NOAACF (@noaacf) profile picture

NOAACF

@noaacf

The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.

Joined June 2020
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  • Followers114
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Replying to @ManneResearch @LurieChildrens @NUFeinbergMed @SusannaMcColley @NUCATSInstitute
Listen to Dr. McColley, MD, discuss newborn screening and her work promoting equity in early diagnosis and care for #cysticfibrosis on @ManneResearch's In Pursuit podcast. Hosted by Manne Research Institute Prez &CRO @DrPatrickSeed. research.luriechildrens.org/…
Image from Stanley Manne Children's Research Institute (@ManneResearch)
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Thank you so much @JenTaylorCousar and that means the world to me coming from an amazing trailblazer such as you!!!
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I am so honored to be featured by my Alma mater, The University of Arkansas, in this beautifully written article that uniquely highlights and pays homepage to my deep Tuskegee Roots and my quest for health equity!!! news.uark.edu/articles/70592… And the Best is still yet to come! ❤

Tuskegee Roots Inspire Public Policy Alumna's Fight for Health Equality

A graduate of the doctoral program in public policy, Michele Wise Wright has focused her research on health and leadership and participated in several initiatives in healthcare and community develo...

news.uark.edu
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You Rock @JenTaylorCousar !
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I am so honored for @TerryGeneWright and me to join this phenomenal 2024 lineup of cohorts during the American Thoracic Society’s Public Advisory Roundtable (PAR)'s 18th annual Patients & Expert Forum, which will take place on May 18, 2024, in San Diego, Calif! Flyer is below!
Image from NOAACF (@noaacf)
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Timely diagnosis and treatment is essential for infants with #CysticFibrosis and other disorders diagnosed by #NewbornScreening @CF_Foundation @BabysFirstTest_ @ExpectHealthOrg @SaritaEdwards @LurieChildrens @ManneResearch @CDCChronic – at Chicago, IL
Lurie Children's (@LurieChildrens) profile pictureLurie Children's@LurieChildrens21 Sep 2023
Earlier evaluation for cystic fibrosis is associated with better early life nutrition. @manneresearch Learn more luriechildrens.org/CFnewborn…. #newbornscreening #newbornscreeningawarenessmonth #cysticfibrosis
Image from Lurie Children's (@LurieChildrens)
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I'm so excited to feature the @ExpectHealthOrg video from me speaking, alongside Dr. Malika Fair, MD, MPH, FACEP, as the featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" on July 27th!!! youtube.com/watch?v=zajKPpEy…
Casual Conversations, Challenging Topics: Being Black in Healthcare — Patient and Provider Views

Casual Conversations, Challenging Topics: Being Black in Healthcare — Patient and Provider Views

There has been a lot of conversation about Black patients’ experien...

youtube.com
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Oops, you did it again Dr. @JenTaylorCousar and you keep doing!!! I'm (We're) so incredibly proud of you!!!!!!
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“If you were not Black, I’d say you have #CysticFibrosis,” what Dr. Michele Wright’s (@noaacf) then fiance was told by a White physician 17 years before he was diagnosed with CF. #raredisease #healthequity #genetics #DEI #healthdisparities
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Grateful to ⁦@CDCgov⁩ ⁦@CF_Foundation⁩ and The Legacy of Angels Foundation for supporting our work to achieve equity in CF diagnosis ⁦@LurieChildrens⁩ ⁦@ManneResearch⁩ ⁦@noaacf⁩ ⁦@DrMeghanMcGarry⁩ luriechildrens.org/en/news-s…

Diagnosis of Cystic Fibrosis Often Missed or Delayed, Especially in Non-White Infants

Lurie Children’s is leading an awareness campaign that aims to reduce missed or delayed diagnosis of cystic fibrosis after newborn screening, especially in non-White infants. In its first phase, the...

luriechildrens.org
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Interesting Article! Should the medical world reconsider the use of race in medical algorithms? news.yahoo.com/should-the-me… Funds were granted to five organizations to reconsider the use of race in medical algorithms as the medical industry is increasingly scrutinizing centuries...
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Join us on July 27th at 1:00 PM EST to hear Dr. Michele Wright (@noaacf) and Dr. Malika Fair (@AAMCtoday) share their experiences navigating the healthcare system from the Black patient advocate and healthcare provider perspectives. Secure your spot: bit.ly/3Xzm1Iq
Image from Expecting Health (@ExpectHealthOrg)
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I am so excited to join Dr. Malika Fair, MD, MPH, FACEP as a featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" hosted by Expecting Health on Thursday, July 27, 2023, from 1-2 PM EST. us02web.zoom.us/meeting/regi…
Image from NOAACF (@noaacf)
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