Roselyn Kanja (@rokanja) header
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Roselyn Kanja

@rokanja
Joined April 2009
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Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)Photo by Roselyn Kanja (@rokanja)
Hey guys .. If you are passing by University Way Roundabout, please take a look at the digital billboard and take a photo of the #RareDiseaseDay post for me. Tag @RareDiseaseKE or #RareDiseaseKE I'm excited about it but I cant go to town as yet ... Thanks and RT :)
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𝐒𝐡𝐨𝐰 𝐲𝐨𝐮𝐫 𝐒𝐭𝐫𝐢𝐩𝐞𝐬... In solidarity for Rare Disease Day 2024, we champion 'Achieving True Equity for 300 Million People Across the World with Rare Conditions' #RareDiseaseDay2024
Image from Ubuntu_Neurology (@UbuntuNeurology)
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Rock your denim for #RareDiseaseDay tomorrow! Snap a pic, tag us @RareDiseaseKE, and let's spread awareness together 😊 #JeansForGenes #RareDiseaseKE
Image from Rare Disorders Kenya (@RareDiseaseKE)
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Equity for rare diseases in 🇰🇪means Yara thrives with the best quality of life It empowers her parents to care for her while leading fulfilling lives, contributing to society & the economy. Your support in raising awareness gives our community recognition & drives policy action
Image from Rare Disorders Kenya (@RareDiseaseKE)
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On this #RareDiseaseDay, we call for action for people living with a rare disease (PLWRD) to have equal opportunities & to realize their full participation in family, work & social life Join and support us make a positive difference in the lives of PLWRDs in Kenya #RareDiseaseKE
Image from Rare Disorders Kenya (@RareDiseaseKE)
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Rare Disease Day (RDD) is upon us this leap year 😊 Let us spread awareness and support people living with rare diseases (PLWRDs) in Kenya. Join the community and be part of the rare family .. together we are stronger! #RareDiseaseKE #RareDiseaseDay #RareDiseaseDay2024
Photo of Mary smiling with her hands raised up. Mary is living with Rosai-Dorfman Disease (RDD).

ALT Photo of Mary smiling with her hands raised up. Mary is living with Rosai-Dorfman Disease (RDD).

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Look Mommy .. I'm on X :) This was a fun day!! Thanks @uapoldmutual for making this happen. cc: @rokanja @RareDiseaseKE
Rare Disease Day (@rarediseaseday) profile pictureRare Disease Day@rarediseaseday27 Nov 2023
#LightUpForRare on #RareDiseaseDay 🌟 We're more than raising awareness — we're sparking a Global Chain of Lights. 🗓️ Date: 29 February 2024 ⏰ Time: 7 PM local time Stay tuned as we share creative ways to participate and make your light shine for #RareDiseaseDay.
Two people holding a frame and standing in front of a building lighted up in Rare Disease Day colours.

ALT Two people holding a frame and standing in front of a building lighted up in Rare Disease Day colours.

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From a thought in 2014 to the world's largest health platform in 2023 ... #Excited #Blessed #RareDisease #UHCHLM
Image from Uncle Tina 🇰🇪 (@cmutena)
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Britam Towers illuminated in commemoration of #RareDiseaseDay 2023 They join the global chain of lights - different buildings and structures worldwide - in the theme #ShareYourColours Thank you @BritamEA for being part of the campaign. #RareDiseaseKE #Nairobi #Kenya
Image from Rare Disorders Kenya (@RareDiseaseKE)
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Come #ShareYourColours this 25th Feb at @thenairobihosp Convention Center from 9.30am Registration: rddke2023.eventbrite.com (Limited slots available) For more information: rarediseasekenya.org/rdd2023 To support this event: [email protected] #RareDiseaseDay #RareDiseaseKE
The photo has our model Zuri (living with Turners Syndrome) seated on stool while holding her knee. We have nicknamed her in this picture "Boss Lady" :) The photo also has details about our upcoming event and registration details. The same can be found on: www.rarediseasekenya.org/rdd2023

ALT The photo has our model Zuri (living with Turners Syndrome) seated on stool while holding her knee. We have nicknamed her in this picture "Boss Lady" :) The photo also has details about our upcoming event and registration details. The same can be found on: www.rarediseasekenya.org/rdd2023

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More than 300 million globally live with a rare disease 😔
Image from Uncle Tina 🇰🇪 (@cmutena)
World of Statistics (@stats_feed) profile pictureWorld of Statistics
@stats_feed22 Jan 2023
More than 300 million people globally don’t have a single friend 😔
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@aimelumaka @iapo @kellyrare @rarediseasesint setting up the base for our African Rare Disease Alliance meeting ... This session was moderated by @RareDiseaseGh :)
Image from Rare Disorders Kenya (@RareDiseaseKE)
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1st Rare Disease Stakeholders Workshop in Kenya! Time to prioritise these conditions and improve the quality of life for those living this reality. #RareDiseaseKe @RareDiseaseKE @eurordis @rarediseasesint @KEMRI_Kenya @CambridgeAfrica @MOH_Kenya
Image from Gladys Gachanja (@Gladys_Gachanja)
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It's been an honour for Dr Lucy McKay to take part in a panel on medical professional education with @RareDiseaseKE today. The challenges that patients face cross borders and continents. Collaboration and sharing is key #daretothinkrare #raredisease
Image from MedicsforRareDisease (@MedicsForRare)
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Glad to see @RareDiseaseKE making such great strides to inform & influence policy makers & stakeholders to institute sustainable systemic change that improves health outcomes & inclusiveness of those living with rare diseases & their families. @moh_kenya @KEMRI_Kenya @eurordis
Image from Gladys Gachanja (@Gladys_Gachanja)
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Hi @SteveHare @Sage_Africa @sagegroupplc 10 days and counting, after payment for renewal of subscription of an account, is just bad for any business! This is the second time it is happening. Your team appears to think your Kenyan market is non existent.
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Roselyn Kanja retweeted
NTV Kenya (@ntvkenya) profile picture
NTV Kenya
@ntvkenya9 Mar 2022
Roselyn Odero, Rare Diseases Kenya aelezea chanzo cha maradhi yasiyo ya kawaida. @Nuru_AbdulAziz #NTVSasa
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Africa and Beyond: Where do we go from here? Join the discussion 👉bit.ly/35QhD0X #RareExpoDubai 🙏Thank you @kellyrare @LaraBloom @cmutena @rokanja @Durhane @cdp989 @Psalmy_Bizzle @ApmpsVIDA @wfhemophilia
Image from ngorarediseases (@ngorarediseases)
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On Saturday, we hosted the @RareDiseaseKE team of @cmutena & @rokanja, as they commemorated #RareDiseaseDay. They held a free webinar to educate the public on Rare Diseases, what is being done to address the challenges as well as, how to advocate for yourself or your loved ones.
Image from Baraza Media Lab (@BarazaLab)
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Currently ongoing .. the global celebrations for Rare Disease The theme for today is: A Global Priority for Equity. You can register at events.eurordis.org/raredise… to follow the proceedings online! #DubaiExpo2020 #RareExpoDubai
Image from Rare Disorders Kenya (@RareDiseaseKE)
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