon for 6-8pm, max coverage around 7pm, & hoping for a body that co-operates 😀 🌞🌒
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Wow. Just had a red kite glide over my head, only about 10 ft up. It flew & soared in circles over the gardens before heading for the local fields. So glad I didnt put off hanging out the washing now! Watched it for minutes till it went.
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The local woodpigeons were noping the heck out of the way 😄 I could easily see the feather colours on its wings, belly & tail. We have a good population now after the initial releases years back in the Harewood House estate. Gorgeous bird!
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Dear radio & tv prog makers * Put intro titles/music at the start of the prog, not several minutes in * Don't call your show after a 'witty' play on your name (Radio 4 looking at you) * They're progs or shows, not podcasts or (shudder) visualised podcasts
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* And please stop filling out progs with 10 minutes of "here's what is coming up", followed by 10 minutes of recap and very little advancing of the actual content. No I am not at all annoyed & needing to get that off my chest, honest 😆
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* If it airs on live radio/tv, don't call it a podcast & ask me to subscribe. It just makes me want to throw things at the radio. * If a trailer for it airs on live radio or tv, tell me when the next episode is on live media, don't just say where it can be streamed. (BBC yes you)
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Dear Twixer overlords, please stop your feed from jumping around so persistently that it makes any attempt to hit the Like button an extreme sport. It shouldnt be harder than trying to sharpshoot a fly off a transcontinental aircraft. #X #Twitter #Really?
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I've been contacted by Dr Taylor's clinic & hopefully the letter issue can be resolved soon & I can continue with my meds in due course.
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To be clear, I Iike Dr T, but this shouldn't mean that I suffer detriment. Pharmacy wont prescribe w'out letter, GP cant monitor antivirals or help w POTS. I'm on zero pay as off sick from work yet am £400 down with nothing to show for it. I am so utterly fed up & disillusioned.
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This revolving door of Prime Ministers is starting to remind me of Dilbert's "Bungee Boss".
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I don't often have sparkling water, so forgot that adding D-ribose to anything fizzy creates a soda volcano! No doubt will do so again next year the next time I have it as I'll have forgotten again 😄
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