Rachael Young (@rachyyoung) header
Rachael Young (@rachyyoung) profile picture

Advocate of Norfolk’s fine food & drink. Systems Thinker. Mum to #CF warrior. Supporter of @cftrust & #LifeSavingDrugs4CF

Norwich
Joined November 2010
Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)Photo by Rachael Young (@rachyyoung)
We were in @EDP24 Monday! Proud of my boy for his maturity & telling his story. His quote “I'm not as worried because I think if you get worried about something it will make it feel worse, I try and stay positive”. Wish I was that strong. #positivemindset #LifeSavingDrugs4CF – at Sant'Anna Arresi, Sardinia
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I met this guy, also called Mark Watson, years ago at a show. He'd had a heart transplant; there were many other complications. We stayed in DM contact as he battled the unthinkable. His having my name reminded me what a lottery health is. Make the most of it while it's there. x
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Rachael Young retweeted
'the only way we're gonna stop trashing the planet is not to be consumers anymore, and to be citizens' @GeorgeMonbiot @frankieboyle #COP26 #ClimateCrisis #ClimateEmergency
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Rachael Young retweeted
I really do want as many people as possible to hear this session. So please spread the word. Today was a real ‘pinch me’ kinda show 😊💙
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Rachael Young retweeted
Who’s coming to the North Norfolk Food & Drink Festival this weekend?
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It’s taken until now for the country to catch up with what Independent SAGE was saying very clearly a week ago. And we’re still not calling it by its name. Britain is the first country in the world to go full herd immunity by mass infection. We should be terrified. I am.
In all the time that @allthecitizens has been broadcasting @IndependentSage’s weekly briefings, I don’t think I’ve ever seen the scientists express such utter disbelief We are embarking on a massive herd immunity experiment. We are truly stepping into the unknown. Please watch.
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I am not okay. As an immune suppressed double lung transplant recipient for whom the vaccine doesn’t work, yesterday and today’s news is a living nightmare. Where is the care for the mental health and freedoms of immune suppressed population?
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Don’t walk home but don’t get a taxi and don’t use public transportation. Don’t refuse to go out with men because they deserve a chance and don’t leave early but don’t go home alone after dark and don’t carry protection because that’s offensive but why didn’t you defend yourself.
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Rachael Young retweeted
Give this a read if needle phobia is stressing you out regarding vaccines
Emily loved her “happy injection day party” and slept all night. I thought I might write here about what worked for her as a young woman with a severe LD & severe needle phobia, in-terms of getting the crucial vaccine.
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Rachael Young retweeted
After sharing with you all that Frances now has COVID - I wrote this piece for the @Telegraph I’d love it if you’d read it 🙏💚 I absolutely LOVE this photo of the two of us DJing at the festival my mum set up for people with Learning Disabilities🌟 bit.ly/2ZnPgAz
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Just posted a photo @ Norwich, Norfolk instagram.com/p/CGIcGkBjGwxR… – at Norwich, England
“You cannot, in an epidemic, just take your own risk. Unfortunately, you’re taking a risk on behalf of everybody else.” Earlier today, @CMO_England Professor Chris Whitty explained why it is still crucial for people to follow the guidance on #coronavirus. Watch:
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Rachael Young retweeted
So pleased and proud as a journalist that after an 18 month campaign in @Daily_Express with 189 articles on CF and telling the stories of 105 different #cysticfibrosis sufferers we can see this day. #dailyexpresscrusade4cf has been best thing I’ve ever been involved in. #kaftrio
Thankyou .@MattHancock .@VertexPharma @NHSEngland @nhsuk @ChrisMRiches @cftrust @blakeydark @10DowningStreet @BorisJohnson I love you all You have made one beautiful young lady. My gorgeous @jess_cranfield very very very happy CF miracle. 💕🤩 Thankyou all #kaftrioNow🤩
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Oh wow! Today is a great day for me and my boy. One I’ve hoped for all his life 🥳
NHS patients with cystic fibrosis will be among the first in Europe to benefit from the new triple therapy for the condition following a landmark deal, NHS Chief Executive Simon Stevens has announced today.
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SO, SO pleased for all the incredibly brave people fighting #CF every day. Also thinking of the 10% this drug won’t help, we will fight on for you 💛 #kaftrio
Replying to @Daily_Express
@Daily_Express ThankYou @ChrisMRiches helping the #cysticfibrosis crusade for CF .@MattHancock Let’s get the job done ✅ My daughter is literally hanging on edge of life Give her a future😢 #KaftrioNow #kaftrio Please RT🙏🏻 @blakeydark @cftrust @VertexPharma @NHSuk
This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay. We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.
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This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay. We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.
‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: ema.europa.eu/en/news/new-me…
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#KaftrioNow 👇🏻👇🏻 ...approved by the ema We have up to 67 days to get an interim deal on @NHSEngland Come on @blakeydark @pmrleahy @VertexPharma $vrtx We need #KaftrioNow for up to 90% of pw #Cysticfibrosis .@MattHancock you promised you’d help #saveCFlives @cftrust @Alidilly
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