President/CEO of the National Down Syndrome Society. My favorite job, mom to 4 kiddos, one who happens to have Down syndrome. Passionate advocate and leader.

Joined August 2014
Thanks to Currency Surf Craft for donating this amazing 6’8 Twin! This bad boy is going to be raffled off between the two upcoming Summer Of ‘99 cruises! Check out the board and grab your tickets at the merch booth on the ship. All funds raised are going to @NDSS #Creed #CurrencySurfCraft #NDSS #SummerOf99
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“This is what we do as an organization day in and day out. We want to shift the public perception of Down syndrome.” #WDSD24 #EndTheStereotypes 💙💛
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So thankful for the 300 advocates from 39 states who came together today, #WorldDownsSyndromeDay, to push for change. Truly a #WDSD to remember. 💙
After an incredible Hill Day, members of Congress and their staff were invited to a reception to celebrate a successful #WorldDownSyndromeDay! 🏛️💙💛
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NDSS was excited to attend the ribbon cutting for the Advent Health SMILE with Stella Tremonti Down Syndrome Clinic and donor wall unveiling at @adventhealthcfl ! 🥳 We are proud to support this lifespan Down syndrome clinic which is the first of its kind in the Southeast US! 👏
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It was an unforgettable night in NYC honoring Chris Burke and other actors with Down syndrome helping pave the way for more representation in television and film. I can’t thank the NDSS team and these amazing advocates enough. 💙
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Because of Chris 💙
Because of Chris. 💙 Last night was truly A Night Among the Stars! ✨ Thank you so much to everyone who helped us celebrate Chris Burke and 18 other actors who are helping to shift perceptions of the Down syndrome community! We are grateful for every one of you!
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“We’re here to advocate for ourselves and we’re here to help each other out. That’s why we’re here because we can related to each other, help each other grow, and help each other through hard times.” #NDSSAdultSummit
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The SMILE with Stella Tremonti Down Syndrome Clinic is a lifespan clinic that will expand medical care for children and adults with Down syndrome. We are thrilled to have partnered with @AdventHealthCFL, DSACF, & the Tremonti Family to address this critical need in our community!
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Thrilled to be in Cincinnati for our #NDSSAdultSummit! Three days, multiple sessions on topics like aging and caregiving, and even a dance party… let’s get this started!
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Cheering Daniel on through 26.2! This is Daniel’s first World Major and we are so proud to have him as an NDSS Athlete Ambassador ! #TeamNDSS
Daniel gets the crowd going at #TCSNYCMarathon! He is cruising through 26.2 for his first World Major! #DownSyndrome #Downsyndromeawareness
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It was honor to be invited to participate in the @DisneyInstitute Executive Forum. Truly an exceptional learning opportunity from the best at #Disney. Looking forward to working further with this fantastic team. #disney #leadership #executiveleadership #healthcareprofessionals
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NDSS is proud to be a part of this effort along with @DSAofCentralFL. The focus on whole-person, lifespan care and the transition from pediatric to adult providers is one that NDSS hopes can help fill a critical need in many other communities in the years to come.
The SMILE with Stella Tremonti Down Syndrome Clinic fills a crucial gap for some of the estimated 200,000 people in the U.S. with Down syndrome and will allow more children, adults and families to access comprehensive, world-class medical care. Learn more: bit.ly/3s1jeME
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NDSS has made a donation to @AdventHealth to expand services focused on care during and after the transition from pediatric to adult medical care. (1/2)
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So proud of NDSS’ work on this #Barbie doll and the collaboration with the Barbie team at @Mattel! An important first step!
We are thrilled to share that the Barbie with Down syndrome won GOLD for Toy of the Year in Corporate Social Responsibility! 🏆 This doll means so much to our community, and we’re so thankful for the partnership of the @Barbie team at @Mattel for helping this doll come to life!
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NDSS was honored to be invited to the reception commemorating the 50th Anniversary of the Rehabilitation Act and 33rd Anniversary of the Americans with Disabilities Act. 👏 (1/2)
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Another great day at @BelleHavenCC! Thank you to all who attended!
And that’s a wrap! Thank you to everyone who supported and joined us for our annual NDSS Golf Outing at @BelleHavenCC. See you next year!
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Over 500 individuals with Down syndrome’s faces were shown celebrated in a video presentation in the heart of Times Square today, which is the official kickoff of our #NYCBuddyWalk23! 🌆✨This celebration means so much to us and our community— let’s keep it going all day long!
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Join NDSS for our 2024 Down Syndrome Advocacy Conference on March 20 - 21. We are so excited to spend World Down Syndrome Day advocating on Capitol Hill! Celebrate #WorldDownSyndromeDay2024 with us by making YOUR voice heard! 💪Learn more and register at ndss.org/down-syndrome-advoc….
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The Chrises are back! We are thrilled to have Chris Burke joining us again for the NYC Buddy Walk® on 9/9! He has been a cherished member of the NDSS family since 1994 and is known for his starring role as “Corky” in the series Life Goes On. (1/2)
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