No. 1 Job is Mom. Fighting for access for my developmentally disabled kid. Attending lacrosse games for my neurotypical. This is a personal account.
Bethesda, MD
Joined July 2012
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@MCPS @mocoboe gives McKight $1.3 million for being a bad superintendent, but they want to cut my developmentally disabled kid’s PT from once a week to once a month. She still can’t consistently walk up and down stairs without assistance. @ksglassman
Christina Hartman retweeted
Christina Hartman and Matthew Lange-Geise are looking for a special education school for their 10-year-old daughter. It could take years, experts say. usatoday.com/story/life/heal…
Christina Hartman retweeted
Every day brings new challenges for Charlotte and her family. Living with the rare Ogden syndrome and pica, even simple milestones can be hard-won victories. See her story. Click the link below to see all of the photos ⬇️
📸 Josh Morgan, USA TODAY usatoday.com/picture-gallery…
ALT Their daughter needs 24/7 care. Here’s what daily life is like
Christina Hartman retweeted
“Thank you, @SecKennedy, for your leadership in adding Duchenne Muscular Dystrophy and Metachromatic Leukodystrophy to the Recommended Uniform Screening Panel. Every child deserves the healthiest possible start. Early detection brings earlier care, better outcomes, and more hope for families nationwide.” — Dr. Stephanie Haridpolos, Chief of Staff and Senior Advisor
Christina Hartman retweeted
sad to report that a day program for special needs adults in Manassas, VA, tells us they will close by end of the week. Here is our @NewsHour profile of them in January as they desperately tried to stay open in the face of federal budget cuts pbs.org/newshour/show/how-pe…
@mkorman @MontCoExec @MCDOTNow @ReadyMontgomery @311MC311 just called to ask for help and was told by operator there is nothing you can do to help our profoundly disabled daughter access her handicapped parking space. That there are”doctors” who need help. Is this true?
We put in the formal service request yesterday as advised and were told someone would help. Called operator to provide more detail and she was adamant they could not help.
@MontgomeryCoMD @311MC311 @MCDOTNow @MontCoExec @mkorman can we get the plows back out to clear a second lane on Grant St? Need access to disabled daughter’s handicapped space. Also her caretaker cannot drive here as there is no street parking without another lane.
@MontgomeryCoMD @311MC311 @MCDOTNow @MontCoExec @mkorman can this be prioritized today? Still nothing after almost 24 hours: Service request number: 1611758239/Status: In Progress/SubStatus: Fulfillment at Department/Topic: Report Unplowed or Missed Street
Christina Hartman retweeted
This week, @SecKennedy approved adding Duchenne muscular dystrophy and metachromatic leukodystrophy to the Recommended Uniform Screening Panel for newborns, allowing earlier treatment and more hope for families.
Thank you to @SenatorWicker, @SenKatieBritt, @SenRonJohnson, @RepGusBilirakis, and the many patient advocates who joined the celebration.
Received this in the mail today from @MontgomeryCoMD @MCPS - why are you screening the kid in the SCB program for students with severe and profound disabilities for the gifted and talented program? What a sick joke. @Marc_Elrich @CMJawando
Another weeks on the books in the Kafkaesque world of dealing with a severely developmentally disabled child and @MCPS - at her IEP meeting this week, the school team told us they think Char can count to 20. If we don’t laugh, we’ll cry 😂😂😂
A school can’t accommodate a child’s wheelchair. He’s missed weeks of class. Thank you @NicoleAsbury and @washingtonpost for telling this story. washingtonpost.com/dc-md-va/…
@USPS @USPSHelp could you please remove your truck from my disabled daughter’s handicapped spot? We have reported to @MontgomeryCoMD
