Clinical Nurse, PhD, CEO of The Australian POTS Foundation, advocate for those with POTS and LongCOVID
Adelaide, South Australia
Joined August 2011
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Marie-Claire Seeley retweeted
POTS identified in nearly two-thirds of Long COVID patients
'Published in Journal of American Heart Association..study is believed to be the first to look at autonomic symptoms, heart rate response, inflammatory markers & autoantibodies in people w/LC'
news-medical.net/news/202609…
Massive congratulations to Dr @mcseeley on award of the 2025 @thecsanz @CSANZCNC Cardiovascular Nursing Prize.
For research on POTS registry.
Congratulations on such impactful work - kudos! ❤️ #csanz2025
New 🇦🇺 data from our POTS registry: teens & adults experience POTS differently.
- Teens: worse orthostatic symptoms
- Adults: more gut & bladder issues
Both report = poor QoL.
Proud to author this work.
👉 doi.org/10.5694/mja2.52710
@ADARC_UoA @DH_Lau @sahmriAU @AustralianPots
Marie-Claire Seeley retweeted
🚨 New research supported by @AustralianPots published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use.
Yet face longer diagnostic delays.
Led by @mcseeley @CelineGallaghe2 @DH_Lau
🔗bit.ly/4j3y0aH
Proud to share our latest work showing that women with POTS experience worse autonomic symptoms and longer diagnostic delays — despite similar anxiety and health-seeking behaviour as men.
Time to address the clinician-side of the equation.
See post 👇
#POTS #WomensHealth
🚨 New research supported by @AustralianPots published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use.
Yet face longer diagnostic delays.
Led by @mcseeley @CelineGallaghe2 @DH_Lau
🔗bit.ly/4j3y0aH
Marie-Claire Seeley retweeted
Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction
go.nature.com/3ElLqQa
New from @Stanford_Neuro Among 491 individuals with no prior history of #autonomic disorders:
🔹 44% developed an autonomic disorder after COVID-19
🔹 75% of these had new onset POTS
link.springer.com/article/10…
Marie-Claire Seeley retweeted
While working on a new paper, I've been re-reading old papers on #POTS: one is from Dr. Low et al of Mayo Clinic who was one of the first to describe it. Years later we have crazy debates on what POTS is, with one senior researcher recently saying in a meeting that "it's a controversial diagnosis" while some other physicians attempt to lump it with functional neurologic disorders. This paragraph should be re-read by all of us in this field to remind ourselves what POTS really is: a restricted form of autonomic #neuropathy in at least 50% of patients.
pmc.ncbi.nlm.nih.gov/article…
Marie-Claire Seeley retweeted
Cardiovascular outcomes in long COVID-19: a systematic review and meta-analysis
🔥Meta-analysis including nearly 10 million patients, only confirming what we already know:
➡️Long COVID-19 was associated with a higher risk of
- thromboembolic disorders [HR 3.12 (1.60, 6.08)],
- coronary heart disease [HR 1.61 (1.13, 2.31)],
- stroke [HR 1.71 (1.07,2.72)],
- arrhythmia [HR 1.60 (1.13, 2.26)],
- cardiomyopathy [HR 1.71 (1.12, 2.61)],
- myocarditis [HR 6.11 (4.17,8.94)],
- hypertension [HR 1.70 (1.56, 1.85)],
- heart failure [HR 1.72 (1.15,2.59)]
- and cardiogenic shock [HR 2.09 (1.53,2.86)] compared to non-COVID-19 controls.
➡️The risk of cardiovascular disease increased significantly four weeks or more after recovering from acute COVID-19
➡️This meta-analysis showed that the cardiovascular risk burden of long-term COVID-19 is significant and spans multiple categories of cardiovascular disease (ischemic and non-ischemic heart disease, arrhythmias, etc.).
➡️Care for survivors of COVID-19 after acute attack should include attention to cardiovascular health and disease.
🤔Caution, study has some well noted limitations and only covers ONE C19 infection!
frontiersin.org/journals/car…
Marie-Claire Seeley retweeted
Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction
🔥Elegant and interesting Australian study on POTS/Cognitive dysfunction(56 patients). #LC
➡️Moderate to severe autonomic dysfunction in 75%
➡️Abnormal cerebral blood flow (CBF) was seen in 61%
➡️There is a high prevalence of reduced cerebral perfusion in those with POTS, which is detectable with supine brain SPECT imaging and is associated with diminished quality of life.
➡️The most frequently affected areas are prefrontal lateral and sensorimotor cortices.🤔🤔🤔
➡️Reduced cerebral perfusion appears to be more prevalent in those with comorbid joint hypermobility syndrome and independent of POTS triggers.
➡️These results highlight the need for further research to delineate the etiology and mechanistic pathways underlying neurovascular dysfunction in post-viral and autonomic syndromes including long-COVID.
‼️And again…….its not “between the ears” or FND! Please take this seriously! Don’t let SarsCoV2 f.ck with your brains and Vagal nerve!
nature.com/articles/s41598-0…
Marie-Claire Seeley retweeted
REVEALING the BRAIN'S HIDDEN STRUGGLE after SARS-COV-2 INFECTION :
POTS (postural orthostatic tachycardia syndrome) Patients Show Reduced Cerebral Blood Flow
Thanks @atranscendedman
nature.com/articles/s41598-0…
Thrilled to share our published study on cerebral hypoperfusion in #POTS! Findings highlight key implications for clinical management and future research into autonomic disorders.
Read more: rdcu.be/d7UFW
@sahmriAU @CelineGallaghe2 @DH_Lau @ADARC_UoA #Dysautonomia
Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction
🔥Elegant and interesting Australian study on POTS/Cognitive dysfunction(56 patients). #LC
➡️Moderate to severe autonomic dysfunction in 75%
➡️Abnormal cerebral blood flow (CBF) was seen in 61%
➡️There is a high prevalence of reduced cerebral perfusion in those with POTS, which is detectable with supine brain SPECT imaging and is associated with diminished quality of life.
➡️The most frequently affected areas are prefrontal lateral and sensorimotor cortices.🤔🤔🤔
➡️Reduced cerebral perfusion appears to be more prevalent in those with comorbid joint hypermobility syndrome and independent of POTS triggers.
➡️These results highlight the need for further research to delineate the etiology and mechanistic pathways underlying neurovascular dysfunction in post-viral and autonomic syndromes including long-COVID.
‼️And again…….its not “between the ears” or FND! Please take this seriously! Don’t let SarsCoV2 f.ck with your brains and Vagal nerve!
nature.com/articles/s41598-0…
An early Christmas present to all those with #POTS in Australia! @AustralianPots
Big news! 🇦🇺 officially confirms a unique ICD code for #POTS – a huge win for recognition & health policy reform.
🙏to @mcseeley & @celinegallagher for tireless advocacy & @Dysautonomia & Dr Jeff Boris for paving the way in the US.
instagram.com/p/DDq6H4ZvGkN/…
#POTS #Dysautonomia
Love this from @CrabbBrendan @MJLScoullar et.al. “increased awareness of the biomedical basis of #longCOVID should prompt clinicians to take patients more seriously.” insightplus.mja.com.au/2024/…
Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability & QoL impacts for those with #POTS . 🙏 for the support of @SAHMRI_Heart @AustralianPots @ADARC_UoA @UniofAdelaide @SACVRN . Let’s drive change!
All PhD applicants and #POTS researchers in Australia. Applications for the 2025 @AustralianPots research grant and scholarship call close on the 20th December.
📢 Applications are open for our 2025 Research Grant and PhD Top-Up Scholarship, supporting innovative research to improve the lives of people with POTS in Australia. 💡
🗓️ Applications close: 20th December 2024.
Learn more: potsfoundation.org.au/resear…
@ADARC_UoA @SACVRN @sahmriAU
That’s a wrap for #AAS2024! Thrilled to have received the trainee poster prize for our work on cerebral hypoperfusion in #POTS. Grateful for the recognition and the research shared this year! @ADARC_UoA @AASAutonomic @sahmriAU @RBRCUniSA
Marie-Claire Seeley retweeted
#POTS might be underdiagnosed if doctors don’t test standing response long enough. @TeamSRRaj research shows 5 minutes may not be sufficient. @AASAutonomic
Raj Lab trainee Jaiden Uppal presenting on whether 5 mins is enough to diagnose POTS at the annual AAS meeting! #AAS2024 @AASAutonomic @LibinInstitute @UCalgary @UCalgaryMed @satish_r_raj
