Paul Mc Daid (@paulthedaid) header
Paul Mc Daid (@paulthedaid) profile picture

ME/CFS. Determined father. Physics graduate, science nerd, LFC fan. Self-published children's book author. https://teapaw.org/t.co/7r8oTliM40

Joined March 2009
Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)Photo by Paul Mc Daid (@paulthedaid)
I'm having a book launch in 3 weeks time for my debut novel... 😬😬😬 There's a significant chance I wont even be able to make it... BUT, if you're in the Derry area on Thursday the 26th, drop in for some free wine and the chance to win the raffle!
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Paul Mc Daid retweeted
500 Athlete Signatures 🤩⭐️🏅 We’ve had so much interest since our initial athlete letter to the Prime Minister that we’ve now sent a second letter, this time with 500 athletes backing my call to meet with me and fund ME properly (prev 360). Huge names including David Moyes (we know Andy’s an Everton fan 👀), Millie Bright & so many stars from a variety of sports 🙏🏼 I can’t tell you how grateful I am to every single one of you!! Please @andyburnham , take an illness that’s been neglected more than almost anything else seriously 🙏🏼 1.35m people in the country estimated to be impacted, that’s a lot of the vote share!! @UKLabour I know I owe lots of people replies and thanks, please bear with me and thank you so much again ❤️❤️❤️
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Paul Mc Daid retweeted
There’s something that has always struck me about ME/CFS and Long COVID. Many patients experience a worsening of their symptoms after physical exertion, an infection, a poor night’s sleep, or a stressful situation. And for years, this worsening has sometimes been used to suggest that the illness has a psychological origin. But did you know that some of these very same factors can also trigger flares in inflammatory diseases whose biological mechanisms we understand quite well? I want to share a study that I find particularly interesting, because I think it challenges the way we interpret symptom flares in ME/CFS and Long COVID. What if we’ve spent years confusing what triggers a flare with what actually causes the disease? 1/
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Last night I a) Fell asleep AT NIGHT b) Woke up in THE MORNING c) Slept for 8 hours d) Didn't need a sleeping tablet e) Didn't have vivid dreams, nightmares or sleep disruption. This hasn't happened for ten years. Which was nice.
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Paul Mc Daid retweeted
Just reposting this... The ebook is already live and the hard copies will be available mid-November. Exciting!
Very proud to say that my debut novel will be released next month. E-b00k is already live. It's been a huge effort, most of you know why. More details to follow. Exciting! (Oh, I write under a pseudonym. But it's me, I swear!)
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Just reposting this... The ebook is already live and the hard copies will be available mid-November. Exciting!
Very proud to say that my debut novel will be released next month. E-b00k is already live. It's been a huge effort, most of you know why. More details to follow. Exciting! (Oh, I write under a pseudonym. But it's me, I swear!)
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Paul Mc Daid retweeted
Very proud to say that my debut novel will be released next month. E-b00k is already live. It's been a huge effort, most of you know why. More details to follow. Exciting! (Oh, I write under a pseudonym. But it's me, I swear!)
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Very proud to say that my debut novel will be released next month. E-b00k is already live. It's been a huge effort, most of you know why. More details to follow. Exciting! (Oh, I write under a pseudonym. But it's me, I swear!)
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Paul Mc Daid retweeted
We’ve been blown away by the response to my interview with @BBCSport & @KatieFalkingham , thank you so much to everyone who has taken the time to read and engage with it ❤️ millions of views across multiple platforms really is immense. We have since written to @andyburnham , calling on the @UKLabour government to fund research into this horrific illness. I know there’s so much more we could say, but with limited capacity, we’ve tried to focus on the lack of funding, resources in the NHS and how much it’s actually costing the government. As you can see on the slides, it has been drastically underfunded compared to other illnesses and it is currently costing the UK Government far more than it would cost to fund research. ME is most often a post-viral illness. Therefore, since the start of the Covid pandemic, we’ve seen cases increase drastically and they will continue to increase. We need funding into research urgently. With estimates of people with ME being around 1.35 million, this is a lot of lives destroyed. I’ve had thousands of messages on multiple platforms since sharing my story so please bear with me ❤️ Thanks to @ThereForME_UK and @wecrunchme for the stats.
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Today, after many years of missing out, I finally got to go and watch my eldest son play football. 😊 I think it was the proudest day of my life. I tell you what, he's pretty good 'n'all!
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This is all so fucking hard isn’t it? 😔💔
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Paul Mc Daid retweeted
Replying to @carlalockhart
Garvaghy Road is not a misunderstanding. It is a street that was sealed by troops, petrol-bombed, and stained by murder so a parade could claim it. Lockhart calls a line of bowler hats “nothing to fear.” In the 1990s that road was a war zone. Over 2,000 soldiers and police around 4,500 residents. In ten days in July 1998: 2,500+ public-order incidents, 615 attacks on the security forces, 632 petrol bombs. People died in that dispute. Michael McGoldrick, shot by the UVF in 1996 as a warning. Adrian Lamph, a Garvaghy Road worker, murdered in 1998. Robert Hamill, kicked to death in Portadown. Rosemary Nelson, the residents’ solicitor, blown up in her car. Richard, Mark and Jason Quinn — 11, 9 and 8 — burned in their beds on 12 July 1998. Even Drumcree’s chaplain said no road is worth three little boys. That is the history she wants reduced to “Republicans whipping people bussed in.” Rule of law is not a one-way slogan. Today’s walk only exists because it was capped at 35 men, no bands, no supporters. Those limits exist because the old version wrecked the peace. An MP who stood with masked men at Scarva does not get to lecture anyone about dignity. This is dinosaur politics. Younger people are already leaving it behind. They will not spend the next 30 years re-fighting a road that already cost children their lives.
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Rod Liddle leaves a legacy of insulting almost every group of people in the country. Ding dong the **** is dead.
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🥁 Today is #MEAwarenessDay. Advocacy often struggles to make an impact outside the patient community. Please share this short video about #MyalgicEncephalomyelitis, aka #MECFS, with your followers. Ty for your support. 🤝 youtu.be/X6f4zCe2ZtA?si=Z7-H…
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Paul Mc Daid retweeted
Palantir has been granted “unlimited access” to NHS patient data. This is the same company that is involved in mass surveillance and genocide. We did not consent to this. Get Palantir out of our NHS, now.
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Paul Mc Daid retweeted
One of James Strazza’s final poems. released today for #MEAwarenessWeek by his mother Gale Warden. James, a musician and poet, died last week, he had suffered from severe #ME since 2019.
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Paul Mc Daid retweeted
Today is #worldMEday and part of #MEawarenessweek I’ve had this horrific disease since I was 14yrs old. A fit, health and active teenager, until I got a severe gastric flu, and never recovered. For the last 7yrs in various ways my health has been declining, until near death
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Great news about the Genomic research. Happy #MEawarenessday everybody.
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Paul Mc Daid retweeted
Great news from the UK🍾 £4.75 million to do whole-genome sequencing on 6000 DecodeME samples thetimes.com/uk/healthcare/a… (paywall) Unfortunately it's not enough to analyse the full sample People can find out more about SequenceME & donate here megenetics.org.uk/our-projec… #MEcfs #PwME
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Paul Mc Daid retweeted
This is a great way to help someone with #MECFS or #LongCovid if you want a practical way to help after you know someone has overexerted.
Cousin witnessed me unavoidably exerting myself today and declared I would be too tired to get food later. So she sent her husband with this hot dinner this evening. Gf yorkies too - light as air. Felt teary with gratitude. #Family
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