The Canadian #Retinoblastoma Research Advisory Board aims to create meaningful, co-directed RB research that is relevant to patients & improves outcomes.
Toronto, Ontario
Joined December 2016
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🎃 Something exciting is brewing!
The retinoblastoma research community is growing, and we’d love for you to be part of it. 🔬
Join researchers, clinicians, patients, families, and advocates working to advance retinoblastoma research.
#Retinoblastoma #RetinoblastomaResearch
A little throwback to April and the 2026 Retinoblastoma Research Symposium! 📸
Still thinking about the incredible people, conversations, ideas, and connections that made this year’s Symposium so special. 🔬💛
#Retinoblastoma #RetinoblastomaResearch #ChildhoodCancer
🔬 Join the Retinoblastoma Research Community!
Are you passionate about advancing retinoblastoma research? Join a growing community of researchers, clinicians, patients, families, and advocates working together to move research forwards.
#Retinoblastoma #rb #ResearchCommunity
🎗️ September is Childhood Cancer Awareness Month.
This month, we stand with children and families affected by childhood cancer, and with the researchers, healthcare professionals, advocates, and communities working toward better outcomes for every child.
Don’t forget to save the date! 📅 The 1RBW Conference is only a few weeks away. Visit the WeCHope website for more information! @worldeyecancerhope
wechope.org/onerbworld/
#1RBW #Retinoblastoma #RetinoblastomaResearch #Conference
Did you know that the Canadian Retinoblastoma Society (@cdnrbsociety) is hosting their annual family picnic next weekend? This is a great chance for RB families to connect. Check out their page or website for more information! #retinoblastoma #community #crbs #family #picnic
Did you know that May 10th to May 16th is #Retinoblastoma #Awareness #Week? This is a very important time in our community as we work to bring attention to #rb. Keep an eye out on our socials this week, as we will be featuring informational resources!
We are only a few days away from the 2026 RB Symposium! Our second line up of panelists will be discussing "The RB Support Network: Stories, Strategies and Resources" on April 19th. Who will be attending this awesome panel?? 🌟 💬 #retinoblastoma #patientengagement #research
We are officially less than one week away from the #2026RetinoblastomaResearchSymposium 🔬 Join us on Saturday April 18 at 12:15pm EST for our first panel discussion. Don't forget to sign up using the link in our bio! #Retinoblastoma #Research #CRRAB #Patientengagement 💡
We are officially TWO weeks away from the retinoblastoma research symposium! 🔬 Don't forget to register using the link in our bio or click here: redcapexternal.research.sick…
Remember: the symposium is an event for the ENTIRE FAMILY! Don't forget to bring your kiddos 🌟 😁
✨ Keynote Announcement! We are so excited to announce our Day 2 Keynote Speaker for the 2026 Symposium: Mitch Hendry. Mitch is a retinoblastoma survivor, long time CRRAB member, and now certified genetic counsellor.
#retinoblastoma #rb #2026RBSymposium #keynotespeaker
As we get closer to the 2026 RB Research Symposium, we wanted to take a look back at some amazing moments from Child Life activities over the years. 💙
Child Life programming will be available for in person attendees in both Toronto and Vancouver this year!
Child life programming will be available at the 2026 Retinoblastoma Research Symposium 💙
Activities will be running Saturday and Sunday for in-person attendees in Toronto and Vancouver.
🔗 Learn more and register at the link in our bio. #retinoblastoma #rb #symposium
March is Child Life Month 💙
This month, we recognize and thank the dedicated child life professionals who help make healthcare more compassionate, supportive, and centered around the needs of children and families.
#ChildLifeMonth #CLS #Retinoblastoma #RB
✨ Keynote Announcement!
We’re excited to share that Dr. Jesse Berry will take the stage as a keynote speaker at the 2026 RB Symposium on Saturday, April 18th.
➡️ Swipe to learn more about Dr. Berry! #retinoblastoma #rb #2026RBSymposium #keynote
⏳ The countdown is on! We are officially 6 weeks away from the 2026 Retinoblastoma Research Symposium. 🎉
Today, we’re proud to announce our 2026 theme: "Evolving Care: Evidence-Based Care with Patient Impact."
#Retinoblastoma #RB #ResearchSymposium #2026RBSymposium #CRRAB
ALT 2026 Retinoblastoma Research Symposium. Evolving Care: Evidence Based Care with Patient Impact. April 18 &19. Join us in person in Toronto or Vancouver, or participate online!
ALT Text Reads: "What this theme means: The theme “Evolving Care: Evidence-Based Care with Patient Impact” was chosen to highlight how retinoblastoma research has advanced over the years and the meaningful impact this has on patients and families. Through keynote talks, panel discussions, and collaborative research workshops, the 2026 Retinoblastoma Research Symposium will explore scientific advances and the real-world influence this has on care and survivorship."
Registration is now open for the One Retinoblastoma World Conference. 🎉 It is taking place in San Antonio, Texas, from September 12th to September 14th 2026. Find more details here: wechope.org/onerbworld/ #retinoblastoma #rb #conference #patientengagement #eyecancer
Today is Rare Disease Day — a day dedicated to raising awareness for patients, families, and caregivers affected by rare diseases.
We stand with everyone impacted by retinoblastoma and other rare conditions.
#RareDiseaseDay #Retinoblastoma #RareButNotAlone #RBStrong
February is a key month for cancer awareness. Today, on International Childhood Cancer Day, we advocate for awareness , action, and hope. 💛 #ICCD #retinoblastoma #RB #EyeCancer #PatientEngagement #CRRAB
Read through the slides for anecdotes from patient partners participating in the FACE-Q Study! #RB #EyeCancer #retinoblastoma #patientengagement
ALT There are 3 slides in this post, each with a dark navy background, quotation marks, and a graphic of a cartoon with retinoblastoma or a graphic representing the retinoblastoma community.
